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Bones Feel Like They're Broken But They're Not
I've been having these weird pains for a long time, a couple years or so. It started in my right arm and fingers. I'll be holding something, not even very heavy, like maybe a pound and all of a sudden my arm would flare with this intense horrible pain, like it was suddenly broken. The same for my fingers. I'd be rubbing lotion into my legs or something and suddenly my fingers will feel like every finger has snapped. It only happened every once in a long while and I always forgot to mention it to a doctor.
Recently, for the past few months and these past few weeks especially, it's started happening A LOT. Now both my arms, both my legs, and both hands will suddenly get this terribly intense pain, it feels so horrible it literally feels like my bones are broken inside. When it happens to my legs I can't even stand on them, the pain is so, SO severe.
I'm going to go visit my doctor about this soon however I also have had trouble getting diagnoses before. Does anyone know what this might be? I don't want to go months and months undiagnosed.
I have fibromyalgia and IBS but I don't believe "pretend broken bones" is a symptom for either one.
Recently, for the past few months and these past few weeks especially, it's started happening A LOT. Now both my arms, both my legs, and both hands will suddenly get this terribly intense pain, it feels so horrible it literally feels like my bones are broken inside. When it happens to my legs I can't even stand on them, the pain is so, SO severe.
I'm going to go visit my doctor about this soon however I also have had trouble getting diagnoses before. Does anyone know what this might be? I don't want to go months and months undiagnosed.
I have fibromyalgia and IBS but I don't believe "pretend broken bones" is a symptom for either one.
I had the very same problem after taking anti-malaria medication. Along with other sypmtoms, it felt as if all of my bones had turned into shards of glass. So I stopped taking the medicine and soon after the pain and all of the other symptoms went away. I found out later that it caused me to have hemolytic anemia. I'm telling you this because certain medications can cause adverse reactions. I know it's been over a year since you posted your comment. I hope you were able to figure out what was wrong wit you.
Hey have you figured anything out yet? I was reading about the sudden inability to move and a thought came to mind.
We have a thing in our brains that paralyzes us while we sleep so we don't walk around and hurt ourselves. When it doesn't "switch on", people sleepwalk. It is supposed to be "off" when we are awake, but I wonder if yours is malfunctioning and switching on and causing the paralysis. There's probably a fancy name for all of that, but idk it.
Sometimes when I'm sleeping and I want to wake up I can't, I think in my mind that I want to wake up, but I can't move at all, so I won't wake up. Even in my dreams I'm paralyzed and I can't move my arms or legs. When I wake up finally, I feel dizzy and weird, like nyquil medicine head. It's really a lot more disturbing than it sounds, I think I get stuck in dream mode, and paralyzed mode, and I can't wake up.
Maybe it's the same thing? I've been wondering about it for a while.
When I'm awake I will suddenly loose the use of my hands, and my legs have just gone numb too, but not like the paralyzed feeling I get when I'm trying to wake up.
We have a thing in our brains that paralyzes us while we sleep so we don't walk around and hurt ourselves. When it doesn't "switch on", people sleepwalk. It is supposed to be "off" when we are awake, but I wonder if yours is malfunctioning and switching on and causing the paralysis. There's probably a fancy name for all of that, but idk it.
Sometimes when I'm sleeping and I want to wake up I can't, I think in my mind that I want to wake up, but I can't move at all, so I won't wake up. Even in my dreams I'm paralyzed and I can't move my arms or legs. When I wake up finally, I feel dizzy and weird, like nyquil medicine head. It's really a lot more disturbing than it sounds, I think I get stuck in dream mode, and paralyzed mode, and I can't wake up.
Maybe it's the same thing? I've been wondering about it for a while.
When I'm awake I will suddenly loose the use of my hands, and my legs have just gone numb too, but not like the paralyzed feeling I get when I'm trying to wake up.
Sorry to hear about your ongoing suffering & negative experience at the ER.
Did you get the thyroid tests I mentioned?
If not, you can do on your own Dr. Barne's Basal temperature test. Check online and do precisely as per instructions.
It was the golden standard in the past for thyroid testing along with clinical evaluation, until they came up with the modern ($$) fancy tests, which miss the mark most of the time, unless the ones I referred to earlier are considered.
Another thing you could try is a gluten free diet, as gluten can affect any part of the body.
FYI , Look into Gliadin test (urine), by Cyrex Labs. They test 12 forms-not just the alpha ordered by most doctors- of gliadins regarding gluten intolerance (not necessarily only digestive and perhaps not immediate effects).
