I've been using a Fentanyl Patch since early 2001 to treat chronic pain/Fibromyalgia. I began at a 50 level, went to 75, and then went to 100. Realized that 100 was too strong, so went down to 75 once again. Over the years I have tried to decrease the amount, or sometimes increase it, but I always did best both mentally and painwise at the 50 level.
Without this pain killer my life would not be worth living. And yes, I have tried many other types over the years, including various pain relief regimes, none work as well as the Fentanyl patch for me.
I also want to note that I do not get "high" on any narcotic pain meds - they only give me relief, nor have I ever in my life abused narcotic and/or prescription meds. I do know that is a problem for many of you. If it is, please don't blame that on the medicine - if you have a problem with a med because you believe that YOU will abuse it, who actually is the Demon? The drug? Or You?
All I know is that Fentanyl has given me a life, and I'm sure it has successfully helped many others in their quest to be pain free.
My name is Mollyrae, founder of the chronic Pain Couch. As I read your post it reminded me of when I began the Patch.
I'm not here to be a Debbie downer, I only want you to know what you've gotten yourself into. As a patch user for many years, I found that it was altering me for the worst. I had memory problems, I was tired all the time, my nerves started burning especially in my arms and the biggest problem of all was the upcoming surgery that was needed in my cervical area.
Immediately after waking up on the surgery table I was in the worst pain I had ever felt. The pain meds they were giving me did nothing to help the pain after the surgery. I was sent to the ICU so that they could control the pain. I was given drugs to keep me in a constant drowsy state for 4 days until I could stomach the pain.
The culprit in all of this was the Fentanyl I was taking. My tolerance was so high that nothing the surgeon gave me or the standard drugs that should have kept anyone comfortable were not keeping me sane, I literally lost my sanity. I was then sent home with BIG drugs like the fentanyl with an increase and dilauded. By the way, the surgeon was upset that I was on this dose of fentanyl which was 125mcg's every 48 hrs. He called my Doc and reamed him out.
After I was sent home and healed enough, I asked my Doc to take me off of the Fentanyl which he gladly agreed. It took me 6-7 months to wean off of the drug. Let me tell you, it was the hardest thing I have ever done. I have never been so sick with withdrawls. I was going down 12.5 every month and was sick the entire time I was cutting back.
Now I realize that this drug works for pain, don't get me wrong. It's just that this drug is so strong that it really should be left for cancer patients as it was intended for. Many patients cannot take the fentanyl withdrawl.
I fret the day you will not be able to get the fentanyl, whether or not it be from something happening with your pain management clinic to a natural or un-natural disaster that's quite possible these days. Who knows in today's World. In any respect, you'll be one sick puppy.
So, to sum this up, I guess I am just warning you of the power this drug has. If you search here on MedHelp, you'll find many, many horror stories concerning this drug.
I really hope your group works out for you and it's very successful.
My very best,
Mollyrae- Founder of the Chronic Pain Couch
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