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Nystagmus
by cipri_erdei, Nov 06, 2007 07:14AM
My name is Erdei Ciprian, I'm 28, and live in Romania. Well I have Congenital Nystagmus. I was surfing the web in search of some information on Nystagmus. I came across this excellent site - so I decided to send this e-mail - and I really do hope you can help me.
Well I know there is no true cure for Nystagmus, But from what I have read it seems that there are little things Doctors can do to improve vision. Now my problem is having to find a doctor who actually knows about Nystagmus sufficiently enough to help me. Every time I visit an eye specialist - I am told that I have congenital Nystagmus, Astigmatism . The specialists which I have thus far visited tell me, that nothing else can be done..
Even if there isn't anything that can done - I would be very happy to meet a doctor who can always keep me updated with the latest treatments - & who can possibly help me a bit. I have’t managed to get a drive license. My greatest wish at the moment (seriously) is to one day be able to drive, so that I can become more independent, can help me no matter how little that help may be.
I REALLY am sorry to be a bother to you - but is there any information you can provide me with - do you by any chance know of any good doctors/specialists that you can recommend to me, whom I should visit, or know where I can get hold of such information.- or do you believe that I have to travel overseas to find such a doctor (Honestly!).
Another thing I'm curious to know is - do you believe neurologists can help me?
I will GREATLY APPRECIATE any information you can provide me with - Please e-mail me at my E+mail ciprian_erdei***@****, so that I am sure to receive your mail.
THANK-YOU VERY VERY MUCH!!
Ciprian Erdei
Well I know there is no true cure for Nystagmus, But from what I have read it seems that there are little things Doctors can do to improve vision. Now my problem is having to find a doctor who actually knows about Nystagmus sufficiently enough to help me. Every time I visit an eye specialist - I am told that I have congenital Nystagmus, Astigmatism . The specialists which I have thus far visited tell me, that nothing else can be done..
Even if there isn't anything that can done - I would be very happy to meet a doctor who can always keep me updated with the latest treatments - & who can possibly help me a bit. I have’t managed to get a drive license. My greatest wish at the moment (seriously) is to one day be able to drive, so that I can become more independent, can help me no matter how little that help may be.
I REALLY am sorry to be a bother to you - but is there any information you can provide me with - do you by any chance know of any good doctors/specialists that you can recommend to me, whom I should visit, or know where I can get hold of such information.- or do you believe that I have to travel overseas to find such a doctor (Honestly!).
Another thing I'm curious to know is - do you believe neurologists can help me?
I will GREATLY APPRECIATE any information you can provide me with - Please e-mail me at my E+mail ciprian_erdei***@****, so that I am sure to receive your mail.
THANK-YOU VERY VERY MUCH!!
Ciprian Erdei
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