Hello, I sure hope someone out there can answer some of my questions.
Two weeks ago I had Restor Aspheric IOL lenses implanted into my eyes and small slits made to
correctCorrect (new formula) the astigmatism. I was told the lenses would give me almost
perfectPerfect choice near & far vision and good intermediate vision. They did warn me that I may experience rings and halos around lights at night. (I had no idea how bad this would be)
Since I love to spend all my free time outside and on the waters fly fishing the thought of being rid of my progressive glasses was a dream come true.
Right now my distance isn't too bad but not nearly as
clearClear by design
Clear eyes
Clear eyes acr
Clear eyes clr
Clear-atadine
Clear-atadine children's as it was before with my glasses. My near and intermediate vision is terrible. Everything is a blurr. I can't read anything unless its about 10 inches away and working at the computer is really difficult. Text on a white back ground looks as if someone has taken a light grey highlighter to it and white on
blackBlack cohosh
Black draught
Black haw is almost
painfulPainful menstrual periods. I work as a draftsperson for a busy engineering firm and if I can't see I can't work! My right eye is the worst as far as pain goes and I always have a dull headache which seems to be from eyestrain or
brightBright beginnings lights.
What I need to know is:
Is this normal?
How long does it take for the lenses to "shrinkwrap" as they say to the where they're supposed to be?
Do most people have good results immediately or are they just as scarred as I am in the beginning?
I look forward to any advise you can give me.
I'm to see the doc this Wednesday.
Will post what he says.
While some people do adapt and this can take a while, some of the problems you are experiencing are common with Restor lenses.
I had one Restor implanted and then explanted after six months last December. I replaced with a Toric Monofocal by Alcon and wear a contact lens in my natural eye.
Definitely check the forum both experts and patients in the archives.
You may find some relief with glasses over the Restors. Under no circumstances agree to a YAG lazer procedure until you are completely satisfied that you will keep your Restors. A Yag will make an opening in the back of the capsul and explant will be difficult to do and many doctors will not do this after a YAG.
Good luck and try not to lose hope. You will eventually find the Road to good vision.
londonbridge
If you check the archives of the Expert forum or click on my username, you will find a thread entitled "Which monofocal lens is best (after multi explant)". It documents my own experience, as a patient like yourself, with the Restor lens. I started the thread after I had made the decision to have both Restors removed and replaced with monofocal aspheric lenses. You will find quite a bit of info there, and my opinion of the Restor is also in some of my other posts.
From the moment I opened my eyes I felt absolutely stressed and dismayed with the horrible effects (and they are indeed horrible) that you describe. I just wanted to tear my head off my shoulders, and this went on for nearly 4 months. Some patients say they did not have these effects, or that they were minimal. Others suffer a much worse reaction. You are not alone. This I can tell you with certainty - the quality and clarity of *correctly inserted* monofocal lenses beats the Restor hands down, and you do not have the brutal and awful period of "adaption" (if you ever manage it) that noone ever seems to mention truthfully when touting the lens. There is no perfect solution, so with the monos people most likely need glasses for some things, or risk binocular imbalance with each eye set for a different focal point. There is no free lunch. I am totally delighted with the quality of one of my eyes set for distance, the other eye (also set for distance) is having complications unrelated to the lens, but I would be in heaven if it were as good.
Like you I am a very active person, and value my distance vision most, therefore I am more tolerant of needing glasses for close up such as print, computer, and on occasions to polish up the intermediate vision to about 3.5 feet such as when in bookshops. Once the glasses are on, the clarity of closer vision is excellent, no penumbral blur or bleeding of colours, no sense of strain - I had those same effects with the Restor. I see very well for all practical purposes, and find pulling glasses on and off my nose to read print, find coins, and get that extra bit texture occasionally to have mere nuisance value, just as it did pre-cataracts, and well worth it for the overall quality.
Because your eyes have their own unique configuration, I would not state that your vision would be the same as mine with monofocals, and there are different ways of setting them up. You might perhaps be more or less glasses-dependent, I don't know. However the downsides of multifocal lenses have been experienced by many other patients on this forum.
I was a cataract patient, half blind, but with very good pre-cataract vision, only a little middle-aged nearsightedness, so this may have helped my good outcome.
My own choice (in Australia) was a bilateral explant, which is a *very* serious decision carrying it's own risks - and only the individual person can ***** if this is a risk worth taking. If you are so unhappy I would seriously suggest getting additional opinions from other surgeons who do monofocal lenses, and doing this *quickly*. The awful catch-22 with multi lenses is that they "supposedly" come good for most (but not all) people after 12 months, but the consensus of Dr's opinions to me was that if you want them out, the sooner the better. I didn't think I could live with them, and into the bargin the lens power was incorrect. Is your's correct? I would (and have) begged others not to get multis, but once they're in, the whole picture becomes much more complicated.
