I am a 50 year old woman who was diagnosed with Pseudo Papilledema in 1983. I took Diamox for approx 3 years and my symptoms subsided so I discontinued the meds. I am now occassionally noticing temporary loss of vision in a portion of my field of vision which is very similar to before, but without the "golden-red glow" I used to experience. Mostly I am noticing this occurs at night. I have no headaches, no problems losing my vision upon standing up. Do I need to be concerned about this? I go to my regular eye doctor about every 2 years and he has not noticed anything unusual but it has been about a year since I last saw him. Any recommendations you can give me would be helpful. Thanks.
Please check your medical records. It's unlikely you were treated for "pseudopapilledema" with Diamox. You most likely had "Pseudo-tumor cerebri" a condition that causes true papilledema and is treated with Diamox.
Yes, you need to see an ophthalmologist (Eye MD physician) ASAP as your symptoms could represent a reoccurrence. Or if you saw a neurologist you could see him/her also.
Please understand in Pseudo-tumor there is no brain tumor. The optic nerves are swollen and have true papilledema. (It looks like there may be a tumor). The cause however is the cerebro-spinal fluid being produced too fast leading to increased intracranial pressure (determinded with a spinal tap). Diamox reduces the production of cerebral spinal fluid.
An alternative name for the condition is Benign Intra-cranial hypertension. This is less preferred as the disease, left untreated, can cause blindness.
The typical patient is an overweight female and the condition sometimes improves in both genders with weight reduction. It can be caused by medications including large doses of Vitamin A and tetracyclines.
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