I woke up with a
brightBright beginnings spotBirthmarks - pigmented
Liver spots
Measles, koplik spots - close-up
Mongolian blue spots in my eye 4 days ago, and a smaller, much dimmer image of it is still present. When I say
brightBright beginnings spotBirthmarks - pigmented
Liver spots
Measles, koplik spots - close-up
Mongolian blue spots, it's like the after-effect of a camera flash, and then it fades out slowly. I have had this phenomena before, but it usually fades away anywhere from minutes to a few hours. I always chalked it up to
ocularMelanoma of the eye
Ocular lubricant
Tonometry migraines, as the doctor said my eyes are perfectly healthy. Well, this
spotBirthmarks - pigmented
Liver spots
Measles, koplik spots - close-up
Mongolian blue spots hasn't gone away and it's making me nervous. I went to the doctor yesterday, which was two days after it appeared, and again, perfectly healthy eyes was my diagnosis. He said that it was probably an ocular migraine and should fade within a day or two. But, it hasn't and now it seems to be permanently there, in the left corner of my vision of my left eye. It's almost like it "burned" itself there and it is now a sivler spot when I blink, or when I go from a dark to light room, or look at the sky/bright walls/computer screen. It can also change color depending on what I look at-anywhere from green to pinkish/purple to blue. It stays in the same place and doesn't bounce/move like my other floaters. I thought it might be related to my sinus/ear infection (pressure), but I've been on antibiotics for 6 days now and I'm not sure if there's still pressure. I can't stop thinking about it, and as soon as I think it's gone, it's there again, like hide-and-go-seek, except I don't want to play anymore. I will continue to pray for healing, but does anyone have a suggestion as to what it could be? Thanks
JCH III MD
i have had several field tests and an oct, as well as a fluroscein angiogram during the first episode, still no diagnosis.
i am leaning towards some kind of permanent migraine aura, as everyone keeps telling me my eyes look fine. i am going to have another FA during the next episode, and will probably see a neuro-ophth after that.
anyway, you might want to have a look at this site:
http://www.cmaj.ca/cgi/content/full/173/12/1441
is excellent and all those that post here with spots, blobs, blind areas or a personal or family historyof migraine should read this short medical paper.
JCH III MD
like you, i was told me retinas look perfectly healthy. it's very worrisome. sometimes i can go for months without thinking too much about it, other times i am pretty much a nervous wreck.
let me know how things go for you - i'd be very interested to know.
take care
mel
no, i wouldnt' say my central vision is "messed up" but i do have many, many of these spots that i can see on an amsler grid (or anything else of contrast for that matter). so the constant reminder is there and i am always dreading a "new episode".
i wish i could share some wonderful coping strategies with you in regards to the uncertainty and anxiety this causes me, but i'm afraid i'm not too good on that front, particularly since my last episode in may. still trying to ground myself following that triple-whammy (three spots in three weeks).
HOWEVER - you may well be experiencing a one-off phenomena! your spot will most likely fade both from your vision and from your memory. let's hope so.
please let me know how your exam goes. odds on you'll get a clean bill of health ...
JCH III MD
JCH III MD
however, as usual, the residual scotoma is there.
it's sooo hard to get my anxiety under control when this keeps happening.
i am looking into valproic acid or the like as a prophylatic? have you heard of that for retinal migraine?
JCH III MD
JCH III MD
that's reassuring you can't see you spot on am amsler grid. i can see mine. horizontal blinds are filling out any kind of form with all those lines are both nightmares. ditto striped, door frames ... i wonder why my brain doesn't tune them out??
Like everyone else I become aware of it when there are contrasting light and dark backgrounds (venetian blinds are the worst!) and can really notice it when I blink my eye, especially when looking the sky while doing it. I'm sure I look strange walking down the street while doing this. I can sometimes still see it with my eyes closed. Which for me is why it reall reminds me of a camera flash too. They also tend to be pretty small. Over the years I've had many more episodes of this, but the spots tends to go away after 3 or 4 days. A few years back I did get another small one that seemed to stick around.
Just recently I got another "camera flash" off center in my left eye that's still there a week and a half later, so I'm chalking it up to being permanent I guess. I went to the ophthalmologist and, like everyone else, got a clean bill of health. This worrys me a little because it's a little bigger than the others.
It's only a minor annoyance but I too am worried that one day I'll get one right in the center of my vision.
I guess there's solace in the fact that in 14 years I haven't got one in the center yet so.......
