Aa
A
A
Close
Avatar_universal
low dilantin levels and nocturnal tonic clonic
I have had tonic clonic seizures for almost 10 years. I do not have insurance and go to a free clinic. I have been taking generic dilantin as prescribed. Started at 300mg and was upped to 400mg two years ago. I've only had a handful of seizures while awake but when sleeping I have a few a week. When I have "bad" ones and go to the ER, my levels are always at a 1 or below. My Dr says I'm not taking my meds cuz I'm a "young punk kid with tattoos". He refuses to try anything else. I drink a craft beer once in a great while and I do have my medical marijuana card but I only partake the day after bad seizures for the head and muscle ache. I have stopped smoking for months at one point....no change. What can I possibly do? I'm getting older and am trying to have a child and need to get my disorder under control. I'm 28 btw, and a cigarette smoker trying to quit.
Cancel
1 Answers
Page 1 of 1
Avatar_universal
Hello and hope you are doing well.

Understand your predicament. The therapeutic range for dilantin is 50 to 100 mcg/mL. So, a value of 1 is very low, hence your doctor suspects non compliance. If therapeutic levels are reached and still if the seizure activity is not getting controlled, then your doctor may contemplate adding another medication. So, take your medication regularly and try to quit smoking as you are planning for a pregnancy. Take Care.

Hope this helped and do keep us posted.
Comment
Cancel
Avatar_universal
Comment
Comment
Submit Comment
Your Answer
Avatar_universal
Answer
Know how to answer? Tap here to leave your answer...
Answer
low dilantin levels and nocturnal tonic clonic
Submit Answer
A
A
Recent Activity
1415174_tn?1453246703
Blank
mkh9 commented on photo
44 mins ago
Avatar_universal
Blank
zahidkapariya commented on photo
1 hr ago
1415174_tn?1453246703
Blank
mkh9 uploaded new photos
5 hrs ago
Top Neurology Answerers
144586_tn?1284669764
Blank
1780921_tn?1416842066
Blank
Chandler, AZ
Avatar_universal
Blank
Minneapolis, MN
Epilepsy Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
233488_tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
748543_tn?1443740527
Blank
TMJ/TMJ The Connection Between Teet...
01/15 by Hamidreza Nassery , DMD, FICOI, FAGD, FICCMOBlank
Top Neurology Answerers
144586_tn?1284669764
Blank
1780921_tn?1416842066
Blank
Chandler, AZ
Avatar_universal
Blank
Minneapolis, MN