While reading the posts here I am curious. I am the moderator of a support group on Yahoo with 17 women diagnosed with AZOOR. We have all added information on our conditions and symptoms. Would Dr. John C Hagan III, MD, be willing to review the posts? I feel that comparing notes would be a step, (even if a small one) in the right direction to understanding the condition.
I am so over-committed on time I cannot do any more (I' have large practice, I edit a Medical journal, I'm a father, husband, brother, grandfather). Dr. Kutryb and I have pledged to answer all the Expert Forum questions. I try and answer as many of the patient to patient questions as I can but the more popular the site gets (its one of the fastest growing on MedHelp.Org) the more impossible the time demands get.
I was diagnosed with AZOOR this year. My vision is extremely weird but I do not give up. The doctors don't know anything about this diease here in America. I reached out to Harvard research Center for the eyes and the sciencist that I spoke had never heard of it and had to go to the internet. I am frustrated as I am a healthly woman and never been sick a day in my life. From what I have research on my own Japan and England are the experts on AZOOR. I was told what is lost is lost, I continue to see double, I hate that.
I'd suggest that you try writing to the authors of the research articles, most of which have contact information. (I sent emails which praised the article and contained a short summary of my history/symptoms/questions.) You might be surprised at how many responses you will receive. I have a different eye condition than you (in my case, it's retinally-induced aniseikonia), and the local specialists I saw told me to live with my symptoms, which included an eye that teared continuously and impending double vision. I eventually found an effective treatment from a Dutch researcher. Good luck, and don't give up!
This site complies with the HONcode standard for trustworthy health information.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.