I hope this has helped you. Search this site on keywords such as Restor, explant, monofocal, modified monovision etc, but remember we are mostly just patients like you - so you do need the expert advice of an ethical surgeon who will try to give you the best possible results and will be able to advise what you could realistically expect. Be wary of recommendations to get YAG or Lasik until certain you want to keep the lenses, as this configures your eye to the Restor!
Best regards, Restornomore
Stupid stupid stupid!
Blurrrrrrrrr
Keep us posted disappointed66 (no more)
I understand completely your feelings of rage and regret - I felt exactly the same way. It is utterly shameful the way "reputable" doctors flog these things - bad enough if the surgery was necessary, but absolutely wicked when there is *no such thing* as a presbyopia-correcting lens with current technology! I was told that "everyone loved" the lens and treated like a complete weirdo for not loving it as well. You were conned, I was conned, many patients on these boards were led astray by the very people we should have been able to respect and trust to help us. People tend to equate the phrase "don't need glasses" with "see well" - they are not the same thing at all!
I felt totally used as it was repeatedly flung in my face that I "was blind before" in response to every protest I uttered about these awful things. The night vision for starters nearly drove me insane, and I *loved* to walk at night, so that part of my life was completely destroyed. With the monos, night vision is much more sane and normal. The very stressfulness of going rapidly blind quite young distorted my judgement and I thought I was just being a sook (Aussie for whimp) about what was supposed to be routine and mostly successful surgery. Here *some* Drs tout the "premium" lenses at younger patients who are sitting ducks if unaware of the issues. If only I'd had the sense of disappointed66 and refused to have the second eye done. Try not to get diverted with regrets though, you have the rest of your life ahead of you, and need some improvements.
If you reconcile yourself to needing glasses at least some of the time, you may well be able to achieve top-quality distance vision with aspheric monofocals & *maybe* have OK closer vision helped with glasses - here's where you need *expert* and ethical advice, I can't make promises about outcomes. I sound like I'm pushing an explant and don't mean to as there's *so* much to consider, including the possibility of being worse off if things go wrong - I just feel for anyone stuck with the Restor! My explant Dr told me the operation was rather like "old fashioned" cataract surgery involving a larger incision, and the chief risk being the lens would develop an attachment to it's moorings and not want to come out, so the sooner the better. I was lucky and found (via my GP) an excellent and very skilled surgeon - so don't be afraid to seek many opinions, you needn't go ahead with anything that makes you suspicious. I'd stick with surgeons who don't use multis, and who are completely upfront and honest and willing to answer any questions myself.
You can still get a bad result with monos if lens power is incorrect, or surgery done poorly. Nothing is easy is it? Wishing you the best in this difficult time.
Regards, Restornomore
Reading and working at the computer is still very difficult and I'm getting lots of headaches. Near and intermediate vision is still terrible, really blurry with ghosting and double vision. Night time is horrible and makes driving quite scarry. My distance isn't too bad but not completely clear and in no way as good as it was before with my glasses. I'm also having trouble with bright lights and glare in the daytime and need to wear sunglasses even on the cloudy days.
I'm to be tested again today and will see my surgeon this time. I really hope he will have a solution for me even if it means removal of these Restor lenses and implanting another type. I've been reading about monovision and will ask him if I would be a good candidate.
My biggest concern is what if the next ones aren't right for me either? Then what?
Of course, all these doctors promote these lenses so we'll see what the second one says. I was never told anything about the possibility of waxy vision. Yet, in my research, I found that doctors are talking about it so I find it hard to believe that my doctor had no idea about it.
I found an article in Eye World by a doctor who started his article by stating, "Many of my patients who have received one of the 300 ReStor multifocal lenses that I have implanted experience mild to moderate "waxy" or "hazy vision." He goes on to state that almost 5% of his patients experience a severe form of waxy vision (VVD). These cases require explantation and iol exchange to relieve their symptoms. I'm not sure if mine qualifies as severe, but to me it is unacceptable. Were it not for my other eye, I wouldn't be able to see street signs. I have to sit about 5 feet away from the TV because everything is blurry. If I had been told about the possibility of waxy vision, I wouldn't have taken the chance.
I'll try to post what my doctor and second opinion doctor tell me.
