Hello everyone, I'm needing some shared experiences PLEASE.
Last week I was diagnosed with rather severe Macular Pucker in one eye. I noticed a decline in vision for several months prior, but thought I had an infection from eye makeup. Saw a retina specialist yesterday , seeing a second opinion Friday but I am expecting the same news.
The pucker is pulling on the retina and nerves a bit and has made my vision in that one eye 20/200 and no corrective lenses will help at this point. I can still see light, shapes etc. but just cannot make out letters. I can live with it like this, but the specialist says the tugging my cause more severe damage so I have nothing to loose by doing the surgery right away for the best chance of any improvment.
That is where I'm having the problem ,,,I am 56 and still lead an active life on the lake with waterskiing etc. I have never needed surgery or prescriptions and take care of myself with exercise and diet.
I do not want to enter into a lifestyle of surgeries, infections, potential real dangers with retinal detachment or reoccurance of the pucker...etc etc. Yes, I know every surgery has risks and I should just suck it up, but the fear of making the wrong decision is stressing me greatly. The Dr. cannot tell if the pucker stabilized or will cause more damage...so do I just leave "well enough alone here"??
Does anyone out there have a similar experience with Macular Pucker surgery ? I would appreciate any and all comments !
You need to have surgery. I have had macular pucker surgery (in addition to other surgery starting with a retinal detachment) for a vision of 20/200 My vision has recovered to about 20/20 with some distortion.
20/200 is legally blind. Get this eye fixed. I have seen patient who have not a surgery in one eye for a correctable problem and years later they develop a problem in the one remaining eye that can not be fixed. At the time is was too late to fix the problem in the first eye.
At this point you have already lost your depth perception (not great for waterskiing), and things will not improve without surgery. Definitely get surgery--performed by a retinal specialist who is experienced with this procedure. And keep in mind that the best visual outcomes are associated with early surgery. I predict that your surgical experience and recovery will be SO much easier than you are anticipating.
I so appreciate your comments as I am having an extremely hard time with this. I'm wondering also if Macular Pucker ever gets mis-diagnosed and maybe I just have Macular edema which will go away on its own?
Hopeful thinking or are there easily mistaken other diagnosis's that even the retina specialists can get wrong.
I only had the OCT test and seem to be jumping into surgery fast, but the 20/200 within less than a year concerns me. Would they know from the OCT and exam if it was some type of cancer instead of Macular Pucker ?
Did your Dr. use a steroid injection during, but at the end of the surgery ? My Dr. says it's optional because it can cause cataracts I much faster than normal, I believe. What is the advantage / disadvantage of this steroid into the eye during surgery? I don't like drugs in general because of side effects, but if something is absolutely in my best interest I don't want to be foolish about it either.
I believe that a macular pucker can be diagnosed by a retinal exam alone. I think it is extremely unlikely that you were misdiagnosed. I did not have a steroid injection before or during surgery.
I've had surgery to peel a macular pucker twice. This is not painful surgery. I was awake both times and felt no pain at all. I spent the afternoon following my first surgery at the local multiplex. My second surgery was done out-of-town, and I was having dinner at a nice restaurant less than 2 hours after leaving the OR. I flew home the following day. You could probably return to work the day after surgery if you really wanted to, although your eye might be slightly red and swollen.
You have so much to gain from this surgery. Please don't postpone it.
Hello again, Just got a second opinion on my Macular Pucker. Apparently there is quite a lot of scar tissue built up over my macula and it's causing traction on the nerves, but MAY or may not have stabilized at 20/200.
Looks like surgery to remove the scar tissue should be done asap.
This second surgeon suggested doing the cataract lens replacement surgery on that eye the same time as the macular pucker surgery. (even though I only have a slight beginning of cataract)
#1) Is that too much trauma for the eye all at once ?
#2) He said, (and we've read) that cataracts are almost a guarantee rather soon after this surgery, so if you just do it at the same time you reduce the risk of a second surgery soon afterwards. That part makes sense, but I was "frozen" in the office and didn't think to ask about all of the downsides to doing the lens replacement at the same time.
Maybe he thinks I won't have that great of an outcome anyways with my macular pucker being so extreme so what would I have to lose ?
Does anyone have any experience or research on that ?????? Surgery is scheduled with this Dr. next Thursday, so I don't have long to research this, please help. thank you in advance !!!
Congratulations on your decision to proceed with the pucker surgery! The practice of doing cataract surgery at the same time is somewhat controversial. On the "pro" side, you will not have to anticipate having a second eye surgery sometime during the next year or two. On the "con" side, some surgeons (including Dr. Charles of Memphis who did my second ERM surgery) claim that the final visual outcome is better when the two surgeries are done at different times.
I suspect that there is not much difference in visual outcomes, although I have a personal bias about this issue. I was ultimately very glad that I didn't have cataract surgery on the same date. I was really thrilled with the outcome of my cataract surgery. I attribute my excellent results to my choice of an experienced cataract surgeon, who used multiple formulas to determine the appropriate IOL power for me. (I had been a high myope with astigmatism, so my health insurance covered the cost of getting my second eye done.) The time delay between retinal and cataract surgery allowed me to research the issues involved in choosing an IOL and the options available for my new vision.
If you want more input about your question, try posting it as a separate thread on both eye care forums.
Please keep us posted on your surgery outcome. I was diagonsed with exactly the same thing just this week. I too thought the problem was caused by getting makeup in my eye but found it is a severe macular pucker in my right eye. My vision is now very blurry and distored. The doctor asked me to wait six weeks because sometimes the membrane will disappear on its own. He did say the surgery will restore the vision but it will take 4to 6 months before it returns to normal. He went on to say that developing a catarac is guaranteed. If this isn't better in six weeks,I'm going to opt for the surgery.
Jodie, I'm very curious about your macular pucker surgeries and the after surgery healing process. I too have just been diagnosed with a macular pucker in both eyes and the retina specialist says that after surgery I would need to keep my head face down for 12 days....and even then he could not guarantee it would fix my problem. My regular eye Dr. is now preparing me for gas permeable contact lenses in both eyes to correct the problem. How long ago did you have surgery and how are you still doing?
Macular pucker surgery does not involve face down posturing. I'd strongly suggest that you get a second opinion about surgery from a different retinal specialist. The distortion caused by a macular pucker cannot be corrected by gas permeable contacts.
As far as my own situation, I have 20/20 vision in my affected eye, with some very mild distortion. I'm not aware of this distortion when using both eyes together. The image size in my affected eye is larger in the foveal area than the image size in my other eye.
