Duanes Syndrome Plus and Arnold Chiari Malformation

Posted By Billy/Alicia on July 22, 1999 at 10:19:11
Our son,Corey, was diagnosed with Duanes Syndrome Plus shortly after he turned 5-months old. Other than normal poor vision problems ther is really no hereditary problems in either of our families. Corey has always had difficulty turning quickly, maintainig balance, and walking into corners of doorways and walls. After a visit to the E.R., we were finally able to get an M.R.I. scheduled and completed. Let us add that we have previously asked his neuro-opthmologist if it would be possible to get a M.R.I. done and we were told that it wasn't needed. Sept.9th of this year, Corey will be 2,and he has just been diagnosed with Arnold Chiari Malformation Type 1. We have heard from his various Dr.s that all in all we have but one option,,SURGERY. Is this true?? How dangerous is this type of procedure? We are having difficulty finding anyone Dr. that has done very many of these. Who can we contact concerning who would be the best surgeon for us? Life right now is quite difficult for us. At least now we can go back to the various pediatric developmentalist and show them that our son isn't just CLUMSY!
  Thank YOU.










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