Having excruciating head pains in which blood squirts out of left eye.Had sinus surgery in Dec. in which they removed tumor in tear duct system. Problem recently came back after no head pains nor blood from eye for 3 months after surgery. During these attacks my husband is rolling on ground and screaming in agony. He doesn't realize I am there with him or recognize me for about 10 min. after intense pain is over. He has intense head pressure under left eye and behind left eye. He also has some vision loss in that eye. We have been to alot of Dr.s and still no definite answers. I have gotten to the point in which I know when one of these attacks is going to happen because it affects his behavior. He becomes very agitated. Please help we are desperate for some answers.
I called 911 during one of these episodes because my husband didn't know who or where he was. The ER Dr. did do a pressure test and came back fine. They said he was fine and sent him on his way within half an hour. The pressure is intense prior to extreme head pain but after head pain and bleeding from eye the pressure goes down. Then the pressure builds back up. He also has staph and strep infection in his sinuses that the Dr.s can't seem to get rid of. At this point we have seen 3 ENT's, 3 neurologists, 1 opthamologist, and a family practice Dr. My husband doesn't trust Dr.s anymore. We have had some really bad ones!! Thanks for your response and any other comments or suggestions would be great.
That's the very least that should have been done to rule out complications from surgery or blockage of the ducts. The fact that he has ongoing recurring infections in the sinuses compounds things even more: possibly either precipitating the symptoms or aggravating them.
And the fact that these attacks come and go, and the sypmtoms subside after the bleeding are definitely red flags for further imaging.
Does he feel worse if he strains or bend forwards? Did they give him any medication (e.g. mannitol)?
Even if these docs are going to ignore this, don't give up. Talk to the doc who actually performed the surgery on your husband if you haven't already.
My husband has had imaging done. He has had 2 MRI's of his head and 2 CT scans of his sinuses. He hasn't had any new scans since surgery. His Dr. that performed the sinus surgery is no longer at a place that takes our medical insurance. We are now awaiting authorization for him to be able to see another Dr. The Dr. that did his sinus surgery wants a second opinion from another ENT and also another opthamalogist. He believes it is the tear duct system. I think that all the Dr.s to this point don't really have a good idea of what is wrong nor can they get rid of these infections. I will continue to search for more answers. I am going to try to get an MRI or CT scan of the eye orbit. The opthamalogist that we did see stated that we might need to see a neuro-opthamologist. Thank you for your input. I won't stop searching until we find an answer.
I once had a series of excruciating headaches that left me on the floor in agony for an hour or more each. Not a good look at work. Gobbling paracetamol didn't help much. The pain was centred on my forehead between the eyebrows and above and I think it fdelt like behnd the eys too (from memory). It happend for 9 days in a row every morning between 9 amd 10am. Got to the GP one day but my normal GP wasn't there and the other one suggested I run on some herbal stuff. I wan't impressed. I changed my diet for other reasons and it went away rpetty much instantly. I was try a particular brand of breakfast cereal. I subsequently found I had allergies to wheat, gluten, say and dairy. I was a real mess there for a while. It enver returned.
Obviously there is more to your story with the tumour etc. I guess the blood was coming from the tear duct rather than the eyeball. Possibly from pressure from blowing nose, snnezing etc? Pressure indicated sinuses to me. I've had a fewinfections up there over the years and the pain and lcoations are similar. If it's not an transient infection at the time maybe there;s something structurally wrong that a CT scan will find. Good Luck
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