AZOOR

[Yatahay4u]

I am new to this site so please bare with me.

While reading the posts here I am curious.  I am the moderator of a support group on Yahoo with 17 women diagnosed with AZOOR.  We have all added information on our conditions and symptoms.  Would Dr. John C Hagan III, MD, be willing to review the posts?  I feel that comparing notes would be a step, (even if a small one) in the right direction to understanding the condition.    

Thank you for your time
Yatahay

[John C Hagan III, MD, FACS, FAAO]

I have no experience with a patient that has ever had AZOOR.  

I have no way of telling whether USA "experts" are as well versed in this as other countries.

You will probably need to do a literature search and see which institutions and countries have published the most on it.

JCH MD

[JodieJ]

I'd suggest that you try writing to the authors of the research articles, most of which have contact information.  (I sent emails which praised the article and contained a short summary of my history/symptoms/questions.)  You might be surprised at how many responses you will receive.  I have a different eye condition than you (in my case, it's retinally-induced aniseikonia), and the local specialists I saw told me to live with my symptoms, which included an eye that teared continuously and impending double vision.  I eventually found an effective treatment from a Dutch researcher.  Good luck, and don't give up!

[Anna255]

I was diagnosed with AZOOR this year.  My vision is extremely weird but I do not give up.  The doctors don't know anything about this diease here in America.  I reached out to Harvard research Center for the eyes and the sciencist that I spoke had never heard of it and had to go to the internet.  I am frustrated as I am a healthly woman and never been sick a day in my life.  From what I have research on my own Japan and England are the experts on AZOOR.  I was told what is lost is lost, I continue to see double, I hate that.

Please share your thoughts!!!!!!!!!

[John C Hagan III, MD, FACS, FAAO]

If it doesn't come up on the search feature on this page II know its been discussed) then start your research with going to emedicine and reading the section on  AZOOR

JCH MD

[Maura68]

I have been diagnosed with AZOOR and would like to read the posts on this support group site.  I have been unable to find it.  Could you possibly send me a link?  ***@****   Thank You

[John C Hagan III, MD, FACS, FAAO]

I am so over-committed on time I cannot do any more (I' have large practice, I edit a Medical journal, I'm a father, husband, brother, grandfather). Dr. Kutryb and I have pledged to answer all the Expert Forum questions. I try and answer as many of the patient to patient questions as I can but the more popular the site gets (its one of the fastest growing on MedHelp.Org) the more impossible the time demands get.

JCH III MD