I was also diagnosed with macular pucker recently in my left eye.I can see how distorted my vision has become lately in that one eye. The right eye also has something such as a retinal hole although they consider that minor and haven't recommended anything for that eye. If I considered surgery for the left eye, it wouldn't be for the vision, rather, I have a really bad pain behind my left eye. I have been to 2 retina specialists, and 3 Ophthalmologists, no one can tell me where my headache and pain is coming from. After I get up in the morning, after a while, the pain starts and it feels really weird, as if the left eye is getting plunged into my face or something. At first I thought the pain was in the middle behind my eyes, but it is actually coming from the left eye. did any of you have pain/discomfort with your pucker? I also have a foveal cyst in that left eye. I am not sure what to do. If 5 doctors don't know what is wrong with me, I am so scared and worried. This discomfort and pain is really very very bad, I cannot live with this anymore. Please someone help me. where is this pain coming from? I had a brain MRI pm 4/11/12, there was no tumor or anything at that time. A tumor could not develop so quickly after the MRI, could it? Someone please help me. Tomorrow, I am going back to the Opth. I have had so many dialations and so many lights in my eye since this all began on 7/18/12. My first visit with the doc was in Nov. 2011, when I had used strivectin cream on my face and my eyes had swelled. And I had gone to him just to make sure everything was okay, which he said was okay, but apparently he had noticed the pucker, didn't say anything at that time, wanted to see me back in 6 months. he kept this to himself. In 6 month visit, he sent me to a specialist who diagnosed me with the pucker and wanted to do surgery. I was and am in shock. Even then I had no pain. but during these checkups the pain has developed. Could it be the drops they have been putting into my eyes or the many many lights that each one has used on me?
I share your "shock" with the surprise diagnosis of Macular Pucker. I am only 57, never had any health issues, always 20/20 vision until mid 40's where I needed reading glasses. Last year out of no where on my annual eye exam the Opth. said I had a Macular Pucker and should go see a Retina Sp.
I went to 4 Retina Specialists and had become 20/200 in that eye BUT NO PAIN. All 4 said I needed Vitrectomy/Membrane peel to stand a chance of any reasonable vision again. I never had surgery in my life, gave this careful thought and research and had the surgery May 2011. They hope to gain about 1/2 of your vision back post surgery=20/100. I went to 20/60 first week post surgery but developed a cataract the first 3 months so declined again fast.
I had cataract surgery March 2012 and am now 20/40 in that eye, but with some retina damage to the macular area=a blank spot which will be permanent. Still MUCH better than before surgeries and glad I had them.
Back to your question, Did I feel any Pain in my eye before or after surgery ? Not really...but I do feel that the stress of all of this and also all the eye drops (although necessary for the Retina spec. to diagnose) contributes to heightened awareness of the affected area.
Please keep in mind that I am not a Doctor, just someone who has gone thru the surgery and researched it extensively.
I also learned thru this process that the Doctors are sometimes reluctant to give a diagnosis or admit that their drops or lights might cause a problem, and honestly they probably don't really know because they never take the time to connect the dots when patients complain.
Are you reviewing your OCT tests with these Doctors ?
Luvtoski, thanks so much for your reply to my post. I really appreciate it. I have just come back from the Opth. and all he said was that at my last visit he had found that I had dry eyes but today he said, there was hardly any dry eyes. He told me to use a gel at night, and gave me Refresh which he said is the best. He said my vision with my new progressive lens is 20/20, although before the glasses, it was around 20/50. He said to me that dry eyes does give a headache. He said he can usually tell if the pain is due to a tumor but in my case it is not, he said. At the last visit, he asked me whether I used a CPAP machine for sleep disorder. I said yes. He said to continue using it, as him being a glaucoma specialist, he said he said definitely noticed that when patients don't use their CPAP machine, they develop glaucoma. I am so thankful to have found this young 36 yr. old bright doctor. I wasn't using the CPAP due to inconvenience but now I will every night, as glaucoma would be a death sentence for me. He told me to wear my progressive lens and try to get used to it. And also to use the gel so that my eyes don't dry out. He will use a punctal plug next time, if things don't improve. I hope he is right about my diagnosis. He used the numbing drops to check the eye pressure, which numbs out the eyes. Right now I have lots of pain and discomfort due to the drops he used. It wasn't dialated though. I will try to lubricate every 4 hours from now on, which I wasn't doing exactly. He also wants me to take 5 minutes away from computer screen and seriously blink so as to lubricate my eyes. He said I should not be considering surgery as I have good vision with the glasses, and he said macular pucker sometimes resolves on its own. The one thing which is scaring, freaking me out is that he says, that I maybe a glaucoma "suspect". In Feb. next year, he plans to check with a machine ($45,000 new top of the art, new technology) machine he has in his new office. I will get it checked next year for glocauma. I will take another look at my OCT test, I have given my entire chart to the new Opth. and each one of them have all my chart and notes, and the OCT. Is there anything that I can understand on the OCT? I am so sorry that you developed a cataract after having 20/60 vision, but am so very happy to hear that you now have 20/40 vision. That should be almost normal. Having that blank spot must be irritating, but we all have to live with something, unfortunately. I have distortions from the pucker, and the retina sp. will see me again and test my vision in Nov. 2012. We will see then whether my vision is improving or going worse. Thanks so much again and wishing you much luck with your situation.
Thanks for your reply and all the details from your Opth...I truly believe it is extremely helpful for all that read these forums to hear specific Dr. opinions and advice.
Two things I could add for dry eye...especially in the winter months when the heat is turned on in our homes, run a humidifier in the room you spend a lot of time in and in your bedroom at night. Humidity really helps with dry eye. Also, I take flaxoil daily...a tablespoon morning and night. I use a good quality flaxoil by Barleans . You can find it on line or in the heath dept. at Fred Meyer and many other places. It needs to be refrigerated, but it is great quality flaxoil which is not only good for dry eye but skin, etc. Fish oil also good.
In regards to the OCT test, I like to actually SEE what the Docs are talking about. They should be able to show you the Macular Pucker, and if your Retina is swollen or distorted. That way you can compare from visit to visit to see if anything is improving or declining. Some people don't wish to be as involved with the details of their diagnosis, but I am one of those that want all the information and details.
Again, good luck to you and please keep us posted !!!!
