when they cannot figure it out,they call it fibro!!!

[crambone]

people,i have done lots of research on this,i even resided over a court case where a woman got hurt in a car accident,then had her insurance pay for over 76,000 dollars in hospital bills,come o find out she said she had fibro,and thats where all her bills came from!
i honestly think that when doctors are not  sure and cannot diagnos us,they call it fibro or stress/anxiety....period.
20 years ago you never even heard of fibro and people with "anxiety" delt with it,its called LIFE
please,dont let all your aches and pains that do not go away with proper diat and exercise be written off as a phantom disease that doesnt exist.
THERE IS ALWAYS A REAL/TRUE UNDERLINING REASON for your pain and issues.
if you got leasons on your brain,,,,YOU GOT MS!!!....period,,,dont let the docs tell you you dont,that you got a made up illness like fibro!!
if your lymph nodes are all swelled up,you have night sweats and loosing weight,,,YOU HAVE HIV....NOT FIBRO!!!
i urge you to read up and be your own judge.
just because a test sometimes comes up neg....that doesnt mean you dont have the real disease.

[Totie]

I do have to agree with you. I had pains for over 3 yrs,(certain areas) told it was fibro, until my pain mgt. doctor told me, Fibro is a waste basket diagnosis for not knowing what is wrong.

Ended up having 3 surgeries to remove infected glands, tumors, lymph nodes, ovary. Guess what, I feel so much better. I do have other autoimmune issues, but the pain areas are gone....

[hipchick47]

So what do you do when all the sudden you feel like you have been hit by a train, NO energy, muscle pain all over, nerve pain, I mean just a year ago I felt great, it's like I woke up with this and I'm only 46 yrs old, but something is definitely wrong and I truly bellieve it is my thyroid, it is common over 40 yrs old to have some thyroid issues, but my thyroid is normal according to doctors, I do have arthritis in many joints, but that's because i was so active and hard on my body as far as exercise, gymnastics, running, but I have more aches and pains and fatigue than my 70 yr old mother and she isn't active at all and has high blood pressure and high cholesterol? Go figure!

[Totie]

Thyroid is a tricky little thing. If they don't run the correct tests you will suffer needlessly. You need a good ENDO who treat your symptoms, not your labs.

Honestly, the way I handle my body pain because I like you, feel like I was run over by a truck or just ran a ten mile race all up hill...I just pray every day, every moment for God to help me handle the pain & accept it as part of my body.

Although I have to admit, I don't have any where near the pain ALOT of fibro people have. Fatigue is not at all a problem for me.

I don't tell any doctor I am seeing that I was once told I had fibromyalgia, because the minute you tell them that, they stop looking for the cause of your pain.

Now, I do believe that my body is this way because that is just how I was made. I am a weird one, a freak of nature as my husband calls it.

In my opinion a lot of my issues stemmed from being untreated, misdiagnosed with graves disease for six months, hit two thyroid storms before having a TT. I think that did a number on my body..

[patsy10]

I couldn't agree more!  Though  night sweats and weight loss are associated with other infectious diseases such as Lyme disease, TB and others.  Not just HIV.

[Totie]

Funny you should mention TB.

I had the weight loss, actually still under weight. 5'2 99lbs, and STILL have the night sweats. All the doctors tell me it is not normal, but they can't tell me why. I had lost about 30lbs within a years time, without trying...Went from size 8 jeans to 0 (currently wear 0-1 now) within two years.

I had a skin TB test done, and it came back borderline positive, then the dr. did a new blood test for TB and it came back negative.

I still get the night sweats and have unexplained swollen lymph nodes in the groin area, but they can' t tell me why. I did test positive for EBV, but not much on that.  

All they tell me is "something is wrong, but we don't know what". I finally resigned myself  to the fact that this is how my body is made.

[GSDgirl]

I had night sweats and swollen lymph nodes and after about 15 years I was finally diagnosed with Hepatitis C.  I treated with interferon and ribavairin and then I felt like the truck ran over me and stopped on top.  It has been 2 years since treatment nd the pain has gotten worse and worse.  I do not still have live virus in my blood which means I cleared so that is not the cause.

I have been tested for everything under the sun and finally went to a rheumie.  There are 18 pressure points to diagnose fibro, 11 of which about made me scream.  My diagnosis is fibro.

Oh, I am somewhat new here and did not mean to highjack the thread.

GSDgirl (German Shepherd Dog girl)