My 9 yr old daughter has been suffering for 2 yrs from "bloody" looking eye no one knows what it is?

[sweetmocha]

On 3/21/07 she had stomach flu,5/24/07 she woke up with a bloody looking eye it's ALWAYS on the same eye (right)on the inner part of the sclera & it never spreads to the other eye,she always says it hurts & it swells up a little. Her pediatrician thought it was conjuvitis & rx Ofloxacin .3% it cleared up in 3 days. 11/15/07 her pediatrician thought it was the same thing, 2/4/08 It happen again rx ofloxacin,5/16/08 ofloxacin & her doctor referred her to an Ophalmologist,6/10/08 he thought it inflammation Icd9 379.93 continued on ofloxacin, 9/22/08 he thought it was herpes icd9 054.40 rx Acyclovir 200 mg & Elistat we gave to her for 7days & it did not clear up, 9/29/08 it continued so I gave her ofloxacin it cleared it on the 3rd day, the Doctor though it was genetic & he checked my husbands & I for some disease & it was negative; He gave up & send me to another specialist in Ocular Immunology, 12/22/08 it happen again icd9 379.03 Anterior scleritis RxPrednisolone IT DID NOT HELP  she send us to get some testing done to rule out her suspicions my daughter had an chest x-ray came out normal, ANCA panel,CBC with differential/platrlet,comp.metabolic panel(14),HLA B 27 disease Assoc,urinalysis, venipucture, non LCA req, every came negative except she probably had a UTI, 1/7/09  she had her eye red again she said she had Hemorrhage and gave her Rx Flurbiprofen,2/5/09 same thing, 6/15/09 again I just gave her Ofloxacin, 9/20/09 after she got strep she had again Ofloxacin,11/21/09 flu 2wks before & same thing again ofloxacin. I'm desperate especially now that we lost the insurance she had & her doc was closed today until Monday. Most of the times her eye turned blood red she either from a simple cold or strep. I take her to the doctor for treatment and 2 weeks later it appers. It so frustrating & sad I feel no one is helping her & I'm afraid she could lose her vision and eye. Please HELP!!!

[Michael J Kutryb, MD]

It's a difficult case and may represent some type of atopic or severe allergic condition.  It takes a very patient, long-term approach by a pediatric ophthalmologist that knows her very well.  At some point, trial and error treatments my need to be tried.  Tesing for auto-immune and inflammatory conditions is essential and should probably be carried out at a teaching hospital since this problem keeps going on and on.  I really cannot get involved more deeply since I am not her doctor.  In the end, she may well have some type of atopic or allergic condition or a chronic inflammatory or auto-immune condition including some of vasculitis. So your doctors have their hands full and will need to do a thorough workup and keep close tabs on her.  Hopefully, she will qualify for Medicaid.

MJK MD

[Sandy Feldman, MD, MS]

Dear sweetmocha,

I would recommend that you document the episodes and speak with her eyeMD and if needed, see a specialist in pediatric ophthalmology to obtain an appropriate diagnosis.

Dr. Feldman

Sandy T. Feldman, M.D., M.S.
ClearView Eye and Laser Medical Center
San Diego, California

[sweetmocha]

Thank you for taking the time to answer our post, it feels like there is no answer for our problem, it feels good to know someone cares enough to read and answer our post, someone is listening, hope....  Is there someone you can recommend in the Houston area?  Unfortunately we don't qualify for Medicaid, and this being a pre-existing condition I can't insure her, can't lose hope....  Thank you.