Now they can also test which part of the body is affected.
Note: Gluten effects may be experienced for weeks after gluten elimination.
Best wishes,
Niko
Did you get the thyroid tests I mentioned?
If not, you can do on your own Dr. Barne's Basal temperature test. Check online and do precisely as per instructions.
It was the golden standard in the past for thyroid testing along with clinical evaluation, until they came up with the modern ($$) fancy tests, which miss the mark most of the time, unless the ones I referred to earlier are considered.
Another thing you could try is a gluten free diet, as gluten can affect any part of the body.
FYI , Look into Gliadin test (urine), by Cyrex Labs. They test 12 forms-not just the alpha ordered by most doctors- of gliadins regarding gluten intolerance (not necessarily only digestive and perhaps not immediate effects).
Now they can also test which part of the body is affected.
Note: Gluten effects may be experienced for weeks after gluten elimination.
Best wishes,
Niko
Sorry to hear about your ongoing suffering & negative experience at the ER.
Did you get the thyroid tests I mentioned?
If not, you can do on your own Dr. Barne's Basal temperature test. Check online and do precisely as per instructions.
It was the golden standard in the past for thyroid testing along with clinical evaluation, until they came up with the modern ($$) fancy tests, which miss the mark most of the time, unless the ones I referred to earlier are considered.
Another thing you could try is a gluten free diet, as gluten can affect any part of the body.
FYI , Look into Gliadin test (urine), by Cyrex Labs. They test 12 forms-not just the alpha ordered by most doctors- of gliadins regarding gluten intolerance (not necessarily only digestive and perhaps not immediate effects).
Now they can also test which part of the body is affected.
Note: Gluten effects may be experienced for weeks after gluten elimination.
Best wishes,
Niko
Did you get the thyroid tests I mentioned?
If not, you can do on your own Dr. Barne's Basal temperature test. Check online and do precisely as per instructions.
It was the golden standard in the past for thyroid testing along with clinical evaluation, until they came up with the modern ($$) fancy tests, which miss the mark most of the time, unless the ones I referred to earlier are considered.
Another thing you could try is a gluten free diet, as gluten can affect any part of the body.
FYI , Look into Gliadin test (urine), by Cyrex Labs. They test 12 forms-not just the alpha ordered by most doctors- of gliadins regarding gluten intolerance (not necessarily only digestive and perhaps not immediate effects).
Now they can also test which part of the body is affected.
Note: Gluten effects may be experienced for weeks after gluten elimination.
Best wishes,
Niko
I went to see my regular doctor and he looked extremely worried. He told me that I had two options and that I could get the tests done there at the lab place and wait for results or go straight to the ER.
My mom and I were a little taken aback by this and asked if what he recommended and he told us that if his daughter was having my problems he'd take her straight to the ER.
I didn't feel that bad then and knowing full well the wait and difficulties which awaited us at the ER, I just got my tests done at the lab. They took LOADS of tests. So many vials of blood.
They called with the "results" a couple of days later saying that I had a possible "UTI" but that was it. We never got any other results.
A day or so later, I had another alarming symptom where I literally could not move my arms or legs. I had started feeling really badly so I came out into the living room where my family was and basically collapsed on the ground. I couldn't move my arms or legs AT ALL. My mother decided at this point that I should definitely go to the ER.
When we got there, the nurse was really rude to me, insinuating that my symptoms were just from stress from school.
This was bad but it wasn't as bad as the actual doctor. Who basically told me it was all in my head and sent me away.
I could barely walk again by that time so my mother and I just left. I haven't gone back to the doctor, I'm so disheartened.
I still don't know exactly what's wrong with me and I don't have anything to fix even just my symptoms. I'm not sure what to do. I'm feeling slightly better now so maybe I should just give up.
My mom and I were a little taken aback by this and asked if what he recommended and he told us that if his daughter was having my problems he'd take her straight to the ER.
I didn't feel that bad then and knowing full well the wait and difficulties which awaited us at the ER, I just got my tests done at the lab. They took LOADS of tests. So many vials of blood.
They called with the "results" a couple of days later saying that I had a possible "UTI" but that was it. We never got any other results.
A day or so later, I had another alarming symptom where I literally could not move my arms or legs. I had started feeling really badly so I came out into the living room where my family was and basically collapsed on the ground. I couldn't move my arms or legs AT ALL. My mother decided at this point that I should definitely go to the ER.
When we got there, the nurse was really rude to me, insinuating that my symptoms were just from stress from school.
This was bad but it wasn't as bad as the actual doctor. Who basically told me it was all in my head and sent me away.
