I have been suffering from chronic fatigue syndrome for the last 12 years caused by ebv. At the moment i'm on ebv drops supplied to me from my naturopath. I've only been on them for a few days, so it may be too early to tell if im on the right track.Has anyone got advice for me. Is there something else i can be doing. Wanting to fall pregnant soon but worried what the ebv is going to do.
The drops are a homoeopathic detox for ebv. It contains all types of natural medicines in it from Epstein barr virus nosode to echinacea angustifolia. The list goes on. I'm sure if you went to see a naturopath they would know about the ebv drops. I highly recommend seeing a natuaopath.
I am on Jernigans myself, Only been on it a week to soon for results I am afraid, However I am also taking supplements hope to be on the right track soon, Have not been able to find a doc that can point me in another direction or even agree on what the issue is, only know my EBV numbers are high. You are NOT alone hang in there.
Hi, I have chronic EBV and my doctors told me that many times when you get pregnant your ebv symptoms will go away, but your body may have a major relapse after the baby is born. I think it is similar to people who have other autoimmune issues. Good luck!
I'm 29 soon to be thirty. I don't think it has anything to do with age.I think it depends on the strength of our immune system. May be the weaker it is the longer it takes for medicines to work. Not too sure though.
Your physicians hit the nail on its head ! Yes.... you will probably feel a lot better when you get pregnant, but then could have a major relapse after the baby is born. I'm happy you have physicians who know about this !
As far as passing along pathogens to your baby.... I guess it would depend on which pathogens you have. There are many CFS patients who have L-form bacteria and to my knowledge, that can be spread to your baby. Here is some information on the subject that you may find to be helpful :
http://bacteriality.com/2008/07/31/hpv/ --- HPV found in breast milk
http://bacteriality.com/2007/10/31/family/ --- Bacteria vs. genes: the spread of chronic disease in families
PlateletGal-Yes, my physicians did hit the nail on the head. They DID say that I would most likely feel good pregnant, but after the baby is born, I would feel terrible and it could last for longer than the previous times and could be worse. I have a friend with lupus who had never felt better in her entire life while she was pregnant. All of her symptoms left her for the first time in her life. After giving birth she had the worst lupus symptoms of her life. It's pretty crazy how that works, huh?
Kat29-No, I don't believe it would cause any harm at all to the baby. In fact, your body usually protects itself from sickness like this while you are pregnant. That is the good thing about it.
Has anyone ever heard of mega doses of vitamin C to help with autoimmune issues? I'm going to go to a lady who specializes in natural remedies and also works with a Dr who says this really helped her family members with chronic fatigue. I also heard an infomercial on AM radio that talked about the mega doses of vitamin C and they were saying the same thing. I have heard about it 2 times now. I think I am going to try it. I guess you need to be monitored though, because the doses are so high.
Glad the information was helpful.... it is wild, isn't it ? Dr. Garth Nicholson talks about all of the pathogens that are found in not only FM/CFS patients, but autoimmune diseases as well. He explains how mycoplasmas are involved with autoimmune diseases. You can google his name and his website will be the first one on the google search (Institute of Molecular Medicine) I've read that he had CFS and so does his wife. He was a HEM/ONC physician and has a very impressive bio. The military has given him millions of dollars to do more research on Gulf War Syndrome.
I haven't heard about taking mega doses of vitamin C for autoimmunity issues. The supplements that I'm taking are:
vitamin B complex (sublingual --- available at Walgreens)
flax seed oil (helps with inflammation)
I also take my regular dose of vitamin C and E.
I'm currently on Dr. David Jernigan's protocol, which targets viruses, pathogens, mycoplasmas that are making me so ill.
Many years ago, probably about 14 years ago, i had made an appointment too see a doctor because of extreme fatigue, the doctor ran many tests all coming back negative, I originally was being tested for HIV because someone close too me had it. That was and still is negative...... but the dr seemed too make me feel like a freak because of my crying spells ( i was scared too death obviously of a possible positive hiv result and living with someone you love is like playing with a loaded pistol because of your constant fear of someone becoming infected) well after everything coming back ok, he did one more test, and it was for EBV, it came back positive. I asked him, what do i do, he said take more vitamins and rest. i looked at him like he was from another planet, i just finished telling him i'm a caregiver for someone with a very serious disease, and had two TEENAGERS! WHAT parent gets rest mentally and/or physically with children? lol. Well he said he could give me vitamin b12 injections, at first WHOA i loved it, worked like a charm, that day, even, but as time would go by those injections stopped working and no energy, no will, again, at all. He told me i would have too live with it.
