My son is 8 years old and has been diagnosed with optic nerve drusen. It was actualy caught last year, and we went to a specialist then who said he was probably born with it and there is not much you can do and not to worry about it. Well, this year we went for yearly eye exam and we were referred to another specialist who is alot more thorough and ran a dozne tests on his eyes, had severla doctors coming in and out of the room etc. She said that also his right eye is showing signs of swelling in that area. she did a B Scan as well. She was not comfortable with the results and is sending us to have a CAT scan done and then wants a MRI done as well. I asked them at the end, so if these scans show there is not a tumor/lesion (which is what they are worried about) what does that mean? And they all just looked at each other kind of strange. I said what does that look mean, is it normal to have the drusen in both eyes, should we be concerned? they just said well it;s not good. (what the heck is that supposed to mean?) Can you give me more insight??
Thanks!!!