I reviewed my test results today and I noticed that my Vitamin D 1,25 was the result that was low. What is the big difference between the D 1,25 and the D? I read in a previous post that you stated that most fibro patients test low on Vitamin D. I don't think I have had just the regular Vitamin D level tested. Should I and would the low Vitamin D 1,25 be indicative of CFIDS/EBV/ME/Post viral as well?
I'm assuming that you aren't taking vitamin D or just recently started taking the supplement... is that correct ? The reason why I'm making this assumption is because on a research protocol that I was recently on, many of the patients had a low vitamin D and a higher (but usually within normal range) vitamin D 1,25 hydroxy. Dr. Trevor Marshall has done research on this. If you are interested, you can google, "vitamin D dysregulation". It has to do with the way vitamin D is converted and intracellular bacteria. Vitamin D is consumed through diet or absorbed through your skin and then it is converted to an active hormone.... vitamin D 1,25 hydroxy.
Dr. Nancy Klimas, an expert on Chronic Fatigue Syndrome has said, "low vitamin D is a frequent finding even in my sunshine state – Florida - and vitamin D is important to immune health. But I don't now if it was there to begin with or is a consequence of the illness."
I started taking 50000 IUs of Vitamin D 3 weeks ago. All that was ever tested on me was the Vitamin D,125 Hydroxy. I do not have any results from a regular Vitamin D because this was the only test that was run. I was just wanting to know the distinct difference between the 2 tests since you stated that CFIDS tested higher on the Vit D 1,25. If mine was a 7 and that is very low, would I need to have a regular Vitamin D ran or would this reading possibly indicate that I may not have CFIDS. If not, then I really feel like I am going backwards instead of forward. Thanks for the reply. I have not had another redraw because I have to take 3 months worth of Vitamin D 50000 IUs for the next 3 months.
My D 1,25 as listed above was only 7.1. I don't have a lab that was a Vitamin D,12-Hydroxy. I only have the lab for the Vitamin D,125. There are many diseases that are linked to a low Vitamin D. I don't know what my regular Vitamin D(Total) is. I wonder why the neuro did not run this test for me? What was your D 1,25 level?
They put me on 50000 IUs per week and this is making me feel a little better. I have to take this dosage for the next 2 months and then have a redraw in March. I still think there is something else that is causing my levels to be so low. I am going to ask the physician about getting the D,25 since this is the regular Vitamin D. At least you know that yours is within normal limits. Mine is scary low.
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