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Uveitis
If anyone on this forum has been diagnosed with UVEITIS, please let me know.
I posted before, but didn't get any replies.
I've been dealing with it for 3 years, lost most of my vision in one eye, because the optic nerve was partly destroyed. I was put on 3 kinds of drops, dilating and prednisone and one other, and given oral prednisone.
It was recommended that I see a rheumatologist who diagnosed it immediately as being an auto immune disease, a symptom of ankylosing spondylitis (sp) and gave me methotrexate, which put it into remission immediately.
Unfortunately, I developed an inoperable cataract in the bad eye and have lost all vision in that eye.
I'm wondering if there's any new treatments for Uveitis, I'm also dealing with ovarian cancer and receiving chemo for that.
Thanks, Jane
I posted before, but didn't get any replies.
I've been dealing with it for 3 years, lost most of my vision in one eye, because the optic nerve was partly destroyed. I was put on 3 kinds of drops, dilating and prednisone and one other, and given oral prednisone.
It was recommended that I see a rheumatologist who diagnosed it immediately as being an auto immune disease, a symptom of ankylosing spondylitis (sp) and gave me methotrexate, which put it into remission immediately.
Unfortunately, I developed an inoperable cataract in the bad eye and have lost all vision in that eye.
I'm wondering if there's any new treatments for Uveitis, I'm also dealing with ovarian cancer and receiving chemo for that.
Thanks, Jane
MEDICAL PROFESSIONAL
Iritis is a form of uveitis. (like ford is a type of automobile). FYI
Uveitis is inflamation of the middle layer of the eye (uveal tract iris plus ciliary body plus choroid).
JCH MD
Uveitis is inflamation of the middle layer of the eye (uveal tract iris plus ciliary body plus choroid).
JCH MD
Thank you for your comments, and advice Louis.
Three years ago I had tiny black floaters, like tiny insects all the time, and areas of grey smoke floating in my vision. Unfortunately we were dealing with a hurricane in Florida, and all power was lost. In addition we were moving back to NJ at the time as well.
When we moved here, I saw an ophthalmologist who diagnosed eyeritis, he referred me to a retina specialist, who referred me to a neuro ophthalmologist. Lots of eye drops, and prednisone orally, helped slow the destruction of the optic nerve in the left eye.
By the time I saw the rheumatologist and got the diagnosis, and Methotrexate, most of the optic nerve was gone.
That's why they consider the cataract surgery unnecessary, it would give me so little vision, I had described it as being as if someone had thrown snow on a screen and I was seeing patches of vision through the snow. That's what surgery might give me back.
Thankfully my right eye is fine, for now. Thank you again for your post, I wish you well.
Jane
Three years ago I had tiny black floaters, like tiny insects all the time, and areas of grey smoke floating in my vision. Unfortunately we were dealing with a hurricane in Florida, and all power was lost. In addition we were moving back to NJ at the time as well.
When we moved here, I saw an ophthalmologist who diagnosed eyeritis, he referred me to a retina specialist, who referred me to a neuro ophthalmologist. Lots of eye drops, and prednisone orally, helped slow the destruction of the optic nerve in the left eye.
By the time I saw the rheumatologist and got the diagnosis, and Methotrexate, most of the optic nerve was gone.
That's why they consider the cataract surgery unnecessary, it would give me so little vision, I had described it as being as if someone had thrown snow on a screen and I was seeing patches of vision through the snow. That's what surgery might give me back.
Thankfully my right eye is fine, for now. Thank you again for your post, I wish you well.
Jane
I have had uveitis for 22 years. I'vs had bilateral cataracts removed, 3 vitrectomies (2 emergently). 18 methylprednisolone injections in left eye and 1 in right (also 1 kenalog inject). I have taken methotrexate, cellcept, iv Remacaide and currently sq injections of Humira. You have been very lucky to get an underlying diagnosis of ankylosing spondylitis. My chronic uveitis is called "idiopathic" which means none of my doctors can figure out the underlying auto immune disease causing this. You stated you have an inoperable cataract which is blinding one eye. I would seek another opinion.
My cataract went untreated for years until another opthamologist saw it and set up my surgery. I will never forget that moment when I sat up in the OR after the cataract was removed. Even with the lens over the pupil (that stays on for a few hours after surgery) I COULD SEE for the first time in years. You must be very diligent about your care. Even though is can get very frustrating at times, you have to constantly ask questions. And if the doctors don't like your attitude, then get different doctors. There are lots of eye doctors and rheumatologists out there. Keep fighting until you get what you need.
My cataract went untreated for years until another opthamologist saw it and set up my surgery. I will never forget that moment when I sat up in the OR after the cataract was removed. Even with the lens over the pupil (that stays on for a few hours after surgery) I COULD SEE for the first time in years. You must be very diligent about your care. Even though is can get very frustrating at times, you have to constantly ask questions. And if the doctors don't like your attitude, then get different doctors. There are lots of eye doctors and rheumatologists out there. Keep fighting until you get what you need.
MEDICAL PROFESSIONAL
That just means I've read the response and feel no need to answer. You asked for responces from people diagnosed with uveitis. I certainly have a lot of patients with uveitis including a 24 year old with bilateral acute iritis that came in last week.
There may be more we don't know about uveitis than we do know. Many schools of medicine have an ophthalmologist that specializes in unveitis. A rheumatologist is also helpful.
You live in New Jersy there are a lot of good ophthalmology departments in that area. John Hopkins Wilmer Eye Insitute, Wills Eye Hospital in Philadelphia, Mass Eye and Ear Infirmary, Tufts,
JCH MD
There may be more we don't know about uveitis than we do know. Many schools of medicine have an ophthalmologist that specializes in unveitis. A rheumatologist is also helpful.
You live in New Jersy there are a lot of good ophthalmology departments in that area. John Hopkins Wilmer Eye Insitute, Wills Eye Hospital in Philadelphia, Mass Eye and Ear Infirmary, Tufts,
JCH MD
Dr. Hagan,
As you can see, there was no response written in your space under my question. Please post it again, I'm very interested in your reply.
thank you,
Jane
As you can see, there was no response written in your space under my question. Please post it again, I'm very interested in your reply.
thank you,
Jane
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