Thank you for this post. I was just recently diagnosed with Macular Pucker. At first I was given drops but they are not doing anything and I go back to the eye doctor tomorrow and he will refer me to the surgeon. I was reading up on Macular Pucker surgery and a couple of sites talked about face down recovery. That was frightening. I am so happy to have come across your post that it did NOT require face down recovery. You have put my mind at ease.
Thank you for this post. I was just recently diagnosed with Macular Pucker. At first I was given drops but they are not doing anything and I go back to the eye doctor tomorrow and he will refer me to the surgeon. I was reading up on Macular Pucker surgery and a couple of sites talked about face down recovery. That was frightening. I am so happy to have come across your post that it did NOT require face down recovery. You have put my mind at ease.
I was diagnosed with macular pucker yesterday by retina specialist (previously diagnosed by optometrist and general opthamologist. my vision in the R eye is 20/400. after extensive research, I have decided to have this surgery and would appreciate hearing from those who have already had the surgery.
It's been about 2 years since my ERM/Vitrectomy surgery. I was 20/200 prior to surgery and ended up about 20/40 ish after ERM surgery with following cataract surgery of which the ERM membrane peel surgery caused.
However, the 20/40 isn't a perfect 20/40. I am left with a blank spot near the center of that eye. Most likely from the scar tissue tugging at the retina, the mechanical peeling of the membrane, the residual swelling (seen on OCT tests) that looks like is permanent, and the reorganization of my photoreceptors in the macula (central vision) area.
All in all I felt the surgery was needed and I had nothing to lose with everything to gain. The severe scar tissue I had does NOT go away on its own, so I either lived with it or "went for it". I got 4 Retina Specialist opinions before I decided whom I trusted to do the surgery. The surgery itself is a breeze from a "pain" or discomfort perspective...but you basically get one shot at it and will live with the results forever, so choose a surgeon you trust.
I had the surgery two years ago. Dr. Steve Charles in Memphis was the surgeon. My vision prior to the surgery in my right eye was about 20/70. I was advised a cataract would form within 6 months after the surgery. It did and I had it removed by my local doctor. I now have 20/20 vision in the operated eye. I don't even wear glasses and I'm 69 years old.
I now have a lesser macular pucker in my left eye. I am going to have it removed August 12. I'm hoping for the same results as I had with the right eye. I am having Dr. Charles do the surgery again this time too. I will post again after the surgery.
I was diagnosed with a macular pucker in my L eye a few months ago. I have a completely blind/grey spot in the center of my vision. They wanted to do surgery right away, but I wanted to research and discuss this with my family.
Since there were many risks and no guarantees, I was reluctant to opt for surgery, but I now see (especially after reading this forum) that my vision is not going to ever get better without the surgery, so it's either live with the impaired vision or go for it. I have decided to go for it.
I thank all of the posters on this forum, especially those who come back to tell their stories after surgery, for the knowledge and insight I've gained here. I will keep you posted as I progress in this procedure
You sound a lot like me...I went for it too because there were no other options. About all you have control of at this point is to do your research on the surgeons you are considering for the Macular Pucker-membrane removal/Vitrectomy surgery. I went to 4 Retina Specialists before I decided who I wanted to perform my surgery. I asked a lot of questions and did a great deal of reading these forums, etc. ahead.
I won't repeat my long story, but 2 years post retina surgery I can see well enough to live out my life happily ...that is as long as my remaining "good eye" stays good.
I went from 20/20 in both eyes to 20/200 in my Macular Pucker in within a few months...never figured out why the scar tissue formed.
Post surgery I quickly formed a cataract and then had that removed...I am now around 20/40 ish on the eye chart...but just like you I have that darn blank/grey spot near the center of my vision. I believe that my retina and it's photoreceptors were just too damaged either from the scar tissue pulling on it or from something during surgery. If you watched some surgery videos on YouTube (and you should) you will see how delicate of a surgery this membrane peel is.
Keep us posted ! Best of luck to you.
I have found a doctor that I trust - he's about 1.5 hours away, and there is a satellite office in my town for the follow-ups. I'm still a little nervous about the surgery. Yes, I did watch the you tube video of the surgery and appreciate how delicate this surgery is.
The thing is that I may be having the same thing occurring in my R eye. While doing my research, I found an Amsler grid online that you can check for distortions. I already knew what to expect from my L eye, but when I checked my "good" eye, I have a small amount of distortion at the lower right part of the grid. I have not had this eye examined for a macular pucker yet - which I most certainly will do now.
So I'm really hoping to regain some significant sight in my L eye, just in case.
My retina detached 2 1/2 years ago - not surprising - I was high risk myopic (-10 contacts) that had been corrected by lasik 15 years ago. 15 years of a medical miracle for me.
Usual treatment - buckle, vitrectomy, cataract surgery, steroid drops, then steroid shot. Always knew there was something else going on - the distortion of everything I barely see in left eye. Diagnosed before the drops and shot as macular pucker.
Have had same retinal specialist the entire time. One of the most respected in Atlanta. He has always been very conservative - wanting retina to get more well attached and eye to try and heal itself before suggesting any surgery.
Feel like I am running out of options and the blurred vision in the one eye us debilitating. Feel like I am running out of options. He has suggested surgery in August.
Wondering if I should seek second or third opinion before I do this or not.
Thankful for this board and advice other have shared here.
Hello. I am from Romania. My name is Sami. I am 20 years old and I suffered from a hemorrhage between the macula and the membrane of the vitreous of my left eye. Blood was trapped there for almost 2 weeks (the time it took for the blurry spot not to be red anymore). During this time, the doctor prescribed me Vitamin C (1g / day), other pills called "Tarosin" (a combination of Vitamin C and flavonoids for stronger blood vessels) and fluorometholone eye drops to prevent inflammation of the eye.
After those two weeks, big distortions appeared in the same left eye and I had a blank spot in the center of my vision ( I couldn't read anything with my left eye for example).
Then, after two more weeks, meaning 4 weeks after the incident happened, the distortions were diminishing and the blank spot in the middle was getting smaller and I started to be able to read again with my left eye.
In the same 4th week, I went to my ophthalmologist and she told me that the blood had been absorbed from over the macula. She told me to take 2 drops of bromfenac per day and 3 drops of fluormetholone.
Now I am in my 9th week after the bleeding and I will soon go for a check at my ophthalmologist. I no longer have any blank spot in my vision. If I force myself to focus on something detailed such as a little letter on the screen of my pc, I can find a bit of distortion; else, I see no distortions anymore. The only thing that annoys me are some floaters that recently appeared.
