Posted by D. on June 21, 1999 at 21:29:27
I posted a while back about my conditions which were retinitis pigmentosa and cystoid macula edema. The
swellingAbdomen - swollen
Ankle sprain swelling
Breast - premenstrual tenderness and swelling
Foot swelling
Foot, leg, and ankle swelling
Gums - swollen
Joint swelling
Mastoiditis - redness and swelling behind ear
Scrotal swelling
Swelling from the cystoid macula edema is nearly gone, provided that I stay on
DiamoxDiamox
Diamox sequels. I am concerns and it is really bothering me that I have to deal with the onslaught of
brightBright beginnings penetrating lights from cars (headlights that is) as well as the glare. It is to the point that I automatically react (like to a bad experience.) Can something be done medically to help with this? Please respond with something positive as it is bad enough to hear that there is no hope for retinitis pigmentosa itself. Any positive feedback will greatly be appreciated. Thanks.
Posted by HFHS MD - NI on June 21, 1999 at 22:14:01
I am glad that the
DiamoxDiamox
Diamox sequels is helping your macular edema. Regarding the glare from lights, I am not aware on any medicines which may help. People with RP develop cataracts and if a cataract is present, it can be causing the glare. This could be helped with surgery. You would need to discuss the RP situation with your surgeon as cataract surgery may have a negative effect on the macular edema (possibly).
This information is provided for educational purposes only.