Epstein Barr Virus (EBV) Community
BODY TWITCHING
About This Community:

This patient support community is for discussions relating to Epstein Barr Virus (EBV), chronic EBV, and infectious mononucleosis (mono).

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

BODY TWITCHING

HAS ANYONE ON HERE THAT HAS BEEN DX'D WITH EBV HAD SEVERE BODY TWITCHING AT TIMES?  IF SO, WOULD LOVE TO HEAR FROM YOU!
Related Discussions
20 Comments Post a Comment
Blank
Avatar_f_tn
Hello Mercy,

I get body twitches all over. As a matter of fact, as I write this, I am twitching. I hate this symptom and I HATE EBV!!!!!!!!!!! Sorry, just venting!!!!!!!!!!!
Blank
Avatar_f_tn

Twitching can be due to fibromyalgia, magnesium deficiency or MS. And of course it is common for fibromyalgia to overlap with CFS and vice versa.
Blank
523927_tn?1257022304
Viruses and bacterial infections can also get in your tissues and nerves, not just your blood. It could be possible to have a virus messing with your nerves and causing twitches. Taking some magnesium would be a good idea.
Blank
Avatar_f_tn
i feel yor pain.. i got dx 20 yrs ago and up till 2 yrs ago  tried  rundown after working out softball ect    twitching  yep    muscle pain and numbness  yep   and they worked me for M.S  ect   only no lumbar pucture   waht was your EBV-VCA  IGG PANEL NUMBER MINE WAS 2197   really high   still  
Blank
Avatar_f_tn
How can I determine if this is from a virus or bacterial infection.  I have questioned the fact myself and have gone to docs and got all bloodwork.  I am slightly anemic and my sed rate was about 10 points too high at one point last year but now sed rate is normal.  I started getting real sick last year which was a year after having and still having a vaginal type infection.  I have been checked for all STD's and urine cultures only for them to come up with nothing.  I acquired the infection after having a new partner and am worried this could be contributing to alot of my symptoms.  I do feel like something is attacking my nerves, heart, etc with severe twitches throughout body (even vagina) which made me wonder??  Any ideas on this or what else I might can do as far as testing?  How do they determine if a bacteria or virus is in your tissues or nerves?  Thank you for your reply.
Blank
Avatar_f_tn
Do you think your twitching is due to the EBV?  If so, why?  what are some other symptoms you experience?  Have you been dx'd with anything else?  Do you have any recommendations for the twitching?  Do you ever get it in your heart as well?
Blank
Avatar_f_tn
Hello,

I don't think they took a EBV IGG panel on me.  I don't recall anything like that .  I just know that an EBV test was taken and it came back positive or recently acquired back in 2003.  Is this test you are referring to something I need to look into having them take?  What kind of insight could this test give me that the other one did not?
Blank
591884_tn?1234205309
I, too, have muscle twitches that can become pretty severe at times.  Not sure if it is caused by EBV or not but I've had them since I've been sick with EBV.  
Blank
523927_tn?1257022304
Pathogens like viruses, bacteria, and mycoplasmas can be very hard to detect. There are only a few reliable labs that I hear mentioned and none of them are covered under normal insurance policies. Even then, you could still get a negative result if the pathogens are hiding out in your tissues, organs, or nerves. EBV is probably easier to pick up on because it must hang out in the bloodstream versus what some of the other pathogens can do. Unfortunately, there is no easy answer in getting tested for what could be ailing you.

I have been unsuccessful in my attempts to learn what I may be inflicted with other than high EBV titers. Nerves and tissues would have to be biopsied to check for pathogens and the pathologists would probably need some direction in what they are trying to find. Unless you have something failing or mutating, no doctor is probably going to agree that a biopsy is a good idea.

Professor Nicolson graced us with his knowledge awhile ago and these links show his answers to many people that suffer like us.
http://www.medhelp.org/posts/show/648144
http://www.medhelp.org/posts/show/655603
Blank
650547_tn?1271776798
Hi, I had pretty severe twitching a couple times since being dx with EBV, but I think it was mainly from anxiety/panic attacks.  I do have shaking/trembling sometimes, though, when I feel more tired than normal, and also a lot of mornings for like the first 1/2 hour or so after I wake up.
Blank
Avatar_f_tn
Do any of you have tingling/buzzing sensations? I am having these very bad and they drive me crazy.
Blank
523927_tn?1257022304
I'm not sure I get the buzzing so much, but I'll get tingling once in awhile. EBV can get into your nerves from my understanding, so buzzing and tingling would make sense.
Blank
Avatar_f_tn
Hi there,
I have not yet been diagnosed with Epstein Barr but they are running titers.  I have had the crazy twitches since June, turns out they are benign faciculations.  Check out the website aboutbfs.com
Blank
Avatar_f_tn
I have buzzing, humming and clicking in my ears.  Where is your buzzing at??
Blank
Avatar_f_tn
My buzzing is in my left foot. I get it in my right foot sometimes, but mostly in my left. The tingling is all over.
Blank
650547_tn?1271776798
I guess I don't have buzzing/tingling.  It's more just shakiness, or at least that's how I describe it.
Blank
Avatar_m_tn
I have twitching in different areas of my body. Fortunately, it only lasts for 30s or so at a time. It never hurts per se, just a bit annoying.

By comparison, the pins/needdles, burning, tingling, buzzing, episodes are much longer lived and far more uncomfortable in my case. BTW, buzzing is in my calves by my foot. The extremities seems to be more common.
Blank
Avatar_f_tn
Jason,

Your symptoms sound almost identical to mine.
Blank
810264_tn?1239174497
I too have EBV and severe body twitching... I have a couple questions... did the symptoms start with the onset of what seemed like a bad flu that you never recovered from if so were you taking broad spectrum anti-biotics for your infection with your new partner the same thing happend to me. Look into yeast overgrowth and candida testing Im currently researching this possibility. I have sporadic twitching mostly in my legs but also in my arms, abdomin (abdomen), and alittle in my face I also suffer from what can be described as a foggy feeling in my head and the usual fatigue associated with this problem, I need at least 8 hrs of sleep when I do wake up it takes another 2 hrs to actually "wake up" and I drag through the rest of the day trying to function normally which is hit and miss, other possibilities ive researched is hhv6 (human herpes virus), I tested negative for this but ebv and this virus and symptoms go hand in hand a doctor at stanford medical has been doing clinical trials with a drug called vagilcyclovir with impressive results at both reducing ebv and hhv6 titer levels, im looking into dyflucan to treat yeast overgrowth and possible candida poisoning combined with strict no yeast/sugar diet thats been pioneered by a doctor im researching in LA
Blank
Avatar_n_tn
Hi,

  I am seeing similar symptoms off late with a similar scenario as yours. all std tests are negative but something is attacking my nervous system and heart. Were you able to figure out what is the cause for your symptoms and how have you been doing recently with your symptoms? A reply from ou would be greatly helpful.

Thanks,
  KK
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Epstein Barr Virus (EBV) Community Resources
RSS Expert Activity
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eating Control: How to St...
Aug 28 by Roger Gould, M.D.Blank