Almost every symptom you can think of and Dr is puzzled please help me!
In summer 2011 I had severe blinding migraines, light and sound intolerance. In October 2011 as a cough, in December I was in car accident tore all major torso/back ligaments including pelvic. In Jan 2012 I started coughing up over a cup and a half of liquid from lungs and coughing up blood alone and at times mixed in mucus, they said bronchitis. After 4 antibiotics and worsening conditions, I quit smoking cigarettes, took nothing for pain, used Hepa filter in apt, ran humidifiers and ect. Dr did X-ray confirmed bronchitis, so I went to ER in doubt. ER said I’m in clear, next morning I get a call I had pneumonia for 2 months. End of Feb 2012 clears up. I start working out in March 2012 after 3 weeks regular training I almost collapsed on treadmill going slow speed. Started feeling like I wasn’t getting oxygen no matter how hard I tried I got dizzy and faint feeling. I sat in my car for over a hour, my chest felt tight then the left side of my face went completely numb, then left eye twitched but slowly not a normal twitch. I called 911 after a hr., 20 min til fire rescue I was comprehensive with them but I felt a blurr like it was a dream. The one looked funny at me then took my pulse ox that said 88, 15 min later ems came took all vitals and said normal. I arrived at hospital over 2 hours after symptoms started. All routine blood work was normal heart attack blood work was normal. The chest tightness comes and goes. Did follow up with Dr, had angina echo gram done. I was in good shape only at end I had hard time breathing again. Results normal. I have been on at least 8 antibiotics this year and 2 steroids none have improved. I also still get what feels like extreme in cranial pressure. I was checked for brain tumor CT in summer of 2011 normal results. Recently all my lymph nodes swelled armpits thyroid and neck glands. Thyroid blood work was normal, hemoglobin was high, everything normal. Meanwhile I still get dizzy spells, double vision, head pressure, muscle tension. I do have a herniated disc in L5 and slipped in others. But my muscles get so tense it feels like they are being ripped apart from opposite directions. This happens often atleast once a week. There is no pattern of when I get all symptoms and some come at same time but different ones and different times. I am 5’7 F 27yr old 244lbs but can work out 3 hrs without stressing body. I am top heavy. I also have a red circle on upper right thigh, no ring. Crèmes did not help. It is bigger than a quarter and does not itch. Im also getting small moles and lots of large freckles all over body. I get lower stomach pain with history of polysistic ovarian disease but recent ultra sound says no assists. I sometimes slurr when talking but not often and get extreme sleeping spells. My dr will not send me to a specialist she just keeps prescribing antibiotic and I don’t want to become immune. I am in constant achy pain and most days my random symptoms have me as sick as a cancer patient. I also get diarrhea and thin soft stool. Please if anyone knows what this is please help me I am a mother of 2 and feel so disabled that if I get worse I may have to send them to foster care, I will not be able to care for them in the way they need they are to young. I have one natural birth and one csection which took 4 1/2 hrs due to failed anesthetics. Also went to nerve dr this year, said I have severe never damage in right arm and mild in left. I was sent to him due to uncontrollable sporadic paralysis to hands, dropping things without control seeing it fall but cant get it. No STDs, and live in the suburbs. Also extreme fatigue atleast 3 times a week.
Also recently I had menstral symptoms, spotted twice and never bleed. With cysts ruled out Im not sure what to think. my last cycle was may 2011 and that is normal for me but I been sick with some of these symptoms as young as 15, like blackouts, double vision. Those are probably from multiple closed head injuries. I also have history of breast and cervical cancer in family, along with alpha 1 and blood clots in brain(aunt). Heart conditions, and high blood pressure. My blood pressure is high now and then like 92-95 range but not diagnosed. I have high chlessterol but like i said angina echo gram ruled that out.
Hi Saphire, you like myself have overlapping symptoms. I could not help but think your pelvic pain may be a yeast infection from antibiotics so much. I developed a yeast (candida) problem in my badder, vagina, lungs, ears, bad headache and skin rashes. Bloat and intestinal problems also. Luckily with antifungal meds and cutting out sugar, fruit, yeast ( bread) and starchy foods I have improved.
My memory is short but I don't remember reading if you were tested for Lymes disease and a coinfection Babesia. I hunger for air with it and having chronic M. Pneumonaie ( mycoplasma) also, I cough. I'm now on ABX over a year and the Lymes has cleared but the Babesia and Mycoplasma have not.
Feel free to write me if I've missed anything.
Yes, my face was numb on the right side. Headache like migraine that pain pills didn't work on, and base of my scull at the neck ache that was relentless.
As you have taken a lot of antibiotics, probiotics is highly recommended to get rid of gastrointestinal symptoms. Antibiotics means anti life so it kills off not only the bad bacteria but the good bacteria as well. Probiotics supplements helps replace the good bacteria.
I have cut down on sugar and fat, actually when I had the episode that felt like a stroke, I was on a very healthy diet lots of fresh veggies and exercising regularly to get healthy. I have not been to any specialist other then nerve dr and most testing other then CT for brain tumor is protocol blood work. Lyme deasise is not a recognized desiease and is hard to be diagnosed due to the fact that you can not rely on a neg. result. My dr won't help she just wants to feed me meds hoping something may work. Sorry for any miss spelled words blurry vision makes it hard to type on phone. I've also had blood in stool and occionally cough it up but no more than a few time a month.
Last night I coughed up pure white mucus and blotches of blood in shower and collapsed. Dr wants me on antibiotics yet again saying it is Bronchitis, but I have not coughed before that moment and have Not afterward either. I havent been able to eat in 4 days only liquids.
As an update I am currently awaiting test results for cervical cancer and will be going in this week for a bronchioscope and lung biopsy, extensive bloodwork on liver kidneys and autoimmune disease, and sched appt to see endocrinologist to check andrinal glands. I will keep it updated and let you know what comes up!
Don't know if this will help you. I have Fibro, too, but within six months I was rushed to hospital with what they thought was a heart attack (heart and lungs were fine) and then rushed from the doctors office to ER with what they thought was a stroke (I form a coherent sentence). Then I collapsed on the street and broke six teeth. Eventually, they found out I had drastically low potassium levels (as well as quite a few more nutrients). It seems to have had no relation to what I eat, but that I don't absorb the nutrients. There's no known connection to Fibro that any of the doctors know about - but then who really knows all about Fibro. Asking for some good blood work to address this might help. I do know that large doses of Vit D helps the Fibro. Just a suggestion based on my experience.
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