Acute idiopathic maculopathy or something else??

[Meggie124]

Has anyone else been diagnosed with or heard of this?  I heard it's very uncommon and occurs mostly in young, healthy females.  I am a 33 year old female in good health.  After several dr's,  I have been diagnosed what they think is acute idiopathic maculopathy.  It started unilateral in my left eye and is now bilateral affecting my right eye.  For the past 3 months, I see flickering spots of light in both eyes when my eyes adjust to a change in light (i.e. going from a dark room to outside natural light).  This flickering stops after a couple seconds.  I also see waving lines in my left eye, gray-like blind spots in both and flashing specks of light in both.  My eye vision has continued to test at 20/20 for both eyes.  They do not know what has caused this, but pictures of my retinas/angiogram are showing that it is improving very slowly. They say that I possibly have a little swelling of both optic nerves- but that it is so slight that they would not even classfiy it as actual swelling.  To complicate matters, shortly after we discovered a problem with my eyes, I started having symptoms that my dr has attributed to anixiety (headaches, ringing in ears, nasuea, tension in my neck and shoulders, unbalanced/lighheaded feeling.  After a complete blood panel and MRI we have ruled out alot, including lupus, rheumatiod arthitis and viral causes such as cat scratch fever.  They say anixiety is to blame for these.
I have done alot of research on the wed about my eye problems and the other physical symptoms I have been having... has anyone else on this site been diagnosed with this eye disorder  or experienced similar problems.   Also a question to the doctor:   I have read a little about pseudotumor cerebri, could this be what's causing my retinal issues and explain some of my other symptoms?  Thank you for responses.

[Jjli]

I have been diagnosed with acute idiopathic maculopathy with my right eye foe 4 weeks now. It started on morning when I woke up. The eye sight was mildly affected then but went downhill very quickly. I lost central vision completely in 3 days. Now 4 weeks on, minimal improvement. How long do I expect it to recover?

[Lojoe]

I was just diagnosed with what the doctors think is Acute Idiopathic Maculopathy.  I am a healthy 32 year old woman.  I can relate to your symptoms and I am curious if your vision went back to normal.

[John C Hagan III, MD, FACS, FAAO]

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[kjelltp]

It's great how they come up with fancy lingo for "we got no clue", then proceed to blame it on "anxiety".   I've gone thru the much of the same (for years)..it's not easy, when you aren't getting better, only worse.

[John C Hagan III, MD, FACS, FAAO]

Acute idiopathic maculopathy is not precise diagnosis. It merely says the onset was suddent (acute), the cause is unknown (idiopathic) and that it damages the macula (maculopathy).

I would get a second opinion from a Eye MD retina/macula specialist.

No pseudotumor would not cause your problem

JC MD