Blood test diagnosis? Facebook?

[grungema3]

Hi all. Sry not been around. Hope all are bearing up. I don't know if I dreamed this but I'm sure I saw somewhere that there will soon be a blood test to diagnose ME/CFS. Do I have the right info? Also, does anyone else hate facebook? What are you supposed to put on your profile?  Yesterday I walked all the way to the kitchen and back?  Sry, feeling a bit delicate today. Had so many physical, mental, family traumas recently even the dog's depressed! Oh, and do you know what else? I said to my husband (usually v. understanding) " Sorry not much use at much right now, hope I don't disturb you when I can't sleep, sry too tired to talk much, having a relapse M.E. episode, sry if I'm depressed, it's not you" Husband: "  When you feel as tired as I do then you tell me. Anyway, what relapse?  You're no different" So upset, didn't even notice that I was so much better.Is it really worth the trouble and energy to keep on fighting a shadow? xxx  

[grungema3]

Hi,acker,
TThanks so much for your reply. It makes such good sense. I'm in the U.K. sorry, no-one here wants to believe it either. Posts from US all say the same thing. It's like having babies. If men had them, they would have thought up an epidural around 1700!
Trouble is, I try so hard but when I've made an enormous effort , dressed, makeup, hair etc. the comment is usually, "See, you can do it! You look lovely! Now I want to see you like that every day!" (husband, daughters, kids).
I'm used to it but it's so hard not to scream! (when I've got the energy!)
One of my daughters went through a very bad time with anorexia so I know the frustration of watching a loved one ill and not being able to do anything. I wanted to shake her and say "Don't have that! Only other people have that! You're my precious child, please don't be so ill!"
It was only after Princess Diana's problems became public that people in the med community publicised that this was a real and distressing condition and big efforts were made on all fronts. On the other hand, my daughter was treated like a naughty girl (just pre the princess).
I wouldn't wish M.E. on my dog, but it would be useful if a member of the Royal family had it just mildly wouldn't it?
Also, don't you think that if you had unlimited funds, lived in a cave in the Himalayas (a posh one) with no stress and had brilliant toplevel 24/7 support it would make a difference? Maybe we should start a charity called Ex Horse Ted and pick people to have a week in our cave?
Not. My borough won't even fund me to go to the next door borough as an in-patient in their brilliant M.E. Unit.
Anyway, keep smiling(even if it is through gritted teeth!) and know that love and blessings are being sent to you from UK - and that you are BELIEVED!XXX

[acker]

just ANOTHER of the challenges of cfs is the lack of understanding and support available, when it is so needed. it causes havoc in every area of life including relationships. we know it.

i also have difficulty in just DROPPING my need for others to understand - because they just don't - and that's reasonable, because oh my gosh it is invisible! i've had to choose which irks i will focus on, and pray the others will go away... if you know what i mean...

a virus has been identified in a study, said to be a cause of fatigue. i guess there's a long way to go.

i've been crook for over 2 years; the improvement has been gradual. help and support is scarce. bad ideas and crap advice are prolific. just avoid these. i've found the 'complementary' forum helpful, and the 'autoimmune' forum has the occasional m.e. reference. hope this helps. i know that when you're really unwell, no-one can say anything right! sorry if any of this has been 'useless'!!!  :)