My central vision is sort of blurry and I suspect a macular pucker has formed. I hope my doctor will says I don't need a surgery for it and that it will not damage the macula (again, I repeat, distortions gone away like 90%). I hope that in the future, an alternative to vitrectomy and the peeling of the membrane will exist because I want i don't want the formation of a cataract at such an early age. I found something about a medicine called "Jetrea" which cures macular holes and vitreomacular traction without causing cataract (I don't know if this traction thing is a synonym with pucker, but if it is, that is some great news).
The cause of the bleeding over the macula may be many.
I am 1.75m tall. 9 weeks ago I was 117kg. I had times when my blood pressure was 15/11 when sitting on the couch watching TV; imagine how much it would be when I did physical effort. When I was angry, I used to punch my head repeatedly and strongly to relax myself.
Now, after 9 weeks, I went down to 103kg in weight and started running in the park. I changed my lifestyle and my mood (sort of calmer and a bit sad). I repent for being stupid all these years and not losing weight earlier, I repent for not checking my blood pressure earlier. I repent for punching my head.
I searched the internet for similar stories as mine but didn't find anything; I guess not many young people suffer from what I did.
After I go to have a check with my ophthalmologist, I will write here again.
i was diagnosed in jan 2012 with macular degeneration and received "shots".very 5 to 6 weeks..went for another opinion in march 2013 and was told it is macular pucker . my vision os good except the grid is a teeny bit irregular .should i go for another opinion?
I also have been diagnosed with a macular pucker in my right eye. I have been to my retina specialist 3 times and he is now recommending surgery as it has gotten somewhat worse. However he is also recommending having the cataract surgery first and then doing the vitrectomy at a later date. Has anyone ever heard of this?
I am the original poster on this. I don't remember seeing a sensitivity to light with my macular pucker, but my vision went from 20/20 to 20/200 with the pucker within a couple of months.
With the serious potential complications of the membrane peel/vitrectomy surgery to remove the pucker/membrane , I chose to see 4 retina specialists to discuss every aspect of my case in detail before I made the decision to move forward with the surgery. My insurance (Regence) paid for all of the opinions and I learned something new with each surgeon, so I felt much more at peace when I finally decided surgery was my only option.
I also read just about every post on this forum, especially those of Jodie...and did as much online research as possible. I am one of those personalities that needs to know the details, but not everyone is like that.
I also recommend reviewing your OCT test results in detail with your Retina Specialist and ask for copies of the results to peruse at home. Find the best Retina surgeon that you can because this surgery is one of the most delicate surgeries on the human body.
Let me know if there are anymore specific questions anyone has and I will try to answer. My surgery was approx. 2 years ago, and Cataract surgery about 10 months AFTER the Retina surgery. Some docs recommend Cat surgery before membrane peel, some during membrane peel, but I believe most recommend after membrane peel after your eye has "settled back down">
Thank you so much. I very much agree. I had a detached retina over 10 years ago. Also have had SLT and cataract surgery. I did the same thing prior to the retinal surgery. I found a specialist who was on the best docs in America list, but also sought another opinion at Wills Eye. Still was scary. My situation now is I have a pucker in right eye but also have a small secondary cataract so no way to tell which may be giving me some problems (or if it is both) - or so the cataract doc at Wills told me. I often have problems in the Aug to Oct time frame so always wonder if it is allergies or something else contributing to the problem. Thanks again. I'll try to remember to update after I see the retinal specialist in a couple weeks
The answer to your question is a definite YES, I can hardly drive at night with the oncoming headlights almost blinding me. And in the daylight, when I look at people (especially) they look like silhouettes, cannot make out their facial features.
I' m looking for advise.I was diag with macular pucker, the dr. I saw told me there is an experimental drug that's being used as an injection. I can do that and see what happens or have the surgery, I had open heart surg last summer so the thought of surg 6, not appealing. I've had cataract surg on both eyes .Question? what to do? ruth
Oh my, I wish that something "amazing" popped into my head to give you an answer that might help. Here are some thoughts:
I am not familiar with any experimental drugs in the U.S.A., but certainly ask more questions on it and read read read. Ask about side effects, studies on success rates, etc. Ask if the drug didn't work if you could still do the membrane peel as a back-up plan.
Also, if you've followed my posts I went to 4 Retina specialists for opintions and OCT tests before I made my decision to have the membrane peel. I was at 20/200= legally blind with no eyeglass able to correct the vision. My membrane was thick and pulling on my Retina...I reviewed the photos with the Retina specialist and saw the membrane tugging on the top layer of my retina.
How bad is your vision without the ability to improve with glasses or contacts? Is the membrane located directly over your central vision? (the macula) Mine was, and that is the worse place to develop the membrane as it messes up your central vision. Even after the surgery to remove mine, I still have a central blank spot, however my vision is much better than before the surgery and I definitely don't regret having the surgery as I had nothing much to lose with the 20/200 vision.
If you are only at say 20/40, I would hold off.
Read and get opinions until you feel comfortable with your decision. Best of luck and let me know if you have any other questions,
I had macular pucker surgery 112 months ago. My vision was not bad, but I had distortion. The doctor was reluctant, but since I read so much I decided to do it. I had been very myopic and had had Lasix about 12 years before this. I now think I am worse than before. I have the gray patches in my field of vision, I now have the distortion again, and my vision is 20/200 (correctable to 20/40 or 50, I think) with a cataract that they don't want to remove until it is absolutely necessary. So, that eye is a mess, and annoyingly different from my other eye. I don't know if I would have the surgery if I had to do it again. I think I am worse off now. Also, my healing was awful and slow, so I still am not sure about the particular surgeon who did it.
Sorry to hear about your less than ideal experience. One never knows if they should have had the surgery or not. My vision was not correctable from 20/200 so had nothing really to lose.
I go in next week for a checkup (dilated exam, OCT update) after letting it go for 1 1/2 years. Somethings I think to "leave well enough alone" and don't even want a Doctor or technician messing with my valuable eyesight. Even the dilation drops are drugs and must have some effect on the eye.
I have found a "balance" with learning to deal with the cards that are dealt me...but it took a while to get used to the idea that I had to put the future of my vision in the control of a Retina Specialist that I never even met before and only spent 20 minutes with in an office.
I wish you the best and a good outcome. I too waited until my cataract in the surgery eye was so bad that I couldn't wait any longer . Then, I went to 6 cataract specialists and found one that was more experienced in performing cataract surgery on eyes that had previous retina surgery. It is more of a challenge on our eyes and riskier. Ask lots of questions and go to as many specialists for opinions as your insurance will cover.
