I am a 43 year old female.....A year and a half ago, out of nowhere, when I woke up both of my eyes were drooped for 3 weeks. Once my eyes returned to normal (appearance wise), I noticed that my eyes weren't the same any longer. 1 1/2 years later I am still dealing with problems.
I do have MS, dx in 2001, and Crohns dx in 1992, but my Neuro said it wasn't the MS causing it. He sent me to several specialists about my eyes, and I was tested for Myasthenia Gravis and after several doctors/specialist, MG was pretty much ruled out. My eyes never drooped again, praise God, but my eyes have never been the same since.
I feel pressure/heaviness behind my eyelids everyday which gets heavier as the day goes by. Although it doesn't appear, I feel like my eyelids are just a lil slightly lower than it use to before they drooped 1yr1/2 ago. When I close my eyes and feel my eyelids it feels normal, the heaviness is coming moreso from top/behind the eye sort of speak, if that makes sense. It's unreachable/untouchable. It's like the muscles in my eyes are weak, I have to stay mindful of actually bucking my eyes just enough to have more of a normal view, but not look crazy.Also, when I turn my head to look at something/someone, it actually takes about 1,2 seconds for me to actually focus in on what I'm looking at.
This has been very frustrating for me, especially on top of everything else I have to endure. If you know of anything this could be or have heard of someone experiencing the same, please let me know.
Thank you in advance
I would ask your ophthalmologist about getting a CT scan of your eyes to make sure all is normal anatomically and then consider seeing a oculoplastic specialist to see if you may have seronegative myasthenia (unlikely). MS could theoretically do anything so can't really rule that out as a partial culprit either.
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