I am a 50 year old woman who was diagnosed with Pseudo Papilledema in 1983. I took Diamox for approx 3 years and my symptoms subsided so I discontinued the meds. I am now occassionally noticing temporary loss of vision in a portion of my field of vision which is very similar to before, but without the "golden-red glow" I used to experience. Mostly I am noticing this occurs at night. I have no headaches, no problems losing my vision upon standing up. Do I need to be concerned about this? I go to my regular eye doctor about every 2 years and he has not noticed anything unusual but it has been about a year since I last saw him. Any recommendations you can give me would be helpful. Thanks.
Please check your medical records. It's unlikely you were treated for "pseudopapilledema" with Diamox. You most likely had "Pseudo-tumor cerebri" a condition that causes true papilledema and is treated with Diamox.
Yes, you need to see an ophthalmologist (Eye MD physician) ASAP as your symptoms could represent a reoccurrence. Or if you saw a neurologist you could see him/her also.
Please understand in Pseudo-tumor there is no brain tumor. The optic nerves are swollen and have true papilledema. (It looks like there may be a tumor). The cause however is the cerebro-spinal fluid being produced too fast leading to increased intracranial pressure (determinded with a spinal tap). Diamox reduces the production of cerebral spinal fluid.
An alternative name for the condition is Benign Intra-cranial hypertension. This is less preferred as the disease, left untreated, can cause blindness.
The typical patient is an overweight female and the condition sometimes improves in both genders with weight reduction. It can be caused by medications including large doses of Vitamin A and tetracyclines.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. MedHelp is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.