I was diagnosed with macula pucker 4 months ago. I have lost some vision in right eye. Left eye is good. So I will need the surgery and in our area we have a Retina clinic. Only one Dr. does the surgery.I am still wishy washy over who I should go to for the surgery. Also recommended a clinic by Seattle washington...but hate to travel that far..I know 3 people that this Local Dr had did surgery on them for Detached Retina and have been successful. But still nervous. Actually I have not seen this dr yet but another that works with him. The surgeon is very busy. Ive read all these posts..thanks so much have learned alot. Most people with detached retina have had to hang their heads over..so that scared me..but after reading this forum looks like I wont have to do that..
Do you mind me asking what Retina Sp. near Seattle you are referring to? I had my Retina surgery in Seattle and went to 4 of the top Seattle (according to my research anyways) retina specialists.
#1) Dr. Kenneth Fung: He trained under Dr. Charles in Memphis, where Jodie was happy with her surgery. I had Dr. Fung do my "membrane peel/vitrectomy surgery" about 3 years ago.
#2) Dr. Nash
#3) Dr. Francis
#4) Dr. Yeh in Tacoma, WA
I'd like to chime in with an opinion. If you are contemplating ERM vitrectomy surgery, please have it done sooner than later.
On some bad advice from one ophthalmologist, I delayed my surgery for 4 years before I finally had the courage to go through with it. The double and triple distorted vision getting worse was what finally drove me to having it done. It was almost impossible to read or drive with both eyes open.
Long story short - by then the retinal surface had become badly distorted by the membrane's contraction and traction. In addition, it had become firmly attached to the retina. The surgeon had a difficult time removing it, and I ended up losing a lot of central vision in that eye from damage to the photoreceptors and RGC layer. In addition, the distortion is still mostly there as well, although the image I see has shifted more back towards the center, instead of being offset by a large degree, as it was prior to the surgery.. In fairness to the surgeon, he had been urging me to have the surgery for several years before it got to this point, and warned me the outcome would not be as good as it would have been had the surgery been done in the early stage of the ERM.
It's been 2 years since the surgery, and I still see monthly changes in that eye. Some of the lost vision has come back very slowly, but I still can only see a couple of letters at a time when trying to read with that eye.
I'm delighted this forum exists. I'm having macular pucker surgery in a couple of weeks. I understand it takes some time to determine the success of the surgery. My problem is that I am a university professor and have to read and write all the time. The double vision is so disabling. I bought an eye patch to wear at home. Does anyone have other suggestions for mitigating double vision.
I was just diagnosed with macular pucker this week. Out of the blue I had a black thread like blob in the center vision that moves in my field of vision. I was referred to Retina Northwest in Vancouver Wa.
I have not seen the OCT results and I will ask for that today. I haved been scheduled for surgery 10/13 and very nervous after viewing surgery videos. When I got a call last night to set the appointment I asked what procedures were going to be done. I was told the Vitrectomy and scleral buckle due to a shallow retina detachment. I read about face down recovery so on the call I asked if this was suggested and I was told yes 7 to 10 days.
I too have early stages of cataracts in both eyes so that looks like more future surgeries.
Does anyone have a referral for surgeons in the Vancouver/Portland area? And has anyone had a similar situation without the several buckle surgery?
I had my vitrectomies done for retinal detachment of both eyes by Dr. Birnbach of Vitreo-Retinal Associates of Washington with clinics in Bellevue and Seattle. He successfully performed a peripheral RD surgery and the more difficult macular RD surgery on me. My vision after 2 years is about 20/25 and 20/30 in the two eyes, and I don't really need glasses. He is really a top-notch surgeon in this field and has great bed-side manners too. I understand, he also does ERM or macular pucker surgeries, although I haven't had the need for it. I would whole-heartedly recommend him as he has given my vision back and is a gentleman-surgeon!
I had membrane peeling surgery done last Thursday and am wondering how quickly the vision recovers? The day after mine, when the patch was taken off, I barely could see 20/200 so the assisting surgeon put a patch back on (to help pressure build up) and sent me home. I was in complete shock because my vision was good (other than the wavy/distortion/smaller letters). True to his word, my vision was greatly improved the next day (although I looked like I took a hard left from Mike Tyson :). I was seeing 20/50 uncorrected and 20/30-2 corrected but objects were distorted and wavy. I had 3 unsuccessful detached retina surgeries prior before Dr Charles successfully reattached my retina with full silicone oil fill. I developed a bad cataract so it was removed first (which may be unique to others here). When he did the membrane peeling he told me it should get me to the 20/30 to 20/20 uncorrected range. I have already noticed a great difference in the distortion issues but my vision is still blurry but improving. I am curious on how long it has taken for (days, weeks, months, years) for recovery of vision to be complete following the membrane peeling surgery. Thank you!
I believe the recovery is different from person to person.
I had an ERM and Vitrectomy on my right eye 6 months ago. one week after the surgery, my right eye corrected vision improved from 20/250 to 20/30. However, due to the cataracts and new scar tissues, the vision turned to 20/70. And the distortion is not improved. OCT showed the pucker was gone, but the curve shape is not same. I will see a specialist in late Novermber for the cataracts and will update later.
My story . . . Vitrectomy in July 2013 for detached retina. Had the gas bubble and face down positioning which wasn't as bad as it sounds. Experienced distorted vision shortly after and was told I had macula pucker. In December 2013 my retina specialist was willing to perform surgery for pucker and cataract but I wasn't ready due to holidays and year end workload at work. Follow up appointment in March 2014 he decided to go ahead with cataract surgery only since it is not as invasive. Vision uncorrected was 20/200 before cataract surgery and maybe changed to 20/100 after. Results were not quite as good as I had hoped for. Another follow up in September I was fully ready to go ahead with surgery for the pucker until he said chances of improved vision were only 1/3 and 1/3 that it would be the same and 1/3 that it would be worse. I didn't like those odds so he gave me eye drops because sometimes swelling can cause the distortion. He said they probably wouldn't help but wouldn't hurt. Another appointment last Thursday and I was prepared to just deal with my distorted vision and pray my right eye stays strong. He said chances were 75-80% my vision would improve with the surgery. Right now it is 20/70 with contacts. I asked why his prognosis changed so much in a month and his explanation was he must have been more conservative a month ago. Needless to say this has me quite frustrated. I would like to achieve the best vision possible and realize all surgeries have their risks. I have made appointments with 2 other retina specialists to get other opinions. For insurance purposes I prefer to have surgery before the end of the year. Just wonder if anyone has any words of wisdom.
