Frequent Urination and Dizziness

[tamlloyd]

I have been experiencing major changes with my fibro symptoms such as frequent urination and dizziness. The dizziness literally feels like someone is picking my head up and shaking it....even when I'm sitting still. Does anyone else have this going on? Sometimes I sit and I really think I'm about to lose it. The insomnia meds don't work. I take Klonopin 100 times a day just to stay sane and keep from going off on my coworkers. I just don't know what else to do. I'm lucky I have a supportive husband but I've basically given up on my friends b/c they'll never understand. HELP!!!

[tamlloyd]

Anyone there?

[PlateletGal]

Hi tamlloyd,

I'm sorry to hear about your symptoms. I also have dizziness and frequent urination... been there and done that (unfortunately) for many years now. I can tell you that it is common --- at least for those of us who have CFS. I'm sure the same goes for people with fibro... I know the dizziness does.

One suggestion that I can give you is to check out the Marshall Protocol. (google Marshall Protocol + success stories).  It is a research protocol that I'm on and I am getting better. I can actually tolerate gluten now ! The treatment does NOT use research medications and a physician can easily prescribe the necessary medications.

If you are interested in finding out more, click on their General Discussion board and the first link you will see is, "Request for Doctor's List". Put in a request for the state you live in and a Moderator will send you a list of names of MP physicians in your area, via PM (you have your own e-mail account on the board).

I think you will enjoy looking at the board and reading the comments that some members' write. (not all people on the MP use the website) ---- "Progress Notes" and "Success Stories" especially. They have some fibromyalgia members' on there too and getting more and more every single day.

[snootynan]

I am suffering from that too.  I cannot get any answers.  I have another appt today.  I don't have the frequent urination, just the dizziness, vertigo and unsteady legs.  This has been going on for almost a year now.  I do have fibromyaglia and I'm begining to think that this is just another part of it.  I also, have what the doctor's thought was bell's palsy, but that was ruled out and they are still trying to figure out what that is.

[monaeileen]

fibromyalgia for 30 years or more, now I have degenative disc d. Does anyne else have this does fibro lead to this after your have had it for so long.

[Cry Baby]

I Have FM and have suffered with dizziness for years.  I take over the counter med's for motion sickness and that helps! I have been checked for brain tumors, ear problems and anything that might cause the dizziness.  Nothing is wrong.  Go figure!  Try motion sickness med's.  Start out with a low doseage and move up.  It is fairly inexpensive.  It does make you sleepy.  

I have woke up from a sound sleep to sit up because I thought I was going to pass out.  My head is spinning!  

[bngmm]

I also have the same problem even when I am sitting feels like I am going to fall over. Get headaches too

[MarieMom3]

I suffer from dizziness from time to time also.  I am usually anemic and have to get a series of iron shots to raise my blood count.  I don't seem to have any problems with frequent urination yet.  To answer Monaeileen .. I don't have degenerative disc disease.. But, I had to have emergency back surgery about 4 years ago... before all this fibro stuff began.  I have noticed that quite a few people on the forum has had back problems .. there may be some connection there. To tamlloyd: I have also suffered from migraines since I was about 7 years old... they have actually gotten a little better over the past 4 years. Good wishes to everyone!

[idesofmarch]

If you don't like the side effects of motion sickness meds, try the wrist bands, they work.  You can find them with the travel sick. meds in the drugs stores etc.  They are travel eeze ? gray in color and come with a plastic travel container.  You just wear then on your wrist in a certain position.  They are reusable, washable and have even worked with morning sickness.  I use them myself for trips.  As far as the frequent urination that could be weak belly muscles, a fallen bladder, spasming bladder, icisticiaul cititus(SP?) that comes with FMS sometimes. Ease up on the Klonopin and check your meds for side effects such as dizziness.  Could have a blood pressure problem-you might want to check it daily and keep a chart of the results for your next doctors appt.  Does your family have a history of heart problems?  It is good to know their medical history for your self and your future generations. Hope you get to feeling better.

[precious35103]

I have had constant dizziness, nausea, muscle weakness, stiffness, and a host of other symptoms for the last few months. dr's not sure what is going on. I believe it could be FM. I have ruled out problems with my ears, no brain tumors. I have a condition called interstitial cystitis. It causes frequent urination. Look it up, this is what you might have. I also was told I have degenerative disk disease, so all that I have read on this site has me wondering if I have had this FM all this time and it may have gotten worst. Thanks for the info. Something to bring up in my next drs visit.

[PlateletGal]

Frequent urination is common in patients who have CFS. What bothers you the most.... fatigue or widespread pain ?

[precious35103]

Both, but I have had dizziness constant since May 21. I have had the stiffness and fatigue much longer than this. For months. Never feeling refreshed from sleep. Here is a list of my complaints: dizziness, balance off, nausea, headaches, fliud retention, numbness of hands and feet, night sweats, blurry vision, muscle weakness - stiffness, extreme fatigue, insomnia, cold when others are not- esp. in feet, swollen lymph nodes in neck, chest pain, ringing in ears, loss of appetite, and so many more. My thyroid has been checked - All clear there. I have an appt. to see a neuro next month. It is real sad to have to deal with not knowing what is going on with me. I even had an ENT to tell me it was anxiety. I was extremely upset. I took it as he did not have any other answers to tell me. He just did not have a clue.......A person knows when their body is not right. I know something is going on and it has been slowly over the past year taken over my body. I will keep pushing until I get some answers. Thanks for letting me vent......

[FemmeFugazi]

I think we've talked before. I remember reading some of your posts two years ago, about your symptoms. And I'm sorry to hear you're not feeling any better.

I've been diagnosed with Fibro and CFS since May, '07. And I'm still not used to the constant symptoms I have to deal with. The OP - sounds like he's got either CFS or Fibro, or possibly both.

I can definitely sympathize - I have that same dizzyness and it freaks me out. I can even get woozy and light headed just sitting still, or... typing on my computer.

[PlateletGal]

It sounds to me like you could have CFS (vs. fibromyalgia). Please consider checking out our health pages. There is important information in there that you will need to know, including the fact that the majority of CFS and fibro patients have a low thyroid.... but the standard blood tests fail to detect this !

http://www.medhelp.org/health_pages/list?cid=39

[PlateletGal]

Hi ! It's great to hear from you again. So how is your physician treating you and are you making any progress ? Since you have dizziness, have you had tilt table testing done to rule out POTS (postural orthostatic tachycardia syndrome) ?

[ginap48]

I just wet my pants last night!  I have to go potty all the time.  Three times a night as well.  I have been prescribed detrol for that condition but I don't like to take it in addition to all my other meds.  The dizziness for me is coming from non-functioning ustacion tubes.  I had my first ear tubes put in during my 40's.  

It may very well be related.  I can't belive that I have all of the things that the doctors have told me over the years...degenerative disc disease, fibro, CFS, ear stuff, bladder stuff, several types of arthritus, allergies, migraines.  I have always thought that these things could be linked together into one or two illnesses instead of the above list.  I still am active and healthy to look at but I feel awful most of the time.  People are usually shocked when I tell them that I have any of the above list.  I have also had a heart ablation for Winky bok syndrome, three discectomies, and "a sinus surgery in a pear tree".  I will stop griping now.  You might want to have your doctors check your ear eustacion tubes.  I have been to so many doctors and spent so much money but I think it is probably an autoimmune system disease.  Best of luck.  Let me know if your doctor find a link between the dizziness and frequent urination thing.  ginap48

[precious35103]

Went to dr today, tested for lupus. It is sometimes a related condition of interstitial cystitis. Don't know if this is what is going on with me. Will post results.