Good luck with your doctor today. Maybe a few tears would work. lol :(
londonbridge
I'm not sure what to think now that I've seen my doctor again. He dilated my eye and he said everything looks great. He is very convincing; even convinced my husband who was ready to blame him for everything. He said that the blurriness was more with the earlier ReStor and my case is very different. I do see clearly every early morning upon first awakening. It lasts a couple of hours and then the blurriness starts. I fell asleep on the sofa the other night in the evening and when I awoke, my vision was improved. In addition, I had perfect vision for a few days after the surgery.
He's never seen nor heard of anything like this and suggested that I could get a second opinion and suggested I try Restasis to see if the tear film has something to do with my problem. My eyes feel fine so not sure that I have dry eyes. He said he could explant the ReStor and put in a monofocal but given my fluctuating vision, he wouldn't know what power lens to put in. I might still have the same problem afterwards. I'm going for an independent second opinion tomorrow so will get another perspective. He said I could wait a few months before explanting to see if the Restasis works.
Now I'm more puzzled than ever and unsure what to do.
lurr. At least your symptoms aren't as strange as mine.
I have not read your original thread but it sounds like your Restor implants were fairly recent? It is possible that your cornea is still stabilizing which could account for fluctuating vision. I know other people who had good vision in the morning which deteriorated and eventually improoved when their cornea healed. I agree eye drops could help. At any rate a second or even third opinion is important before taking a drastic step such as an explant. I know it is hard to be patient but it is important to weigh all of the options carefully. My Restor was explanted successfully a full six months later.
To blurr
Thanks for the information about eye drops. I never considered the effects of the ones that have preservatives. I do use the refresh individuals which seem to help alot.
I went for my second opinion and came home depressed and confused. He is an older doctor and doesn't care for multi-focals and doesn't think I should have gotten it since I have glaucoma. He is also not a fan of explanting lenses and didn't recommend that route for me. He only does about 2 a year and obviously doesn't like doing them. The doctor who put them in says he does about 5-6 explants a year and made it sound like no big deal. Who to believe? Who to trust?
Now I'm faced with the decision of what to do with the other eye. Do I leave it alone though I have a small cataract which is barely affecting my vision, do I put a ReStor in that eye, or do I put in a regular monofocal in that eye -- that's assuming I keep the ReStor in my left eye if it the vision ever becomes stable. I do okay with wearing a contact in that eye and with the ReStor in the other eye. I'm leaning toward not doing anything until my cataract affects my vision in that eye and then getting a monofocal. Not an ideal situation since the ReStor works best when in both eyes.
I've thought of getting a third opinion but will that confuse me even more? I'm weary from all this.
I had both cataracts removed in the past 2 weeks. I too, had great reservations about the multifocal lens vs. monofocal lens. My optometrist recommended monofocal lenses and my surgeon acted like there really wasn't a choice but the ReSTOR multifocal lens. I decided on the ReSTOR lenses. After the first surgery I could almost immediately see distance well. There were faint pink halos the first night. The post-op instructions indicated that the pink tint was from the bright lights of the operating microscope and that they would fade away. They did, and were gone by the second day. Close up and intermediate vision returned 3 days after surgery. I'm now 2 weeks and two days post-op and can see extremely well. Results were pretty much the same for my second eye except that the distance vision did not clear quite as quickly. Reading vision and intermediate vision were noticeably getting better much more quickly than the first eye. Distance vision now great in the second eye and reading and intermediate vision is now crystal clear in both eyes. Distance vision is crystal clear in the my first eye. I'm extremely pleased with the results so far. When eating out I can read the smallest print ifrom the menu even in dim light. My wife is jealous that I can see objects and read signs at great distances when driving. I don't quite understand what you mean by "shrink wrap" but this is what I have experienced since my operations. I do see slight halos from oncoming cars, but they seem more like "fish eyes" to me. For me they are more pronounced in daylight than at night. I asked my Dr. about this and he said that they are normal and will go away by the first year. He said that the brain will automatically learn to ignore the optical abberations with time. We'll see. I did not have any astigmatism problems though, and could be why I am experiencing good results. Summing up, I am extremely pleased with the ReSTOR lenses.
I wish GOOD LUCK to all!
I saw my surgeon today and he said he could put in monofocals but I would need progressive glasses for close up work and wouldn't see much of anything without them. I'm worried about the distance that the new lenses will be set to. I really hope I will be able to see the people across the table from me with them?