I was just diagnosed with macular pucker in one eye. It just developed within the last 2 weeks after retinal reattachment surgery. The question I have is whether it is better to wait or have the peel done right away?
The first question to ask is not when, but IF.
I too developed a pucker shortly after retinal surgery. What are your symptoms? Are images contorted? Have you been to a retina specialist? The more surgeries you have, the greater risk for complications. In my case, the lines on an Amsler grid are still straight, but it looks like the ink has been scratched away by a fine toothed comb. More disturbing is the fact that images in the affected eye are 13 percent smaller which interferes with central vision fusion. (It is called Dragged Fovea Diplopia Syndrome.). I was referred to a world class retina specialist at Columbia University who advised against the surgery. He believed that the risk did not outweigh the benefits. I suggest that you consult with a rock star retina specialist before you proceed with this very delicate surgery. Best wishes.
Thanks for the info. My retina surgeon is a top "go-to" guy in the field. My vision has deteriorated quickly indicating that the scar tissue was in response to a trigger by the retina. An Amsler grid shows generally wavy lines. I can't see faces on TV. I am incapable of normal reading now with that eye. Glasses don't help. Any other thoughts?
No matter how respected your surgeon I would encourage a second opinion on this.
I have had RDs in both eyes, and a peel in one. I was scheduled to have a vitrectomy in the other several months back for CME and membrane when I sought a second opinion. The upshot was that instead of surgery I was treated with steroid drops successfully. (No, that didn't eliminate the membrane, just the edema, but mine is off to the side and not affecting vision much, and it could be that at some point surgery will be needed.)
I realize your situation is different, but the longer I am an eye patient the more I believe in second opinions, especially when surgery is under consideration. I did get a good result with the membrane peel I had on the first eye, but at that time I had not yet experienced a detachment in my other eye.
ok, sounds good. Agreed that my situation is a little different than yours. In my case, the eye does not see any detail at all, so I am anxious to do something about it. Drops won't work. I have seen the 3d pics before and pics and the case for peel is compelling. I have another ophthalmologist I use that has surgical experience, and will consult with him. I am hoping to clear up this eye in case something happens to the other eye.
As for your concern that something could happen to your other eye such that you want to optimize the RD eye now, the eye I had the peel in is in fact now my better eye because of a subsequent detachment in the other, with complications.
I did find the recovery from the peel (had IOL done in same surgery) very much easier than the vit-buckle repair for the RD, and I got a great outcome. I sincerely hope the same for you!
I had my surgery while wide awake two days ago 5/27 and am now on bed rest. Eye patch cam off after 24 hours and I noticed an improvement over prior condition. Everything was brighter, I could see small print I could not see before the procedure. They tell me the cataract is already developing, and iI can see some whiteness to my vision out of the eye.
Then they put me on Prednisone (steroid), a dilator and an antibiotic. The doctor used an air bubble, so I am on my side and belly for 3 days, not on back. The crumple is still evident and the center "dot" is still there with a shimmer but appears to be getting smaller. Steroids every two hours, plus dilation for a week mean that my vision is affected by drugs and not like it would be if normal. Already I am seeing very slight improvement, but it is too hard to tell right now or figure where it is going. The Doc gave me a green light at the 24 hour check-up and I don't see the doc for a week.
Hi again, Good to hear that you are seeing improvement. I didn't have a peel, but I have experienced the bubble treatment and positioning -- it can be quite an ordeal. I was on dilation drops for a month to prevent iris chaffing after an IOL was implanted in the sulcus. You will not focus well until several days after you stop dilating drops, and the bubble may linger for a week or so. During my recovery, I wore an eye patch because I was very sensitive to light. As far as the "crumple" is concerned, it is my understanding that it can take six or more months for the retina to flatten out. Best wishes.
CBCT, Thanks for the advice. Today is day 3, I am noticing slight improvement, but agree that it is hard to tell if acuity has improved. I am on full time dilation, so the pupil os open all the way. They tell me it puts less strain on the eye during healing. Also, my glasses prescription has changed, so I don't have the right refraction. Also, the cataract development is certain after this procedure, so things are whitish. The bubble is also there but will be gone is a day or two, and it causes weird light streaks too. I am on day 3 of bed rest.
Glad to hear that you are seeing improvement. I would not yet jump to the conclusion that your "whitish" perception is from cataract development. At this point, I would guess it is more likely related to extended dilation. It is true that cataract development could well follow, but probably not so soon.
The period between surgeries and accurate refractive prescriptions is really frustrating! Glasses cost a small fortune, and you may need to wait for four to six weeks until things to stabilize. In the meantime, if you find that your eyes are not working well together, try a cheap patch from a pharmacy.
At day 12 since operation. The bubble went away after 5 days.
I did get some powerful glasses after my first surgery that are helping a lot. When I had the glasses made, I made two sets of glasses, one with the proper prescription and another with a clear lens over the good eye. This has helped a lot since there is a better sense of balance between the eyes. I use the proper glasses for driving and the one with a clear lens for watching TV. No glasses for computer work, but my bad eye cant focus on the screen unless I am right up to the screen.
I am totally dilated since the operation, now 12 days ago. The drops also prevent my eyes from using the muscles from focusing the eye. As a result, it is hard to tell how much real acuity improvement I have yet. Without glasses, The retina seems to be fully attached and the wavyness seems to have improved some.
I do have a light flicker and a tiny annoying spot from just left of the center of vision. It gets worse if I go outside. It is just big enough that if you look at a letter on a printed page, it is just to the left side of a printed letter on paper. The doctor says it will diminish with time. Any experience with that?
Hi, sounds like things are going well for you. I do have some residual damage after my vitrectomy -- a peripheral scotoma in my left eye around the 1:00 position. At first it looked like a shadowy crysamthemum. It eventually turned into a shimmer. It is more noticeable in bright light, especially in sunlight. I have gotten used to it, and I wear wrap around glasses when outdoors.
Living with a dilated unfocused eye can be annoying. Once that is over you will get to see your progress. I am so happy to hear that the waviness has diminished and am send happy healing vibes your way.
I would ask if there are any dangers in waiting? My doc told me you do not want to wait too long IF you need surgery but "too long" is debatable. On the other hand some people with puckers never require surgery as their vision is acceptable. I understand your fears.