I could barely walk again by that time so my mother and I just left. I haven't gone back to the doctor, I'm so disheartened.
I still don't know exactly what's wrong with me and I don't have anything to fix even just my symptoms. I'm not sure what to do. I'm feeling slightly better now so maybe I should just give up.
Perhaps it's just my firbomyalgia because your description -does- sound very familiar... Perhaps that's my problem with the fatigue.
A new symptom just erupted for me a while ago which was really distressing.
All of a sudden I could move my arms or my legs. It was like I was paralyzed. I just couldn't move my body except for my face however that was really difficult. It come in increments of about five or ten minutes and stopped completely after an hour.
Do you think this was the fibromyalgia?
A new symptom just erupted for me a while ago which was really distressing.
All of a sudden I could move my arms or my legs. It was like I was paralyzed. I just couldn't move my body except for my face however that was really difficult. It come in increments of about five or ten minutes and stopped completely after an hour.
Do you think this was the fibromyalgia?
When my fibro pain was un-controlled I actually wrote a paper on exactly how the pain felt, in an effort to give my loved ones a way to understand how I was feeling. Does this sound familiar?
"I was in so much excruciating, debilitating pain that I was literally out of my mind rom the severity of the pain. I remember trying to explain what it felt like to be in such horrific pain. I would explain that this must be what it was like for someone who had been the real-life, literal victim of physical torture. Someone who, during medieval times had been subjected to having their legs pulled until the bones were out of the socket. My ankles, knees, wrist & elbows felt as though in my joints was broken glass, & the shards of glass were being pushed from the inside out & trying to poke through my skin. I couldn't stand for even the sheet to touch my legs. I'd look down at my legs & be surprised that they looked so normal. The way they felt, they should have been black & blue, swollen & disfigured with broken bones that hadn't been set & were poking against the skin, trying o get out. My legs were what caused e the worst pain, but the rest of body shared the experience. In your forearm are two bones; the radius extending from the thumb to the elbow, & the ulnar extending from the pinky to the elbow. If you put your thumb on your arm, just above the wrist on the back of your hand (not the palm-side, where a nurse feels for your pulse), you can feel the space between the bones. It felt as if someone were driving a "dremel bullet-shaped wood-cutting bit" (you can search for that in images to see what it is, if you don't know what I mean), & using it to drive into my arm right there above the wrist, & wedge apart those two bones. I'd tell my Husband "It hurts 'tween my bones". My hands hurt so badly that I could barely grip a pen, (an almighty important tool used by nurses, that good, Christian women will suddenly resort to trying to steal away from you if you have found you have one that "writes really well"), & I could no longer stand to hold the hand of my sweet Husband & frequently found myself loosening my grip from his. The muscles in my back, just beneath my shoulder blades would burn, like physically feel the way you feel when you go to the gym & do a repetitive workout on one part of your body for hours upon hours, & hundreds upon hundreds of rep's. My hips would hurt so badly that I Honest to God I remember distinctly walking the dog with my Husband one time & literally dropping to a seated position on the ground the way babies learning how to walk do, b/c I couldn't physically take another step. As though I had experienced the "complete muscle fatigue" used by Navy Seal's during "Hell Week" to describe how they could literally, physically, no longer continue. My hips hurt so badly that on my first visit to the first "pain specialist", as I was walking to the exam room after the Dr called my name, the Dr asked me "Do you have children?". I knew immediately what she meant, as a former L&D Nurse I recognized that I literally walked like a fresh post-partum woman getting up to go to the bathroom for the first time. I said "Yes, but she's 15 years old now", & told her I knew what she was referring to, & she admitted that yes, that is exactly what she meant.
After feeling like this since the fall of 2007, on July 2'nd of 2008, during a period of time where I was literally out of my mind from the pain, I tried to put myself out of my misery."
