Fibromyalgia & Thyroid

[Black_Pearl]

Hello!!

I searched the Internet, read articles, and i could not understand or get a clear idea about the relation between Fibromyalgia & hyperactivity of Thyroid, if there is any?

can i get any help?

looking forward to get your response

[PlateletGal]

"The mix of treatments needed varies from patient to patient. There are some abnormalities that are common. For instance, close to 100% of individuals with these syndromes have low thyroid. This is, however, usually not picked up on the standard blood tests because the TSH is not elevated in these individuals due to pituitary dysfunction. Many of these individuals will also have high levels of the anti-thyroid reverse T3, which is usually not measured on standard blood tests. In addition, the majority of individuals can also have a thyroid receptor resistance that is not detected on the blood tests. Consequently, thyroid treatment, especially with timed release T3, is effective for many patients. T4 preparations (inactive thyroid) such as Synthroid and Levoxyl do not work well for these conditions."

Kent Holtorf, M.D.  --- link to article: http://www.immunesupport.com/fibromyalgia-treatment.htm

[Black_Pearl]

I have been suffering from Fibtomyalgia since i was a 5 years old kid
and in my country , there was no pain doctors, or let's say, ones who can diagnoze FM.
any way , i found about it on the internet, i visited a physician out of libya, and he confirmed to me that , FM is what i have. during the diagnosing trys through my life, i never had a problem with Thyroid. or any other hormones or Antibodies.

a year ago i started feeling the palpetation, any way as Fibromyalgia patient i had no treatment yet, by coincidence, i found an indian doctor ( Neuro) who knows about it, first thing he asked for is blood test, and i found that my TSH is very law, and the T3 & T4 are very high.

I'm on medication for the thyroid issue : Carbimazole ,, and for the joint & muscles pain, I tried every pain killer, mucsle relaxant i foung, and nothing works.
I'm feeling so despert

I can not get any second openion here, because there is no any
I'll try any advice i receive

[PlateletGal]

Hi... Check your inbox.  I sent you a private message with some links that you may find to be of help.

Good luck !

[Black_Pearl]

I appreciate your concern and help

[PlateletGal]

You bet !  I hope the information I sent you was helpful.

[dottypotty]

My best friend has being told she has both and thats what has made her put on 4 stones in 4yrs She is to ill to come on net Ihave fms to

[cat9841]

I also have fibromyalgia and just found out I have a high t-3, is this something to worry about. every muscle and joint in my body hurts, I am overweight too, also though I love to eat, so maybe I am just to fat??? any suggerstions would be appreacheated. my app with thyroid doc isn't till end of april, help me please.
CAT

[kitonthemoon]

Not all FMS patients have dysfunctional thyroid.  I have both CFS/ME, FMS, Addison Disease, and other conditions.  My thyroid was fine until last year.  Now I have hypothyroidism which is more than likely due to Addison Disease.  I suppose if we are left without much good medical help, our condition worsens.

There're medication that will make you gain weight, besides hormonal problems. I try to do strethcing whenever my physical conditon allows.  Some days, the fatigue is sooo bad, I can barely move and will myself to stretch.  In general, I do find stretching help ease up the pains.

Some doctors though, suggests that FMS, ME/CFS tend to have abnormal cortisol and thyroid hormones.....

Kit.

[dottypotty]

Hi ya my friend has a under active thiroid. She has fibro They are now saying that is why she puts on weight. dorothy.

[PlateletGal]

You say that you may have Addison's disease. Has your Endocrinologist ordered an ACTH stimulation test to rule it out ? Had my result been one point lower, I would have been diagnosed with Addison's, instead of CFS.

Best.

PlateletGal

[kitonthemoon]

Hi,

I wasn't diagnosed with Addison until I had my very first, full blown, Addison Crisis, although my cortisol was extremely low before that.  As you may know that ME/CFS symptoms overlap with so many different illness, it is difficult to tell which symptoms  is what.  I didn't have ACTH test,  as my ME/CFS is very severe and my doctor doesn't think I will survive the time consuming stimulation test. Since it is not crutial (Idon't believe it is, or is it?,) for diagnose Addison

I think my Addison is caused by worsening of ME/CFS, since patients with ME/CFS tend to have low cortisol to start with.   Don't you think?  In any event, you're very blessed to not have Addison.......which only makes one feel far worse than having ME/CFS alone.  

Thank you for your suggestion about ACTH.  I really appreciate your input.

Happy Weenkend
Kit