retinal pigmentosa

Posted By carol jackson on March 02, 1999 at 22:33:54:







I am a newspaper reporter in Batesville, MS.  I was asked by a woman to do a story about her friend in an attempt to get the friend some financial help and medical information.
The friend has two children, a boy 8 years old and a girl 6 years old.  They have both been diagnosed with RP.  The boy has lost 50% of his sight.  The girl has been diagnosed but the deterioration has been slight to this point, though she does need glasses, but can't wear them according to the mother.
They are seeing a Dr. John Elfervig in Memphis who tells her that nothing can be done, but there is ongoing research.  
This woman is a single mother living on salary of a part-time librarian at the elementary school, SSI for her son, Medicaid for the children, and food stamps.  
Is there anything that this woman can look to for help for her children's RP?