Alice and Wonderland Syndrome

Posted By Susan on June 14, 1999 at 10:11:34
My seven yr old son, Evan, has been experiencing visuals episodes since Jan 99 that cause everything in his field of vision to shrink.  The episodes last anywhere from 1 to 20 minutes.  He has no headaches or other pain.  The frequency increased to daily and multiple times a day.  The course of doctor visits ended with a neurologist who called it "Alice and Wonderland Syndrome" or retinal migranes (migraines) and we were told to monitor it and come back when he started getting headaches.  They would put him on preventive drugs at that point.  I took him to a chiropractor and we saw immediate changes in the pattern and our longest span without an episode went 19 days.  In the last 2 weeks, we have seen the episodes on the rise again.  I'm having a hard time taking comfort in the diagnosis and that I need to wait for him to get migraine headaches.  Do you know of other information on this.  Is there a posibility that something else is going on and we need to continue to look for the cause of these episodes.  The only test that was done was an EEG to rule out seizures.

Thanks,
Susan










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Re: Alice and Wonderland Syndrome S. Leyba 8/14/1999
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Re: Alice and Wonderland Syndrome Rik Hemsley 8/02/1999
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Re: Alice and Wonderland Syndrome hfhs md - NI 6/14/1999
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Alice and Wonderland Syndrome Susan 6/14/1999
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Re: Alice and Wonderland Syndrome HFHS MD - NI 6/14/1999
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Alice and Wonderland Syndrome Paul 8/11/1999
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