My doctor is the best ophthalmologist here in Alberta so I have complete trust in him. I'm the first of all his patients that has had these severe problems. He told me to stop using the anti-inflammatory drops and come back next week for more tests. He said the drops may be contributing to my blurriness and I may still have some swelling in the back of my eyes. There is also a slight fold in the capsular bag of one eye.
He can do the surgery next Wed or Thurs but after that he will be away for 3 weeks. If I wait until he comes back that will be 2 months since the Restor's went in. I don't know what to do. Wait and see if my sight improves over the next 4 weeks or have the monofocals put in now and then deal with whatever the out come will be?
I've got a few days to think about it but I'm feeling quite desperate right now.
Any advice out there?
Roncun, you are lucky to have such good results with the ReStor, and according to my doctor representative of his happy ReStor patients. Obviously, they work for a lot of people or I can't believe all these doctors would continue to implant them just for the money.
I'm not an eye care professional, but I've that it is better to do an explant sooner rather than later. It's good to have faith in your doctor, but the choice of whether to have your ReStors explanted (and, if so, the refractive targets for the monofocal replacements) should be made by YOU. (It's YOUR vision, after all.) So my best advice is to make a decision soon.
alicia606 - Sorry this is such a dilema for you. An explant is neither no big deal or something to avoid. It is also not wrong or unsual to seek several other opinions, preferably from a highly experienced eye surgeon at one of the top research hospitals even if you have to travel. Mine was two hours away but I definitley would have traveled farther. Even my surgeon, one of the top in the world had not done many explants but I trusted him to do the surgery because of his skill and honesty. He told me that he would not proceed if when he got in there it was too risky.
I too have a small cataract in my other eye. For now I have left it and will eventually set it as close to plano as possible as my nondominate IOL is set for intermediate. I wear a contact for distance (-7.5).
From what I have read one can do fine with a Restor in one eye and a monofocal in the other so do not be persuaded to get another Restor as this will likely double your problem. Never proceed with the second eye until you can be satisfied with the first.
While it is best to do an explant sooner rather than later, you do have time if you are uncertain. I waited six months while I pondered all my options and sought opinions.Believe me when I tell you, you will know when you have found a surgeon you can trust and that is what it will come down to.
to blurr - yes inflamation (inflammation) and steriod drops can definitely affect vision. I too had a fold in my capsular bag, but a very experience surgeon said many people have this and that it didn't account for the poor quality of my vision with Restor. I believe him . Under no circumstances have a Yag procedure done to make a hole in the capsular bag. Hardly any one will want to risk explant after that. I would wait a little while to see if vision improoves, but not too long once you have determined that your vision is stabilized with the multifocals and that is the best you can do.
Good luck and best wishes to all.
londonbridge
Ron to answer some of your questions, yes I do believe I will be able to speak to my surgeon after the tests on Monday. I will make a list so as not to forget anything. Thankfully I have my very best friend that always comes with me and is very concerned about my well being. So if I miss something he is my backup.
I don't think the surgeon is fully convinced that I should have the explant but said that if it was to be done then sooner is better than later. He said that if done now he can use the same incision as before which he prefers. Later on he will have to make a new one but it can still be done.
The tests I'm having on Monday without dilation will show him if there is still swelling or inflammation in the back of the eye. I guess if there is then maybe that is whats causing my poor vision and I should wait and see if it gets better with time.
Right now I'm wearing 2.25 readers and can see quite well. The ghosting is gone and I even feel less strain on my poor sore eyes.
This morning I went out shopping for a while and found that the glare both inside and outside of the store to be very uncomfortable. Outside I almost get to feel dizzy and sick to my stomach. This must be from the rings on the lenses. Does that ever go away? Do you experience this Ron?
Jodie, I have done a little reading about your suggestion of getting mini-monovision (distance vision in dominant eye, intermediate vision in non-dominant), and am leaning that way. I only hope I can adapt to it easily because it will probably be my last chance at good eye sight. I am a draftsperson and head up the department so on a daily bases I am either sitting at the computer working or standing at the layout table going over maps and drawing with my coworkers. This requires good intermediate vision. I don't have any problem having to wear reading glasses for closer work. Therefore the mini does sound ideal.
Alicia the tear in the bag, as explained to me, divides what I see with that eye in half and offsets the two pictures ever so slightly. I don't think there is any way to repair this. (Another question for my list.)
T too see much better first thing in the morning. It's as if the eyes get tired as the day goes on. I also had pretty good vision the day after my second eye was done. I was really happy for a few days and then the world got all oily.
This weekend I'm going to try to forget about how bad I'm seeing and use only the tears regularly. Maybe things will improve.
