I have retinitis pigmentosa, now I have been diagnosed with bulbar palsy, possible ALS. My queston is do you think the bulbar palsy could be genetic and linked with the retinitis, maybe as some form of a dystrophy? Have you ever known or heard of someone having these symptoms and having it be genetic? Should I see a genetic specialist? I have seen several neurologists and only one sems to think they are linked. In order to rule out ALS, I have to find someone to help see if there is genetic testing for this.
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