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What sort of hope is around the corner for retinitis pigmentosa?

What sort of hope is around the corner for retinitis pigmentosa?

My 18 y.o daughter has retinitis pigmentosa. Would like to hear from other parents whose children have the same disease?  Does anyone know about Scheie eye Institute in Philadelphia?  We've been referred there.  I'm simply curious about other individuals and how the disease affects their lives.  Hope to hear from someone! Thanks.
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Go to this website for more information:

http://www.blindness.org/index.php?option=com_content&view=article&id=50&Itemid=67

JCH MD
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