Is EBV going to kill me ??

[LivingDead101]

14 months of being extremely ill, Dr finally tested me for everything including HIV, it came back positive only for EBV, l have low white cell count, high B12, slightly high pottasium level. I'm not getting better I'm still as sick and the fatuige is horrible ! I'm only exsisting, this is not living! I was so active before this took me out. Please help me understand, is there anything I can do to help myself. Please Help. Am I going to physically Die from this ? Because I am so sick, I feel like it. My life as I knew it has already died.  Its hard to believe there's nothing I can do, as my Drs tell me, except live with it. No I can't just live with this ! It's a nightmare ! If there is help out there please tell me. Someone please talk to me about this. I'm am so isolated, and afraid, I have  no family, no friends since I became ill. I've lost everything, living on SSI now, get meals on wheels, that's it, and aid at sheltering arms picks up my medications for my other Heath issues I've had for years, that I've never had any long term problems with at all. I now ride the medicade bus to get to appointments, thats rough ! It just wares me out. Bassicly I just sit here in this house, alone and sick, not knowing what to do or think  ? Please Help.

[Moonrabbitzmom]

Hello, everyone.

I just stumbled upon this huge thread. After reading most of this thread, I'm still uncertain of my future.

I was given the terrible news two days ago, and see my primary care doc on Saturday. I was informed that not only did I test positive for EBV, the whole panel lit up. I have EBV, CMV, HHV6, and all the others at varying levels. (I'm going to request a copy of the results.) I'm scared at this point. I feel very fluish, and my lower abdomen hurts every time I breathe. I'm retaining urine, not completely emptying my bladder during one sitting. Of course, I'm also terribly fatigued and suffer nausea and vomiting once and a while without warning. My liver enzymes are elevated. And, my heart rhythm is showing some abnormality in the ventricles (the lower part of the heart. Since my grandfather died as a result of long-tern, severe heart disease, and my grandmother had congestive heart failure (although, that's not what killed her... she passed from brain cancer). My grandfather on my father's side had an anyurism.
So, after hearing my family history, the doctor shared that he would be praying for me. (Yikes!!!)

In a way, this answers many questions. Three years ago, I had what appeared to be a stroke; however, they were never able to properly diagnose it. I was under a lot of stress at the time; so when I felt the gunshot go off in my head, and then awoke with the left side of my face, looking as if it was melting, I assumed it waa a stroke. I had difficulties staying awake. I slept constantly; and when I tried to get medical attention, I found myself in an overcrowded emergency room... one pupil pin point and the other dialated. I began researching my test results, and found that a neurological symptom of an activation of these viruses can mimic a stroke. Of course, I recovered after three months or so with only an increase in antidepressants.

Finally, my question... I know that this is highly contagious. Are my grandchildren in danger when they come to visit? My grand daughter is 17 mos, and my grandson is just over 4 years. He has yet to be potty trained.

My husband has myastenia gravis, thus he is immunosuppressed, I'm having him tested. It would be a miracle if he wasn't infected. He's been complaining of a headache, and sleepiness, being bedridden for at least three months now. Actually, he's been like this for so long, I can't remember when he was up with me during the day longer than a day or two in a row.

And, lastly, what happens next? When I see my doctor on Saturday is it likely that I'll end-up in the hospital? Will this pass like the last time? Is this going to kill me?

[Jamieannilyn]

I feel the same way.

[Jamieannilyn]

My EBV has been 600+ for over a year now. I have Lyme and several co infectious.

I understand every word you say. This ***** the life out of you. My advice is to be careful taking antiviral meds. I was at a 5 and after three or four days on antiviralsin the hospital, I spiked and stayed there ever since.

I'm still at 600+ and yes, it is exhausting. Be careful not to fuel the virus with too much glucose/sugar. God Bless.

[Jamieannilyn]

Yes, I have this. And, I'm sorry to say but I am an Rn with Lyme and countless years of horribly devastating blood work.  I have been on both sides of the fence and YES it can kill us.

I'm sorry, starting praying. I will pray for you. I'm sorry if this scares you but it is the truth. Seek your soul now.

[Jamieannilyn]

I understand.

[jesse101tx]

Did you ever figure out what's going on with you?  Hopefully it's over and you are back to feeling normal!