dilated pupils

My daughter has got dilated pupils since birth, b'coz of that she can not open her eyes properly in sunlight and even when indoor  she is studying or drawing, she doesn't open her eyes properly. Though she uses specs, she has to give strain on her eyes while studying.  We have done her eye checkup from experts in our area. Each doc said it's a very rare condition and there is no cure for this. We can only wait and watch.

If anybody know about any person with  similar kind of problem, how he /she handled studies and how is life going with this problem.

[John C Hagan III, MD, FACS, FAAO]

It is likely the child can be helped but you must do some research and may need to travel very far to an advanced eye surgery center.

1. If the child has no pupil (aniridia) or part of the pupil missing (iris coloboma) or the pupils are large and don't close down ( idiopathic mydriasis) then there are artifical iris's that can be inserted into the eye to make new pupils (they don't move or get smaller but they create a small round opening) Last time I looked they were manufactured in Germany by Morcher.
2. I would start with the most famous medical schools in your country and then check with the pediatric ophthalmology department.

JCH MD

[John C Hagan III, MD, FACS, FAAO]

It is likely the child can be helped but you must do some research and may need to travel very far to an advanced eye surgery center.

1. If the child has no pupil (aniridia) or part of the pupil missing (iris coloboma) or the pupils are large and don't close down ( idiopathic mydriasis) then there are artifical iris's that can be inserted into the eye to make new pupils (they don't move or get smaller but they create a small round opening) Last time I looked they were manufactured in Germany by Morcher.
2. I would start with the most famous medical schools in your country and then check with the pediatric ophthalmology department.

JCH MD

[kimtanu]

Thank u Dr JCH for ur reply, u have given me hope. I'm always worried abt her future. pl tell me when r u going to start treatments in India. At what age my daughter can be treated?

Further I want to tell u, what her doc told us, there is a small membrane on her pupils b'coz of which her pupil size is fixed, and does not constrict to light. also I have noticed that her pupils are spread such way that its upper border touches her iris border. I mean to say in normal eyes the 2 circles never touch each other, but in her eyes inner circle(i.e. large pupil) touches outer circle.
Artificial iris's that u have suggested are removable or fixed surgically ? With these can she open her eyes like us ?
pl reply sir

[John C Hagan III, MD, FACS, FAAO]

Please understand that I cannot diagnose your child's problem. India has many fine ophthalmologists and good medical schools. See if you can get your child to a medical school ophthalmology department and ask them about artifical iris. It sounds like your child has more problems than just fixed pupils.

JCHH MD