That is a good question-I was first checked last Aug. and the doctor said it was up to me to decide when/if to have the surgery. In April I had a re-check in the same practice but with a different doctor. She said it was worse even though both told me I have 20/40 vision in that eye. She suggested surgery sooner rather than later because they can fix it better early.
If I knew it would stay like it is I could live with it but you never know what it will do, I guess.
I just don't want it worse in any way due to surgery. I wish the doctor doing the surgery could let you talk to former patients of theirs to get the truth on what really happened to them--was it better, worse, how is it now????
Few things more scarey than eye surgery. I know you have seen two docs but maybe another opinion would help. I've found each time I learn more but I really prep for the appointment. You are not near any of the top rated eye hospitals but the Mayo Clinic is usually in the top 15 rated by US News for eye problems. Very specialized surgery and need very good retinal surgeon. I always ask each do who they would use if they needed this surgery and your partners could not do it (good way to get 2nd opinion), how many have you done, have you done this surgery on any MD's (the Md's know the besy docs for their eyes, any new processes or equipment at the teaching hospitals not yet available to most docs (sometimes new equipment makes a big difference but it is still too expensive for your local doc) etc
Have you asked your surgeon whether there's a patient you might speak with about their experience? The result from any surgery will be highly individual, of course, but if it's the actual experience of having the surgery starting with arriving at the hospital for the procedure until a month or more later when you can stop taking the eye drops, maybe they could put you in touch with someone. You could get an opinion outside the practice where you've already been seen. There are a few different retinal practices in the TC. Do you know which hospital the surgery would be done in?
I just had my 3rd or 4th control for a pucker, with macular edema. I began (2012) with pains, deep in the puckered eye after the first assessment in the clinic. No specialist could explain it.
I found out they better when I close my eye for some times. Also I use them as a signal that sunlght is coming from behind or the side into my sunglasses, refelecting the UV directly in the eye.I waer a wide-brimmed head and make quick accomodations when I feel that pain. This helps to diminish the pain or to let it go away. I think my pain has got something to do with sensitivity to light. Yesterday with the medicla control it started after the warming up of the puckered eye with a very extended OCT. (new apparatus).I minimise the OCT's as much as possible, because I have not been able to find research on the possible harm of the used laserfrequencies.
I was diagnosed with macular degeneration and macular pucker in my r eye 18months ago. My distortion has rapidly increased since, and my doctor thinks I am ready for surgery at this point. i can still drive and faces on tv seem distorted viewing from that eye, but the fact that my left eye compensates, makes me still able to manage stuff on my own. I am rather scared to go for the surgery as I've been told it's a very delicate operation and might lose part of my centre vision which is still intact at this point. Any suggestions anyone, pls?
In my experience it is almost always time for a second opinion. Google "Top Eye Hospitals" and look at the US News website. You'll' see the best. It depends on where you live and if you will travel. Top docs are a bit more difficult but if you see the head of the dept at a top hospital it is a good start. But you often do not get to see these guys/ladies next week. They are busy.
The Phillips Eye institute is the location of my eye surgery. The doctor that would do the surgery is one my ophthalmologist sends her own father too and she said that is a good reference if an MD picks that surgeon.
My eye doctor says she has patients get the surgery done and for the most part the only complaint is less than an outcome they hoped for. Nothing major as far as failures go.
I'm just a worrier by nature and anxiety is the way I deal with things these days so I'm probably over thinking the surgery.
I wish you the very best. I do not think you can overthink eye surgery and I can relate to being a worrier. I also think it is a good reference if a doctor sends their own family to a specific doctor but it depends on what they send them for. I have a local ophthalmologist I see a few times per year. I consider him fine for routine advise and follow up. I would not use him for surgery (the types of surgery he does). He may be fine but I know there are more experienced docs. I'd say the main question i always ask once i've picked a doc is are you going to do the surgery yourself. This is especially true at teaching hospitals where the surgeons are often among the best but they may being having a doc in training doing part of the surgery. Not what I want on my eyes
Could I ask the name of your Columbia star retina specialist? I have had two surgeries now (the second for a RD), and am really struggling to figure out who the rock stars are. I would like a second opinion before another surgery
Could I ask who your Columbia world class retina specialist? I have had two surgeries and a third is planned. I would like to first get a second opinion, but am having difficulty getting fact-based identification of the true experts in the field
Here are some world experts: Tim W. Olsen MD Chair Emory U Dept of Ophthalmology Atlanta: Steve Charles MD arguably the most well know and respected retina surgeon in the world (Germantown TN) http://charlesretina.com/team/steven-charles-md/ Carmen Puliafito MD Dean Keck School of Medicine USC California;
I saw Stanley Chang MD at Columbia University. Be aware that he does not accept insurance. I paid upfront and then obtained out of network reimbursement from my insurance carrier which is Cigna.
I am having the vitrectomy for macular pucker soon so will let you know all about it. Am going to the Retinal Group of Washington and trust my surgeon, who has a lot of experience. My vision in one eye has been distorted for several years but has gotten worse this year to the point of nothing to lose. Also have dry macular, age related and the beginning of cataracts. I am 65. Can still drive local roads but not interstate, perform normal everyday functions but cannot read unless glasses are off...same with computer. Objects are larger and of course wavy lines in the affected eye, along with.blank spots. I'm hoping for about 75% increase in vision and am aware that cataract surgery will be needed probably within one year.
I first noticed distorted lines and the perception of looking through water droplets on September 14th, and what got my attention was how quickly it seemed to happen. I went to our Dr. of Optometry a week later and while there had an OCT scan that showed very clearly the unhappy retina. I was immediately referred to a specialist and was seen that same day. He suggested the surgery be done and I was in complete agreement, given how this was affecting my central vision so significantly. It's been a week now since I had the surgery and so far so good. I was given the gas bubble but it continues to shrink nicely. My pupil that stayed dilated for the week following surgery has also returned to almost normal.
One additional symptom of note was that images in my affected eye were generally smaller than with my unaffected eye. My grandmother had AMD back in the day and my first thought was maybe that was the condition I had, although I never experienced a blind spot in my center vision. I have still not seen anyone report a sudden onset of symptoms from macular pucker like I seemed to experience. In hindsight (no pun intended) I did notice a rather vague change in vision while wearing reading glasses over maybe the two months prior, but nothing else except maybe a little more difficulty seeing in low light situations. I have worn contacts daily since the late '70s, and have them for distance correction only (hence the reading glasses for close-up work), but of course have not worn them since this experience started.
