Epstein Barr Virus (EBV) Community
Newly diagnosed with EBV
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This patient support community is for discussions relating to Epstein Barr Virus (EBV), chronic EBV, and infectious mononucleosis (mono).

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Newly diagnosed with EBV

I JUST WANT TO SCREAM AND HIT SOMETHING.  I am so frustrated that there's not any good resources on this.  I went to the doctor after my 2yo was diagnosed with strep, my doctor dx me with strep.  After taking a antibiotic for 7 days went back to the doctor because I felt tired exhausted still.  She did more blood work and EBV tieters (sp?) and it was negative, negative, 8, and 8, but the monospot was negative.  She said I had mono.  I never had mono in my life.  This is the 3rd thing I've been diagnosed with in two years.  Hashimotos, Fibromyalgia, and now EBV, and just when I got the Fibro under control, this crap happens.  I have never been so depressed, what next, and all this stuff how it's linked to cancer.  I'm 37yo mother of 5.  I don't get emotional support from my husband who literally thinks this is in my head.  My doctor including my Rhum. sasy this can last a while but it will go away, or are they just lying to me.  I want reassurance.  I know this is in God's hands.  
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I wouldn't worry about it. It seems everyone has had EBV. Including me. If 10 of your friends were tested, I wouldn't be surprised if 8 out of 10 had it at one time, really relax.
My doc had told me its very, very, very common.
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so far from what I've been told 95% of all people have this...
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Hi Julie, while what the other members have said is true, it's also true that in the majority of people, the virus is not active.  Therefore, they don't have any symptoms or effects.  What you have sounds like an active case, whether initial or re-activation.  I don't mean to scare you or anything, but given that you have fibro, your body may have a little tougher time dealing with ebv.  However, that's not to say things won't get better!  Unfortunately this won't be easy with your 5 children and unsympathetic husband, but you need to get as much rest as possible; that's one of the best "helping hands" you can give your body in fighting this infection.  So keep your head up; things will almost certainly get better!  Also, I wouldn't worry about ebv being linked to cancer.  From what I've heard, it's very difficult to link one to the other, given that, as the previous posters said, 90-95% of people have ebv.  Anyway, I'm not a doctor, but I did a considerable amount of investigating ebv when it had me sick; so I hope this has helped you!
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This is correct, about 95% of the population will test positve for it. I tested positive for it about a year ago.

According to my doctor there is no medication for it, just medication for the symptoms if you get any.

Mine is dormant, but I had a co-worker whose was active, & she really got sick. She had to drop out of school for a semester because of it.

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