Just had Laparoscopy- BUT I STILL HAVE ALOT OF PAIN- Anyone else have this?

Hello all: I just had a laparoscopy done a few weeks ago and my doctor said she found alot of really deep endometriosis.   She said the thinks this is what was causing all my really painful cycles and probably my infertility (we've been trying for 3 years).   She removed as much endometriosis that she felt was safe, but said she had to leave some because it was too risky.  

I really thought this would have helped with my menstual pain and maybe be a course for pregnancy, but AF, or as we call it my house T.O.M. (time of month) came yesterday and it was worse than i've had in years.   It was so bad I was considering going to the hospital because I was losing vision and feeling faint.  Once again I am overdosing on pain meds to function.

Has anyone else has anything like this happen?   My husband, who is really smart, thinks that maybe this is painful because my organs are still healing from the surgery.   I don't know if that's right, but I have to HOPE it will get better.  It's no surprise I have endometriosis, but shouldn't this have helped... even a little bit?

[mslkpage]

I had my lap on 12/06, but no endometriosis- just a bunch of adhesions and one cyst were removed. So, I'm really not much help here. Have you called your doctor and asked about it?

[Lea2001]

I want to and my husband is telling me to, but I am afraid of becoming a pest.  i don't want to be one the "high maintenance" aka "pain in the butt" patients.   And even if i tell her, she can't do anything... it's just the way my body was made.   I don't know if there's a benefit to whine about it.

[anniesland]

I had a lap done in july, My dr told me i had sever endo too, one of my tubes is dead! I started getting the pain back 1 month after the surgery! The dr told me my endo was growing back fast! I would go to your dr again, who cares if your a pest i know the pain and feel if you need help with it go!!!

[mslkpage]

I know you don't want to be a pest, but there's no harm in calling and checking with the nurse. If the pain is still that bad, just tell her you wanted to know if it's normal or not.

After my lap, I called 4 times. Once because one incision looked too puffy and red, the second time was because I was having some sciatic nerve problems and worried it was a blood clot, the third time was because I forgot to get an excuse for missing work, and the last time was because AF was late (skipped it, really) LOL!! Now THAT'S being a pest! :)

[anniesland]

No thats not a pest LOL My dh says the fertility clinic must hate dealing with me LOL cos i call about every fiddle fart!!

[anniesland]

Pretty much LOL

[mslkpage]

So basically, when Lea says she doesn't want to be one of those "pain in the butt" patients, she's talking about us!! :)

[Lea2001]

You guys are too Frickin Much!   But thanks for making me laugh!
Actually, I went back to the doctor today to begin my next cycle of treatment and I found out why I was hurting so much... I have a cyst the size of a quarter that is growing in my uterus and seems to be bleeding into itself.  

That explains the pain.   So this cycle is canceled and i have to wait until next cycle to see if it takes care of itself because it may be something left over from the lap.  

You'd think they would have told me this was a possibility.   Now I am devastated.   I have never had a cyst and I don't know what to do... don't you think they should look at it again in a week or so to make sure it doesn't grow... it has grown to this size in just 3 weeks.  what the hell???

[mslkpage]

Glad we made you laugh...don't worry about being the problem patient when there are women like us who really drive the doctors and nurses crazy!

Sometimes, those cysts will shrink up on there own. I think with my ectopic, I developed a large one after taking Prometrium, but it got smaller. Another one was found on my right ovary during the lap, and the RE removed it...I don't know what the difference was, but I guess he didn't think that one would go away on its own.

[Lea2001]

Thanks. :-)

[bev62]

Just hang in there, the laparoscopy may be just what you needed to get pregnant.  I went through the same thing with endometriosis.  I started with a tubal reversal, then went through 5 IVF cycles with no luck.  We had given up.  I had lap surgery because of the endometriosis and they had to take one of my ovaries out because it had totally covered it up.  After that I was sure I would not be able to concieve (conceive). Two months later I was pregnant.  We couldn't believe it after trying for 10 years and spending over $60,000. Everything went perfect. After giving birth my doctor tried to talk me into having a hystorectomy because the endometriosis was so bad.  But I still wanted one more child so I refused. Two years after giving birth to a beautiful baby boy I had to have another laparoscopy for the endometriosis, by this time I was 40 years old.  The very next month I was pregnant. During the surgery they also ran dye through the one tube I had left. The pregnancy was alot harder because of several complications, but in the end we had beautiful baby girl.  Six months after having Lauren I did end up having a hystorectomy. We have truely been blessed, things didn't always happen in the time frame that we wanted, but in God's time He gave us two beautiful babies. Hang in there, and believe me I've learned DON"T EVER GIVE UP!!!