My 12 year old Autistic son was diagnosed with a Pale Optic Nerve at his last Eye Dr visit.
The Eye Dr felt that my son's vision problems are being caused by the Pale Optic Nerve and if we could find what was causing the Pale Optic Nerve and fix that, that his vision would be okay.
My son has a Pineal Cyst, so the Eye Dr immediately felt that this had probably grown and was causing the problem.
My son went for an MRI last Friday and the results concluded that is cyst has not grown and is not big enough to be causing any problems. There were no other brain issues that were found.
My question is, if nothing in the Brain is causing the Pale Optic Nerve, what is the cause?
Can this be corrected or will he lose his sight?
He was given a pair of magnification glasses to wear, but the Dr. said they may help and they may not.
Is there anything that can be done?
A palle ON in a 12 year old with a normal MRI suggests a form of optic atrophy. I suggest you ask his ophthalmologist to refer you to a neuroophthalmologist or go to www.aao.org and find one near you. Glasses will not help optic atrophy and usually the condition is permanent. Need to find the cause.
I wanted to update you on my son.
He had an appt with a wonderful Pediatric Neuro-Ophthalmologist, Dr. Mark Borchert, at Children's Hospital of Los Angeles yesterday. Dr. Borchert is known among the community of being great with Special Needs kids and he was!
My son indeed has Optic Atrophy, with no Neurological causes. His Optic Nerve was described as Pale and Thin. We were told that it would take years for this to get this way and that most likely the Optometrist that saw my son for glasses (a referral from the School District) did not dilate his eyes.
I checked on this today and he was correct, the Optometrist did not dilate his eyes.
Dr. Borchert said that it was most likely caused by a trauma at birth, which there weren't any, he was full term, normal vaginal delivery with a 10 on the apgar scale or from some other head trauma years ago.
I informed him that my son used to bang his head when he was an infant and even though we tried to prevent him from doing so by wrapping his crib with padding and plumbing insulation, that he still managed to bang his head and floors, walls, people.. etc
He felt this was very likely the cause.
We go back in 6 months for a recheck to make sure this isn't progressive. We were told that only @ 1% of this type of Optic Atrophy was progressive, so good odds, but we are keeping our fingers crossed.
My son was born premature at 24 week and was 585 gms he had brain bleed of level 4 ...his brain clot dissolved on it's own in 2 months and he had vision in his eyes but later he developed rop and had retina detachment ...post retina surgery his left eye retina is attached but right eye is attached unto 70% but he doesn't stare at things ...we went to see a neurological opthomologist but they are not treating or giving any medicine but have asked to just wait
Please advise what we should do
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