That is why on the patient I posted with Marfan's the surgical team I referred her to decided not to do a posterior chamber sutured IOL because they did not want to put sutures in the sclera.
It can a little startling when you see new doctors and mention EDS. Sometimes they will say, 'Huh?' Sometimes they gloss over it.
A couple of years ago, I needed hand surgery for a trigger finger, and the plastic surgeon who did it was appalled when his supposed 20-minute job turned into 90 minutes. Slightly wild-eyed, he told my husband that when he got inside my hand, there was nothing he could stitch anything to, because of the friabilty of the tissue. He said it wasn't rheumatoid arthritis, but it was 'something.' Ya think? (I *had* told him beforehand.)
This was my first confirmation of diagnosis by scalpel.
it can a little startling when you see new doctors and mention EDS. Sometimes they will say, 'Huh?' Sometimes they gloss over it.
A few years ago, I needed hand surgery for a trigger finger, and the plastic surgeon who did it was appalled when his supposed 20-minute job turned into 90 minutes. Slightly wild-eyed, he told my husband that when he got inside my hand, there was nothing he could stitch anything to, because of the friabilty of the tissue. He said it wasn't rheumatoid arthritis, but it was 'something.' Ya think? (I *had* told him beforehand.)
This was my first confirmation of diagnosis by scalpel.
I have the hypermobility form of this disorder, generally considered benign, but it ain't necessarily so, and I value your advice re this little-understood condition.
There are many eye complications in EDS. These include retinal detachment, lens subluxation, cataracts, glaucoma, dry eyes, macular problems. For more information read this article by the EDS Foundation http://www.ednf.org/medical-professionals/ehlers-danlos-syndrome-role-collagen-eye-0
I recently helped manage a patient with a collagen vascular problem (Marfan's syndrome). The best approach is usually a combined operation with a retina surgeon doing a vitrectomy, lensectomy, exam of retina and possibly endolaser. Then an anterior segment surgeon putting in an intraocular lens either an anterior chamber IOL or a sewed in posterior chamber IOL. After referring my patient to a University referral center they recommended an anterior chamber IOL So you need a tertiary eye referral center with a team approach to fixing your eye. and likely two surgeons present for the operation a retina surgeon and an anterior segment surgeon.