I'll let you all know what the doc has to say after my next visit and again thank you for your support.
Blurr, you do seem to have a lot of negative side effects from these lenses. I don't have problems with glare. At night I see these awful concentric circles around lights when outside. I'm driving for a distance tomorrow night so I'll see how I do with that.
I had mini-monovision with my contacts for a number of years and that worked out fairly well for me. My reading vision was pretty much like it is with the ReStor. I still needed reading glasses for some things but it was nice not to be totally dependent on them for every near task.
Good luck with whatever you decide. I can certainly understand wanting them out sooner rather than later if you have all those issues with them. I wish mine was out so I didn't have to think about it any longer. Please keep us updated.
I am on my second week of the ReStor lens in my left eye. If I had known just how poor my vision would be, I would have kept my cataract. My doctor tells me that the ReStor lens didn't center correctly, so I am actually looking through the edge of the lens instead of the center. Needless to say, my vision is not crisp at any distance. I am about 20/30 at distance, but anything closer than 5 feet is a blurr. I have no ability to read with that eye.
After reading all of the posts here, I am even more discouraged. It seems like I have completely screwed up my eye. I also need my eyes to work, and this is a major problem for me.
My doctor mentioned a procedure using laser to widen the pupil so that the lens in effect becomes centered. Has anyone heard of this? I don't think it is common, and it sounds like a science experiment.
Should I just tell her to remove the ReStor and put in a monofocal lens? Is that really my best option? I hate this situation...
I'm having all kinds of trouble adjusting to my Restors but if my problems were because of a bad job then I don't know what I would do.
Alicia - how did you do on your night time drive? It's dark up here in Calgary in the mornings now and I will be driving myself to work tomorrow for the first time in over a week. Hope it doesn't snow....
I saw my surgeon again today and after all the same tests with and without dilation everything came out as it should. He asked me to give it another month and if by then my eyes and brain haven't done they're 'neural adaption' (? not exactly sure what that means) then he will remove them and put in traditional lenses. I was somewhat upset and he knew it. Part of me wanted the surgery right now and the other part just wanted to go home and sit in the dark.
At home on the weekend I was so sure that things were getting better but then today in the office I could hardly see anything even with my readers. Why is it that they work for me at home but not at work? My headache was back and so was the eye pain. It must be the florescent lighting in my office. I have the same problems in the grocery stores.
I guess for now I have no choice but to get a bunch of different strength reading glasses and to suck it up. I'll let you know how I'm doing in a few days.
Still Blurry.
Perhaps you should get a couple of second opinions before entrusting your eye to this doctor again. I'd look for someone reputable who does not tout any so-called "premium" lens.
In my opinion (and that of a few others on this forum) you won't get the maximum of "crisp" vision with any multifocal lens. Whatever you do, don't be talked into a second restor unless you are delighted with the first - you will only get a double helping of trouble.
Regards, Restornomore
Princetonart, I also wouldn't let the doctor do that pupil procedure without thorough research and getting another opinion. How experienced is your surgeon implanting the ReStor lens? Since it's not centered, I'd wonder about that. Mine is centered and I still have issues with my lens. I would get another opinion because if you are thinking of having them explanted, you want someone who has experience doing that.
Get several expert opinions. Your best option may be to explant eventually and go with a monofocal. At least you will have good vision at some focal point. I have one Monofocal for intermediate and a contact for distance in my dominant eye. I use prescription no line bifocals to correct astigmatism and for close tasks over by contact. Eventually I will get a distance monofocal in my contact eye.
My vision is so much more normal feeling with a monofocal. No problems with glare, halos, ghosting etc.
good luck and don't despair.
londonbridge
It's now been 5 weeks since I got my Restor implants. Things do seem to be improving a little each day. I'm wearing 1.5 strength readers most of the time while working on the computer. The grey ghosting around text seems to be diminishing and I can now read clearly at about 13 inches without them although I still feel some eye strain. Night driving is also getting better. The halos aren't bothering me as much as they did at first. I'm probably just getting used to them or my brain is finally doing what it's supposed to and ignoring them. The worst is outside in the daylight. I still feel like I'm looking through a plastic bag. It almost seems surreal. Hopefully this will improve over time as well.
I'm to see my surgeon again on Nov. 20 and I really hope to be able to tell him that I love my new eyes and all is well with the world. We'll see.....
Ron
londonbridge
Regards,
disappointed 66
blurr
Just wondering how you are doing now? We had our surgerys at about the same time. Are things improving for you too? I would really like to know.
Blurr