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ROP, Nystagmus & Nearsightedness Help

ROP, Nystagmus & Nearsightedness Help

My daughter was born 15 weeks premature, weighing 15 ounces and was on a ventilator for the first 2 years of her life.  She is now 9 years old and in the 4th grade and with the exception of her vision issues, she is amazingly normal. She was diagnosed with ROP and had several laser treatments to correct this problem.  She also has nystagmus, and when she was 5, she had eye muscle surgery on both eyes to correct a drastic head tilt.  The head tilt got better for a while, but has since gone in the other direction, so much so that she cannot look to her left without turning her head.  She has severe retinal scarring from the ROP and is severely nearsighted - corrected vision is 20/200 in left and 20/100 in right, 20/80 using both eyes together.  We have recently switched to a new pediatric opthamologist and a low vision specialist who I LOVE and wish we'd had before, but I want to make sure I'm doing my research as well.  The new opthamologist says she can attempt another eye muscle surgery to correct the overtightening done by the previous surgeon, but it isn't something we'd do until the summertime when she is going to be out of school.  As I was told before, this would purely be cosmetic in nature and would not correct any vision problems.  I was also told there is a risk of retinal detachment because of the scarring from the ROP. I would like to know (1) are there any surgical options for vision correction, (2) should I go ahead with the 2nd eye muscle surgery given that it won't effect her vision, (3) do further surgeries increase chances of retinal detachment and (4) is there anything we should avoid given the chances of the retinal detachment (certain amusement park rides, blows to the head, etc.)?
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the surgery to correct the eye muscles, will not increase her risk of retinal detachment.

there are unfortunately no surgeries or other procedures that will give your daughter improved vision.

if she does in the future develop cataracts, surgery to remove them will increase her risks for retinal detachment.

protect her eyes by having her wear glasses made of either polycarbonate or trivex materials, and sports goggles if playing on any sort of organized team. Avoid blows to the head, no boxing, etc.

Be sure she's aware of the signs of retinal detachment.

I hope she's able to avoid the complications that ROP can bring as she grows up. Maybe eventually they'll be a cure...(as a person w/ROP myself I can hope, right?) I hope that she's learning braille now as a child, even if she's got decent reading vision, b/c it may not last and learning braille as an adult is a lot more challenging (it took me 3-4 months to learn the full contracted code, but my reading speed is still pretty slow). Glad to know that you've got a low vision specialist that is helping your daughter.
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