"I was in so much excruciating, debilitating pain that I was literally out of my mind rom the severity of the pain. I remember trying to explain what it felt like to be in such horrific pain. I would explain that this must be what it was like for someone who had been the real-life, literal victim of physical torture. Someone who, during medieval times had been subjected to having their legs pulled until the bones were out of the socket. My ankles, knees, wrist & elbows felt as though in my joints was broken glass, & the shards of glass were being pushed from the inside out & trying to poke through my skin. I couldn't stand for even the sheet to touch my legs. I'd look down at my legs & be surprised that they looked so normal. The way they felt, they should have been black & blue, swollen & disfigured with broken bones that hadn't been set & were poking against the skin, trying o get out. My legs were what caused e the worst pain, but the rest of body shared the experience. In your forearm are two bones; the radius extending from the thumb to the elbow, & the ulnar extending from the pinky to the elbow. If you put your thumb on your arm, just above the wrist on the back of your hand (not the palm-side, where a nurse feels for your pulse), you can feel the space between the bones. It felt as if someone were driving a "dremel bullet-shaped wood-cutting bit" (you can search for that in images to see what it is, if you don't know what I mean), & using it to drive into my arm right there above the wrist, & wedge apart those two bones. I'd tell my Husband "It hurts 'tween my bones". My hands hurt so badly that I could barely grip a pen, (an almighty important tool used by nurses, that good, Christian women will suddenly resort to trying to steal away from you if you have found you have one that "writes really well"), & I could no longer stand to hold the hand of my sweet Husband & frequently found myself loosening my grip from his. The muscles in my back, just beneath my shoulder blades would burn, like physically feel the way you feel when you go to the gym & do a repetitive workout on one part of your body for hours upon hours, & hundreds upon hundreds of rep's. My hips would hurt so badly that I Honest to God I remember distinctly walking the dog with my Husband one time & literally dropping to a seated position on the ground the way babies learning how to walk do, b/c I couldn't physically take another step. As though I had experienced the "complete muscle fatigue" used by Navy Seal's during "Hell Week" to describe how they could literally, physically, no longer continue. My hips hurt so badly that on my first visit to the first "pain specialist", as I was walking to the exam room after the Dr called my name, the Dr asked me "Do you have children?". I knew immediately what she meant, as a former L&D Nurse I recognized that I literally walked like a fresh post-partum woman getting up to go to the bathroom for the first time. I said "Yes, but she's 15 years old now", & told her I knew what she was referring to, & she admitted that yes, that is exactly what she meant.
After feeling like this since the fall of 2007, on July 2'nd of 2008, during a period of time where I was literally out of my mind from the pain, I tried to put myself out of my misery."
Wow, that was fast CuteBoots!
Your doctor is a Gem.
Just make sure you ask for the tests, exactly as I posted.
Best of luck with your appointment on Monday.
Cheers!
Niko
Your doctor is a Gem.
Just make sure you ask for the tests, exactly as I posted.
Best of luck with your appointment on Monday.
Cheers!
Niko
Hey CuteBoots.
I will offer you some specific information which you can use asap.
Please look into underlying fundamental factors, such as low thyroid function which can cause both IBS and Fibromyalgia symptoms.
Dr. Lowe from the Fibromyalgia Research Foundation supports the premise that most Fibromyalgia patients are either hypothyroid or thyroid hormone resistant.
To rule this in or out you must forgo the standard serum thyroid testing (TSH, T3&T4) which only indicate... serum levels
and ask for Free T3, Free T4 and Reverse T3 (RT3) to test for accurate thyroid cellular FUNCTION! The Reverse T3 may not have an insurance code, so you may have to pay out of pocket, but it is vital to have this done properly.
It could potentially save you from many years of unnecessary suffering!
If you live in the US, Walk-in Labs have a special price for RT3.
Last time I checked it was about $55.00 USD
Please let me know your results, should you decide to pursue this.
There's another possibility of an underlying cause, which should be only explored when and if hypothyroidism is ruled out.
Best wishes,
Niko
I will offer you some specific information which you can use asap.
Please look into underlying fundamental factors, such as low thyroid function which can cause both IBS and Fibromyalgia symptoms.
Dr. Lowe from the Fibromyalgia Research Foundation supports the premise that most Fibromyalgia patients are either hypothyroid or thyroid hormone resistant.
To rule this in or out you must forgo the standard serum thyroid testing (TSH, T3&T4) which only indicate... serum levels
and ask for Free T3, Free T4 and Reverse T3 (RT3) to test for accurate thyroid cellular FUNCTION! The Reverse T3 may not have an insurance code, so you may have to pay out of pocket, but it is vital to have this done properly.
It could potentially save you from many years of unnecessary suffering!
If you live in the US, Walk-in Labs have a special price for RT3.
Last time I checked it was about $55.00 USD
Please let me know your results, should you decide to pursue this.
There's another possibility of an underlying cause, which should be only explored when and if hypothyroidism is ruled out.
Best wishes,
Niko
1 Comments
I've made an appointment for Monday and I will ask my doctor for these tests. My mom and I both have him and he's pretty good at ordering a bunch of tests. After looking into this, it really seems like I might have hypothyroidism. Thank you so much for your help! I will let you know what happens.
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