I've had epilepsy since I was 19, where I would get strange auras and smells, and could not understand what people were saying. The medicine I was prescribed never helped and the sensations started getting worse. When I was about 23 I went to a neurosurgeon who tested to see if I could be operated on. A non-malignant tumour was discovered and I was eventually operated on. (The whole tumour could not be removed as it would had affected my memory). A year later I had my first seizure. Since then I have about 3 seizures a year, depending on the situation I'm in. I'm now 32 and last year discussed having a baby with my husband. I got a VNS inserted in Oct 2011 and in Jan 2012 I fell pregnant. Since then the seizures have gotten worse, I now have about 2 -3 a month. I increased my medication and have reduced my activities.
This month I've had 2 other strange episodes and I don't know what they are, can anyone help me diagnose them? I started having them when I was about 14 and they're not very common, years can pass before I have another one. It usually happens when I'm laying down, I start feeling very heavy, my tongue then feels think, things then start to spin and then I get a repetitive loud sound spinning in my head. Things start to go crazy and worse. It lasts for minutes and I just have to wait for the feeling to pass. It's really terrible, but I don't think it's related to epilepsy as I can still think clearly. If my husband talks to me I understand what he's saying and can respond normally. I can get up and walk without falling. Does anyone know what this is? I know I have low-blood pressure, but it's not too severe. Please help...