I do but it is somewhat less pronounced than before having the procedure done. It's been less than two weeks, but my vision in the affected eye is certainly no worse now overall than before the surgery. Looking forward to slow improvement over the next several months.
Images in my right eye are 13 percent smaller. I have Dragged Fovea Diplopia Syndrome which interferes with central fusion. I use a small piece of Scotch Satin Tape on the inside lens of my right eyeglass lens. It forces me to use peripheral vision which can fuse. You may be interested in this article
Thanks CBCT, and good article. I saved it to my desktop. Thus far I am not experiencing diplopia as described in the article. Interesting that a relatively simple solution is available by using the Scotch Satin Tape!
Returned for a follow up today (10/13) with my ophthalmologist. He said everything looks fine, macular pucker has been corrected and two peripheral retinal tears revealed during the surgery are holding fine after laser treatment. Vision in affected eye 20/50 and unaffected eye 20/20 (both with glasses), IOP 14 mm Hg in affected eye and 13 mm Hg in unaffected eye. Still some distortion, but both he and I are pleased this far with my results.
I was diagnosed with a macular pucker in my left eye last year, but it is progressing at a slow enough rate for me to postpone surgical decisions for now. I DO appreciate all the input about getting second and third opinions, etc. Wanted to pass along something I discovered that was a real, well, 'eye-opener'. I found these rather 'silly' plastic glasses at the dollar store that are supposed to provide 'rest for weary eyes' while you keep your eyes open. They are essentially black plastic glasses with dozens of tiny pinholes in each lens. Because my right eye is fine, I punched-out that black lens and kept the left one intact. When I wear the glasses, it's as if I'm giving my brain a rest from the usual slight distortion I'm having all the time. In short, it's like wearing a patch over the bad eye, but without losing any depth perception, because you are still getting light in the 'bad' eye thru the pinholes. Those of you who are resorting to patches, try taking one and simply adding some tiny pinholes and you'll see what I mean. It's like a whole '3rd' way of seeing; like a welcome 'trick' to the brain
Returned to my ophthalmologist on Nov. 10, a little moe than five weeks after surgery. Still noticing slow visual improvement, now about 20/35 in the affected (left) eye. He did an OCT scan which now shows a flat, normal retinal image instead of the unhappy retina of Sept. 22. I will see him again in February and will report back how it goes.
I've just read your question about whether there were any alternatives to 'simply' wearing a patch over the 'bad' eye and carrying on. Well, I believe I have found one. I was diagnosed with a macular pucker and will have surgery soon. In the meantime, I found these rather 'silly' plastic glasses at the dollar store . . . some Japanese 'remedy for tired eyes' that are just black lenses with lots of tiny pinholes in them. I took them home and punched out the right one (my good eye) and now wear them for relief from fighting the distortion with both eyes open. It's as if I am 'tricking' my brain. When I put them on, my brain says: "Oh, this is just a different distortion (like wearing a veil over the bad eye)." Try punching many small pinholes in your patch and see if you don't get the same effect, without the loss of depth-perception that a solid black patch gives you.
I had macular pucker surgery in July. Before the surgery I had very clear vision, but severe distortion. After the surgery, my vision was 20/200. Initially my surgeon could not tell me why my vision changed so radically. Then, he suggested that a the pre-surgical cataract grew rapidly after the procedure and that was causing my vision loss. In November, I had cataract surgery with a lens implant. My vision is still 20/200, but somewhat correctable with glasses. The cataract surgeon told me that because I had previous LASIX surgery, it was more difficult to gauge what lens to use for the implant. Hm...To top it off, my macular pucker is back. In retrospect, I should never had had the vitrectomy.
Returned to my ophthalmologist on February 9th, a little more than 4 months after surgery. Vision in affected eye appears to have settled out to 20/50, IOP was 15 in affected eye and 17 in the other, and have been cleared to return to my optometrist to update my glasses. Will hold off on returning to contacts for a while longer.
Went to my optometrist on 2/25 to update my lens prescription, appears that my left (affected) eye will at this time be correctable to 20/30. As somewhat expected following a vitrectomy, the early stages of cataract development have begun, but I will only need to take a watchful approach toward that for now.
Sorry for taking so long to answer about how long to wear the 'pinhole' eye-patch/glasses. The answer is simply as long as you like and/or can tolerate. It's just an alternative way to get a rest from the distortion and blurry vision in the bad eye. I'm scheduled for mac pucker surgery in a few weeks, thanks to all I've read in this forum. I'm at 20/200 in the bad eye and don't want to wait. Nothing to lose at this point. Odds are in my favor I will at least experience some improvement.
Actually, this past week I had the second surgery for macullar pucker. The first was put off for a year, then the distortion was going to prevent my passing my driver's test, so I had it done. Sight improved for well over a year, to about 20/40.
This time was the other eye, minor distortion. Then one day, shortly after a steroid shot for allergies, I had major distortion. My surgeon, whom I saw every six months, got me right in after I told him the Amsler grid was suddenly grey in the middle, and snarled like fishing line. I was given Avastan shot that day, and for two month to get rid of edema and vision went fro just the E on the chart, to four lines down. Finally, I had the surgery and am in the first week right now. The second day after, distortion on the grid was both ways. By the 6th day, it was just vertical, and today (10th day), even that is milder. I do not have great vision, with grey blank spot which comes and goes, but so do the black specks which always follow. I can see the E on the chart, and sometimes a couple more lines, sometimes not
Having been through this before, I have a wait and see approach. Doc said I may need the shots again after surgery, or maybe not. I know they told me my other eye would improve for six months, but my optometrist said it continues to improve six years later. I know also that my brother in law, originally on Avistan shots for macular degeneration was legally blind, but after being put on Eylea shots this year, is at 20/40 vision! I am glad I had the vitreus removed, as I did not want retina detachment from that. It will be what it will, but there are several options out there, and I am pleased with the results in the first eye done. I will follow doc's advice, as he has earned my trust as a fine surgeon.
I notice you have a similar screen name to mine and didn't want confusion, but wondered whether you did in fact decide to proceed with the pucker surgery.
I have the membrane but while at first was opting for surgery right away have decided to hold off and give myself some additional time to consider.
Wondered what happened as I read this thread and then didn't want our names confused. :)
I noticed this poster's last comment was regarding a particular clinic in 2015 where the surgery was planned, but unless I missed something, I did not see a follow up account of his/her surgery having been done.