Now at 43 I went too another doctor since also being diagnosed with a severe liver disease obtained just a few years ago, and a doctor, not my gastrologist said: no you dont have EBV you were exposed too it but you grew an immunity too it, no further medical attention is needed he stated. WHAT do i do? i have NO energy but i also related this to another underlying health matter i got after being exposed too EBV, and then my husband died, my daughter got pregnant the same month my husband died, and my son went too jail from a domestic sitution not being able too handle the death of his father. so much has happened, yet i find no peace and harmony for myself. What do i do when these dr's state you dont need additional care, or give you some excuse such as this? and yes the doctor is aware of my other medical conditions but instead he put me on 25 mg xanax (which i dont like because it gives me mood swings) I asked for it's cousin, klonipin (klonopin) instead and explained it doesnt make me feel so moody and groggy and i'm not forgetful as i tend too be on that xanax. I've been on paxil, zoloft, and celexa with no signs of hope.
Can EBV itself intefer with liver disease and the side effects liver disease promotes, FATIGUE, confusion, etc?
Are there new medications soley for EBV that are liver friendly?
I'm using Epstein-Barr drops from professional formulas. I just started it says for extreme symptoms I need to do 10 to 15 drops every hour for eight hours I did that yesterday and today is the first day I ever woke up and felt something was working. I'm going to continue taking same 15 drops today every hour for eight hours. I was reading the book of medical medium and read all about EBV and the different groups types and what it causes. I'm definitely up there with one of the worst I've been having this since 84 it has gone in remission a few times but definitely came back with A vengeance about two decades ago and I've been suffering ever since to the point that I even had to retire to the point that my knees wouldn't even work! But shockingly today I don't even feel like I have any knee problems this is shocking me I hear myself say that my knees are not bothering me today this is unbelievable. What I found out that need issues were part of a aggressive EBV, i'm definitely up there with one of the worst I've been having this since 84 it has gone in remission a few times but definitely came back with the investors about two decades ago and I've been suffering ever cents to the point that I even had to retire to the point that my knees wouldn't even work today I don't even feel like I have any problems this is shocking me I hear myself say that my knees are not bothering me today this is unbelievable. What I found out that need issues were part of a aggressive EBV. I knew I was suffering with one of the worst cases. Bless everyone on this journey it is not easy. I've been taking a product called low dose Naltrexone for five years which is an immune modulator it's also known as LDN. Absolutely no it has help me because it got me out of bed after being stuck there for two years. But I think it's done all I can do is far as my immune system goes now I need something to fight these sprockets that are burrowing into my organs! Medical medium is not a doctor but everything that he speaks is things that I've heard and suspected that spirit has taught him and I do believe in mediums. Probably only about 10 mediums in this whole world are worth their weight in gold and I believe he's one of them. I would definitely go to the library and check out his book medical medium and read up on the Chapter in Epstein-Barr virus it may shock you! And those Epstein-Barr drops from professional formulas have really opened my eyes that I do need to follow a cleansing diet and take supplements to kill these little bastards that of been plaguing me for decades , thankfully there is a cleansing diet for EBV suffers. Did you know that nuts and L arginine actually feed EBV? So those of you who are suffering definitely need to read this book get it from your library take all the notes you can if you can afford it by the book or you could buy the Kindle book for like $13 from Amazon!
I've been using professional formulas epstine barr drops. I taking it for extreme symptoms 15 drops every hour for eight hours a day. They do have less aggressive dosing twice a day for example but I'm too far gone for twice a day. I can say they are definitely helping something I don't know what. I could make a post below if you can read about it there. I just found out yesterday that my beloved almonds and cashews and walnuts that I eat almost every day actually feed to EBV virus! Because it is a form of L arginine. Anybody taking L arginine or eating nuts every day you definitely need to find out what foods are bad for EBV God bless us all in this difficult journey
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