I'm a 21 year old female who was born with Congenital Heart Disease. I have undergone multiple corrective procedures. However, I am having a pulsating visual aura all day overtop of anything I look at that is bright. I see this in my peripheral vision, mostly in the right of my visual field. My color vision has become duller and I am extremely sensitive to brightness. Anything that is slightly bright appears to have major glare on top of it. This has also made me have a hard time seeing things that are close in contrast. I have seen an opthamologist, however, do not feel that I have been properly diagnosed. All I really understood is that my optic nerve is swollen. However, my complaints of the pulsating aura seemed to have been overlooked, in my opinion. I feel like I'm going crazy, as it doesn't make sense that I see this all day and there is nothing that can be done to help it. I saw a similar post in which it was recommended that the aura could be associated with Heart Problems. If you have any information on this, could you please let me know. I have had an MRI done on my Brain/Orbits which did not show MS. My ERG was delayed and my OCT showed some swelling of the optic nerve that I was told could explain the glare. At one point I was told it was cone dystrophy and at another I was told it was optic neruopathy. Because there was never a reason why the diagnosis changed, I'm feeling as though I have been misdiagnosed or something has been overlooked. Due to my long history with heart disease I'm curous to find out about how it could be related. Any input about my condition would be greaty appreciated.
In a typical episodic scintillating scotoma these can be caused by heart or heart valve disease flipping small emboli to the visual cortex of the brain. Your description is not typical of heart problems.
I suggest you find the best neuroophthalmologist in a three or four state area and visit him/her.
Thank you for getting back to me. I'm visiting my neuroopthamologist in a few weeks so I plan to see if I can get any clarification from him. If not, I may seek out another doctor. I really appreciate you answering my question.
This site complies with the HONcode standard for trustworthy health information.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.