6 year old with MBL Deficiency and chronic bronchitis how serious is this disorder?
My son has Mannose Bindind Lectin deficiency, in fact his blood test showed he has none. He is 6 has had pneumonia twice and suffers from bronchitis 3 to 4 times a year. Right now his pediatrician has him on daily Singular till the spring and claritin when he needs it. He takes albuterol treatments 2 or three times a week.
His mom say MBL is only a problem for babies and has interfered with 3 allergist attempting to test for allergies.
My questions are how important is this and what are these meds doing to his liver because the Internet mentioned liver problems with this missing protein? If you have answers that can enable me to insist on follow up with allergist/immunologist I'd be grateful or any advise on follow up care for MBL Deficiency
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