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EBV 41yr old father of 4 seeking advice

Ive been reading through the old messages and the info there has been very helpful. Im a 41yr old father of 3 - I came down with fatigue symptoms about 6-8 weeks ago. I went to my doctor and after some run around I got a phone call that i had Mono. Now my daughter 13yrs old had Mono this spring. I suppose i have never been exposed to it and therefore picked it up. (Terrible habit of drinking out of my kids glasses.)
     That leads me to where im at now and where i have been for the past 2 months or so.   * FATIGUE  * ugh its awful. Up until i started feeling fatigued i was working out, running, eating healthy ect ect. Low body fat percentage - in pretty good shape really.
     The odd thing about this is that the FATIGUE is really the ONLY  symptom i have had. Is this strange??? Upon awakining each morning i do really good until i hit 1-2pm then get that "beatin up" feeling all over my muscles (no fever though) and a pressure behind my eyes that makes me feel sleepy. I go home and sleep for an hour or 2 then im pretty good till bedtime - 10p.
     Very odd as im not fatigued all the time.
     I was wondering if anyone's fatigue resembles this.
Also please tell me there IS HOPE that my body will somehow put this into remission. Not everyone who gets this has it chronically i know - just seems that alot of whats on the internet is cases of chronic Mono (or EBV).
    I ordered Lauricidin after doing some research. Lauricidin is a concentrated mini-pellet of sn1 monolaurin. It wasnt very expensive and is giving me some sense of hope (maybe false i know). Has anyone tried this?
    I go back for a follow up to my doctor this monday. Anything you suggest i should ask specifically?
    Thanks for taking the time to read. I wish you all well and pray for some relief to all the suffering.

Regards and God Bless...
Mike
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Avatar universal

Hi ! I agree with you about having a weakened immune system :

From Dr. Jacob Teitelbaum's book, "From Fatigued to Fantastic" --- pg. 85

"Although mycoplasma and chalmydia are common in the environment, they usually are fairly noninvasive. It may simply be that once your immune system is weakened, these infections can get into cells where they don't belong. When that happens, even some of the common ones that are normally considered noninfectious can wreak havoc. When these infections reproduce slowly, then tend to be low-grade and chronic, as opposed to the acute and more prominent symptoms seen with bacterial and viral infections that multiply and divide rapidly."

The pathogen killing treatments that I posted in the fibro / CFS community are successfully treating many people with autoimmune diseases, CFS and other neuro-immune illnesses. These treatments can make you feel worse (due to "herxing") and take up to years... but I'm making significant progress and I keep in touch with many others who are also having success with these treatments. Every physician that I'm aware of who has had CFS (Dr. Teitelbaum, Dr. Mark Shaw & Dr. Garth Nicolson) and successfully treated their own illness, is aware of mycoplasma infections in CFS patients and all of them frequently recommend and/or prescribe antibiotics to treat these infections. These treatments aren't without controversy, but I could care less.... I'm getting better !

http://www.medhelp.org/health_pages/Fibromyalgia/Treatments-for-Chronic-Fatigue-Syndrome/show/453?cid=39
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Avatar universal
Hi, I just forgot something to say:

you mention this about mycoplasmas, the kinds that enter cells(intra-cell mycoplasma), but if you apply this to viruses, and this what I do not understand, viruses enter also cells, and they leave cells too. Why do they not carry parts of cells with them ?

So, if this is applicable to mycoplasmas, then it is also applicable to viruses. The thing is, we don't exactly know, and the researchers don't know either, i think.

Researchers maybe need to conduct more research on humans, instead of hidden in their labs with their mice.

Overstressed.
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Avatar universal
As there are more ways to get to Rome, I think there are more ways to develop an autoimmune disease.

My understanding is that due to a WEAK immune system, you develop an autoimmune disease. I don't know whether you know, but HIV+ people develop also autoimmune diseases. A bit contradictionary, don't you think ? It makes sense to me, HIV+ suffer from an immune deficiency, their immune system is unbalanced, therefore it doesn't work properly.

The question is, how did you come to an immune deficiency ? Acquired, due to an infection ? Inherited ? Other environmental reasons ?

Have you had your CD4-CD8 white blood cells checked ? How is their ratio ? I will have that checked the next days, at least, if the docs cooperates with me.

Overstressed.
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Avatar universal
Years after having undiagnosed CFS, I also started having autoimmune problems. My ANA titer is 1:640.

Here is a theory as to why this is happening :

"When mycoplasmas exit certain cells, such as synovial cells, nerve cells, among others that can be infected, they can stimulate autoimmune response."

http://www.immed.org/illness/fatigue_illness_research.html

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Avatar universal
Hi Mike,

I'm not sure if I can help you, but I think I had an EBV infection, the last year. After half a year, I developed at least one autoimmune disorder. But, to come back to the fatigue issue:

I also felt tired, 9 months until a doc prescribed me acyclovir for another suspected viral infection. But, it helped me to get rid of my fatugue symptoms! I took a ten-day course of acyclovir, 5 times a day.

Acyclovir will not harm you, and maybe it's worth it ?

Overstressed.
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Avatar universal
It is true that EBV can lead to CFS among other things.  Although fatigue is a symptom of active EBV, I agree with PlateletGal that you should try to see a doctor for CFS.

I'm 25 years old and have had CAEBV for 10 years now, which is Chronic Active Epstein-Barr Virus.  I know that isn't really something you want to read since you said you've seen a lot of chronic cases listed and it is bringing you down.  Don't let it!  Worry and stress over the situation will only make things worse.  You need to relax.  EBV exists in about 90% of the populace and most cases of it are dormant indefinitely.  The rare cases are the ones that have recurrence and chronic EBV.  You're lucky to just have fatigue by the way.  I know it is strange to look at that as lucky, but things could be worse.  I have a multitude of symptoms along with fatigue.

My fatigue is kind of like yours.  When I wake up in the morning I feel as though I never went to sleep.  This feeling exists for the next 2-3 hours and then I feel "okay" and can go about my day without feeling so fatigued.  Then sometimes during the day I exert myself too much (because after 10 years I'm pretty tired of being sick and I probably push myself too much to try and be "normal") and I become really fatigued again until I rest for several hours and then I do more activities and am exhausted again around 9-10pm.  My thoughts are that maybe you're trying too hard to resume your normal everyday activities and not taking into account that you are still very much ill, which is causing you to become very fatigued in the middle of the day.

EBV is mysterious because it affects so many people differently.  It wouldn't be so strange that fatigue was your only symptom you had with EBV while others experience differently.
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Avatar universal

Hi ! Although you don't have the symptoms of Chronic Fatigue Syndrome, you may want to consider seeing a physician who knows how to diagnose and treat CFS. I'm sure a knowledgeable physician who frequently sees CFS patients may be able to give you advice and/or treatment options. To find such a physician in your area, I would recommend googling, "Co-Cure's Good Physician List".

Also, in Ft. Worth, Texas... there is a fibromyalgia and fatigue center.

http://www.****.***

An estimated 10% of people who have mono caused by EBV end up getting CFS. EBV is not something to mess with and I strongly recommend seeing a qualified physician to help you with your fatigue symptoms.

Keep in touch if you can...

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