marcus gunn syndrome

my first child my daughter now six &half yr.born normally but after 6-7 hr delivery pains.birth wt 3.4kg.2-3hrs after birth when I was feeding her I noticed her left eye opening & closing with each squeez of the nipple.At that time doctors said it will be fine after a month or two.for last 6&half yrs she is so that with chewing the upper lid moves up & down   when she wakes lid is down.I have seen that keeping mouth open &moving the lower jaw right & left also moves the lid .lid is down when the jaw is to left i-e to the side of effected eye.Now she is realizing it by herself  in school what her classmates say  what every new person ask  no need to tell.she is loosing confidence day by day  although i am preparing her to accept it boldly .she does not want to go to school .tell me how this could be corrected or at least minimised .surgery . medicines .eye exercise.if surgery then what is the right age.I AM RESIDING IN U.A.E.GOD BLESS YOU ALL.

[John C Hagan III, MD, FACS, FAAO]

This is one of the best references I could find:

http://www.emedicine.com/oph/topic608.htm

You shouldhave the child seen at a medical center/University teaching hospital and she needs to see a neuro-ophthalmologist and a pediatric ophthalmologist.

JCH MD