Congential Cataracts

I have a daughter who was born with congential cataracts in both of her eyes, now at the age of 24 she has lost vision in her right eye and is experiencing numbness on that side of her face and some headaches.  In the center of that eye she cannot see anything but on the outer rim she can see some light but its cloudy. I am afraid for her and I am afraid what ever is wrong will effect the other eye. She just had a baby girl 6mos ago and she has a 2 1/2 yr old son. I want her to see her beautiful children and watch them grow up. What should she do?  What can I do to help her?  The most fightening thing is both of the children has congential cataracts in both of their eyes. What are her chances?
Sign a concern parent

[John C Hagan III, MD, FACS, FAAO]

It is not possible to present a list of possible problems your daughter may have from your information. She needs to be under the care of a Eye MD ophthalmologist. Congenital cataracts usually remain stable but a second type of growing cataract can develop in the eye.

Your GC should see a pediatric ophthalmologist.

In the USA find one at www.aao.org

JCH IIIMD

[Sunshine6969]

Thank you for your answer. My GC do see a pediatric ophthal as my daughter did when she was an a young child or adolescent. I would take every year. When she became an adult she would go to any more appt.

What type of growing cataract could be developig in the eye? She states there is some pressure. Is there a possibility of her having galactosemia?

She will be seeing a specialist today, Thank so much for your response

[John C Hagan III, MD, FACS, FAAO]

Galactosemia is an unlikely cause. We all grow old so that people with congential cataracts often develop aging cataracts (nuclear, cortical) as they get older.

JCH III MD

[Sunshine6969]

Thank you so much for your answers.  So, with this aging process of the cataracts.  Will she ever regain vision in that eye?  Will she become permanantly blind?

[John C Hagan III, MD, FACS, FAAO]

Only an examining Eye MD ophthalmologist-physician can tell.

JCH III MD