please help DESPERAT

I know that may be a dramatic title, but in actual fact it doesn't get anywhere near to how i feel. I am at my wits end.

I am posting this on a number of boards so i apologise if you see this in more than one place. I also apologise if this is a little long winded.

I am a 41 year old, previously extremely fit / healthy male from the UK.

At the beginning of August this year, i became ill with flu like symptoms, tiredness, general malaise, tremor in my index fingers, low grade fever etc. I also had recurring perfectly round mouth cankers. I couldn't shake this off and visited my GP who took loads of blood tests. Shortly after i began getting really intense pains in my lower right rib area. It felt like my liver was twice the size it should be.

My liver was scanned along with spleen and kidneys. All normal. My bloods all came back fine, with the exception of raised Epstein Barr titres. My GP told me this was probably a flair of an old infection. Although i got the impression he didn't really know what was going on.

September came and went, as did the illness, some days didn't feel too bad, but most times i felt at best "wrong". October was the same, no improvements / changes.

in November i started to take olive leaf extract, L Lysine and milk thistle in an attempt to support my failing body. I revisited my GP, who did more blood, all still fine.

In mid November i began to feel incredibly dizzy / lightheaded and noticed a ringing in my ears (tinnitus) along with some minor cognitive issues like seeing letters the wrong way round.I was also getting really odd and and random muscle twitches / spasms in various parts of my body. I also had a really spaced out, wooly head feeling, really difficult to describe. Also would get facial flushings and a rash on my cheek bones.

I ended up in the emergency dept. Of my local hospital on three consecutive evenings. I was assessed by three different Drs, more blood and head CT scan. All normal.i then went on to see 2 further drs on a ward. They could find nothing. The next day i went to see a neurologist who gave me the most thourough work up ive ever known... He could find no abnormalities.

Since then i have had more really odd symptons / sensations. Ive had some strange feelings on my tongue, almost like numbness, or if there are hairs on the tongue or throat. the twitching / spasms come and go absolutely everywhere. Ive had some crampy feelings in various parts of my legs and feet and a feeling that my ligaments are shortening. i sometimes get a feeling that something is crawling on my skin. I also sometimes get a feeling that someone has flicked water at me. The most bazaar thing though is above my left eyebrow... When i raise it, it feels odd and then feels like momentarily it doesnt drop down when i stop raising... Like i said, bazaar.

I have been back to my GP. He has listened, examined and says he can find nothing wrong. I have seen SEVEN doctors and a neurologist Doctor since November.

To top it all off ive now got the flu / chest / cough thing back again which has been recurring since this all started in August.

I am sorry i have droned on so much. I really am so desperate with all this. My life has become an existance that is isnt worth it. Any advice / help / similar stories would be gratefully received.

[xdna]

I don't think doctors can do anything after the mononucleosis sympton. I got mono in April, after about 3 months, I found my life really changed, I lost my energy and have migraine, I did a lot of things to help me getting better, but it seems it is impossible to get back to the health before.

I know this is the punishment of breaking the rules defined by God, and it reduces my life.What can I do? Repent and Accept.

[9DodgeFan]

Hi, all the symptoms you mentioned at the beginning seem to fall in line with an EBV re-activation.  Some of the symptoms you mentioned since then, though, don't... have you ever been diagnosed with any anxiety or panic disorder?  I personally know that anxiety/panic can cause some crazy symptoms, so that's why I'm throwing that out there.  Other than that, have you made any changes in your life to try to get over the EBV part of it?  Mainly what I mean by that is, have you gotten as much rest as possible?  You may even need to put your life on "HOLD" or "PAUSE" until you start feeling better; I know that's not easy, but it makes a big difference in helping your body fight off the re-activation.  You may also want to try eating healthy and take multivitamins; they aren't going to magically cure you, but they certainly won't hurt.  Hope things start improving soon!

[9DodgeFan]

Hi, sorry you're going through some tough mono as well.  Without delving into too much spiritual stuff here, I don't believe that EBV is "punishment of breaking the fules defined by God".  After all, do you ascribe all bad things that happen as punishment from God?  (If so, well, keep reading!)  First, let me say that I'm a Christian, so I absolutely believe in God.  And it may be true that you got EBV as a result of an action that broke one of God's rules (NOT a coincidence).  But God doesn't punish us in that way (yes, He did in the Old Testament, but Jesus changed that when He died for us).  Simply put, the wages of sin is death; that's God's (fair) punishment.  So, I'm really trying not to "preach" here, and I'm certainly not saying I have all the answers (I don't!).  But why do bad things happen to good people?  And vice versa?  Take Job, for example; God allowed lots of bad things to happen to him, which were not as punishment; in the end, Job became a better person by trusting God through the adversity.  I mean, I can see why you would look at it as punishment from God, but I disagree (Please keep in mind we can disagree and still be friends!).