Hi,
I'm sorry to hear that this has been so long lasting and has been causing such a decrease in your quality of life.
It sounds to me that you have had serious causes ruled out with your previous consults and investigations (I'm assuming you had an Xray, CT, or MRI with the respirologist).
Without knowing your full history or having examined you, I think that your pain is likely
muscularBecker's muscular dystrophy
Duchenne muscular dystrophy
Muscular dystrophy
Muscular dystrophy - resources in
natureNature-throid
Natures tears. I would suggest continuing with regular stretching and adding massage and an NSAID (eg ibuprofen) to your regimen to see if you find any further relief.
If you are getting worse or are having new symptoms, make sure to follow up with your physician.
Good luck,
JMK MD