Hi ! I agree with you about having a weakened immune system :
From Dr. Jacob Teitelbaum's book, "From Fatigued to Fantastic" --- pg. 85
"Although mycoplasma and chalmydia are common in the environment, they usually are fairly noninvasive. It may simply be that once your immune system is weakened, these infections can get into cells where they don't belong. When that happens, even some of the common ones that are normally considered noninfectious can wreak havoc. When these infections reproduce slowly, then tend to be low-grade and chronic, as opposed to the acute and more prominent symptoms seen with bacterial and viral infections that multiply and divide rapidly."
The pathogen killing treatments that I posted in the fibro / CFS community are successfully treating many people with autoimmune diseases, CFS and other neuro-immune illnesses. These treatments can make you feel worse (due to "herxing") and take up to years... but I'm making significant progress and I keep in touch with many others who are also having success with these treatments. Every physician that I'm aware of who has had CFS (Dr. Teitelbaum, Dr. Mark Shaw & Dr. Garth Nicolson) and successfully treated their own illness, is aware of mycoplasma infections in CFS patients and all of them frequently recommend and/or prescribe antibiotics to treat these infections. These treatments aren't without controversy, but I could care less.... I'm getting better !
http://www.medhelp.org/health_pages/Fibromyalgia/Treatments-for-Chronic-Fatigue-Syndrome/show/453?cid=39
Hi, I just forgot something to say:
you mention this about mycoplasmas, the kinds that enter cells(intra-cell mycoplasma), but if you apply this to viruses, and this what I do not understand, viruses enter also cells, and they leave cells too. Why do they not carry parts of cells with them ?
So, if this is applicable to mycoplasmas, then it is also applicable to viruses. The thing is, we don't exactly know, and the researchers don't know either, i think.
Researchers maybe need to conduct more research on humans, instead of hidden in their labs with their mice.
Overstressed.
As there are more ways to get to Rome, I think there are more ways to develop an autoimmune disease.
My understanding is that due to a WEAK immune system, you develop an autoimmune disease. I don't know whether you know, but HIV+ people develop also autoimmune diseases. A bit contradictionary, don't you think ? It makes sense to me, HIV+ suffer from an immune deficiency, their immune system is unbalanced, therefore it doesn't work properly.
The question is, how did you come to an immune deficiency ? Acquired, due to an infection ? Inherited ? Other environmental reasons ?
Have you had your CD4-CD8 white blood cells checked ? How is their ratio ? I will have that checked the next days, at least, if the docs cooperates with me.
Overstressed.
Years after having undiagnosed CFS, I also started having autoimmune problems. My ANA titer is 1:640.
Here is a theory as to why this is happening :
"When mycoplasmas exit certain cells, such as synovial cells, nerve cells, among others that can be infected, they can stimulate autoimmune response."
http://www.immed.org/illness/fatigue_illness_research.html
Hi Mike,
I'm not sure if I can help you, but I think I had an EBV infection, the last year. After half a year, I developed at least one autoimmune disorder. But, to come back to the fatigue issue:
I also felt tired, 9 months until a doc prescribed me acyclovir for another suspected viral infection. But, it helped me to get rid of my fatugue symptoms! I took a ten-day course of acyclovir, 5 times a day.
Acyclovir will not harm you, and maybe it's worth it ?
Overstressed.
It is true that EBV can lead to CFS among other things. Although fatigue is a symptom of active EBV, I agree with PlateletGal that you should try to see a doctor for CFS.
I'm 25 years old and have had CAEBV for 10 years now, which is Chronic Active Epstein-Barr Virus. I know that isn't really something you want to read since you said you've seen a lot of chronic cases listed and it is bringing you down. Don't let it! Worry and stress over the situation will only make things worse. You need to relax. EBV exists in about 90% of the populace and most cases of it are dormant indefinitely. The rare cases are the ones that have recurrence and chronic EBV. You're lucky to just have fatigue by the way. I know it is strange to look at that as lucky, but things could be worse. I have a multitude of symptoms along with fatigue.
My fatigue is kind of like yours. When I wake up in the morning I feel as though I never went to sleep. This feeling exists for the next 2-3 hours and then I feel "okay" and can go about my day without feeling so fatigued. Then sometimes during the day I exert myself too much (because after 10 years I'm pretty tired of being sick and I probably push myself too much to try and be "normal") and I become really fatigued again until I rest for several hours and then I do more activities and am exhausted again around 9-10pm. My thoughts are that maybe you're trying too hard to resume your normal everyday activities and not taking into account that you are still very much ill, which is causing you to become very fatigued in the middle of the day.
EBV is mysterious because it affects so many people differently. It wouldn't be so strange that fatigue was your only symptom you had with EBV while others experience differently.
Hi ! Although you don't have the symptoms of Chronic Fatigue Syndrome, you may want to consider seeing a physician who knows how to diagnose and treat CFS. I'm sure a knowledgeable physician who frequently sees CFS patients may be able to give you advice and/or treatment options. To find such a physician in your area, I would recommend googling, "Co-Cure's Good Physician List".
Also, in Ft. Worth, Texas... there is a fibromyalgia and fatigue center.
http://www.****.***
An estimated 10% of people who have mono caused by EBV end up getting CFS. EBV is not something to mess with and I strongly recommend seeing a qualified physician to help you with your fatigue symptoms.
Keep in touch if you can...