Anyways, just sharing that there are indeed others out there with the same problem. It's good to know I'm not alone :)
i would say about 80% of my spots are permanent. they are exactly as you describe. i have recently moved and the house has venetian blinds everywhere - BLAH.
i agree that they are a minor annoyance - it is the fear of one appearing smack-bang at the point of focus (or directly to the right of it, as far as reading effectively goes) that absolutely terrifies me.
i took take solace in the fact it's been 10 years and i haven't got one in the center yet.
can i ask what tests you've had and whether any doctors have attempted an explanation?
until reading this thread, and particularly your post (with you history of multiple episodes with residual effects) i truly did feel i was all alone in this ...
Like you, I tend to lean toward some sort of permanent aura from a migraine. I seem to be prone to migraines. When I was in middle school I would get migraines with auras and headaches. The auras I would get then would practically blind me, and start mainly in my peripheral vision, but would go away within a few hours. I don't get those anymore but these little spots I get now remind of smaller versions of the auras I would get in middle school.
I also had an ocular migraine without a headache about a year ago. It was the kind that start out small in the center and grew pretty fast into the, I guess what's called, scintillating scotoma. It was gone within an hour though.
Given those two things I tend to think what we're experiencing is something like a migraine, but the auras persist. Also given the fact that doctors really can't tell what's going on by looking at the eye it must be something in the brain. The other weird thing is that I can still see the spot when my eyes are closed, which further leads me to think it's in the brain and not the eyes.
Like you, mel, I obsess about them when they come. I eventually just try to forget about them and I ususally can until another one pops up.
One thing I think we can ease our minds with is the fact that, if this were something that did cause people to eventually go blind, more docs would know about it, hence probably more research....so an so forth.
I suspect it's probably something benign and mainly confined to the peripheral vision. I hope so anyway....
Keep me updated as it's good to know there's someone else who's dealing with this.
I was going to ask you whether you had a history of migraine with aura. mine started when i was about 10, persisted throughout high school, college, then tapered off in my 20s. now i get one every few years, but it doesn't develop into a full-blown headache.
as for the location of these damn spots, mine are definitely in my central vision. can you see yours on am amsler grid? my amsler grid is pretty messed up. they are not right at my point of focus, but pretty close to it.
also, are they "positive", "negative" or a combination of both, depending on what you are looking at? (I mean, do you see it always as a greyish spot or are things "missing" ...)
i agree it's good to someone else is dealing with this strange thing,m especially when so many doctors have looked at me blankly when i try to describe it.
take care
jsparp29, my spots are pretty central actually, much like what soplussed described. i'd be interested in your answers to his/her questions.
soplussed, when did your spots start or did you just become aware of them?
soplussed, yes my spots are also sometimes 'positive' and 'negative'. They're mainly 'negative' when I don't blink and something passes through the spot that doesn't really contrast with the background
For example, when looking a white computer screen and I pass the mouse pointer across the spot the pointer just disappears.
The spot is 'positive' when the backgrounds contrast or I blink.
Are you guys able to see the spot just after you close your eyes? I can sometimes.
nancydrew, it's good to hear your doc seems to think it's fine. That's reassuring.
i can see the spots with my eyes closed for a few days/weeks after the first appear. once they settle down and become scotomas, i can no longer see them except under the conditions you describe above - positive when i blink, negative when i pass the mouse through one, etc.
so you can see them on the amsler grid? that means they in the central 10 degrees of vision, ie the macula. same as mine.
tell me, how do they manifest on the grid? as missing bits? as grey spots? also, how many do you have, roughly?
i can't tell you how reassuring (not sure if that's the right word) to talk with someone going through the same ...
mel
I've been wanting to go to the doctor about it but from reading everyone else's posts it almost seems like a waste of time.
I'm new to this board, but I've had my original blind spot for 2 years, a new one cropped up a week ago, and I think another new one is starting as of an hour ago. All three are in my right eye.
I've had the visual field and OCT tests numerous times, my eyes are healthy, the ophthamologist can find nothing wrong. They started out as a "camera flash" or as though I looked at a sun glare, and then faded away to a blind spot. They're highly noticeable on an Amsler grid, or against the sky, computer screen, lampshade, etc.
I decided to take it to my family doctor and see if she can recommend other tests (maybe an MRI or CT scan?) to figure out what this is. I see her this coming Tuesday, and I will post here when and if we figure this out.
By the way, I'm female and 33 years old. No other health problems except for seasonal allergies. I am tired of paying my opthamologist for the same expensive tests over and over again, which never show anything. Insurance doesn't cover 100% of every test, and now I have a hefty bill over there.
It's back to "normal" today, less obvious but still there every single time I blink.
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