Burning in Chest & Fibro

[thester6474]

Hi, I was just wanting to poll anyone that has or knows about Fibro...For the last few months, I have been experiencing a lot of burning in my chest (after little or no excertion)...Do any of you suffer from this as well???And is it normal in fibro to have the burning sensations?

[Melissa70817]

How ironic that this was posted.  I just wrote about this in my journal.... Mine has come with fever, this happened in May.  I don't have to have fever for it to be going on though.  I found some Nexium in my cabinet that expired in 05' but it did help.  
When this happens to me, if I swallow it feels like a burning ice cube is working its way up my throat, if I swallow again it goes back down. I don't have to swallow to feel the sensation coming into my throat but always if I swallow while it feels like something is coming up it goes back down and the pain stops but my throat feels sore.   I can also feel tiny air bubble going down my throat into my stomach when I have this.  My muscle relaxers also helped a little but not much and I would have to double my dose to get just a little relief.  

[PlateletGal]

"Cardio myopathy is another misdiagnosis that is given to a lot of CFS patients with chest pains."

Dr. Paul Cheney says that CFS patients have cardiomyopathy, but do NOT have a typical form of it. They do not have systolic cardiomyopathy.

For more information, people should google "Dr. Paul Cheney" + "CFS & Diastolic Cardiomyopathy"

And or... check out:

Holter Test (heart) "All 60 patients with CFS showed repetitively flat to inverted T waves alternating with normal T waves"

http://www.chestjournal.org/cgi/content/abstract/104/5/1417

[FemmeFugazi]

Pricarditis is commonly diagnosed for CFS sufferers who have chronic chest pain. Cardio myopathy is another misdiagnosis that is given to a lot of CFS patients with chest pains.

Chostocondritis is very likely to be your problem. I've been dealing with CFS for over a year now and I have almost constant chostocondritis. Which is almost as hard to spell as it is to cope with !

[Searching1111]

I guess I picked the name searching for a reason.  And I can totally understand you wanting to give up on search for diagnosis.  Just don't quit searching for something that will help improve quality of life.  There is always another thing to try or try in combination.    You are so young.  I'm 40 and feel 80.  It's rediculous.  I hope you go to Duke and find out something really helpful.  There is always hope.

[moker]

I've had CFS for three years now and the whole time accompanying that is chest pain. Daily, acute pain and general aching. I've been in and out of hospital with my suspected heart attacks and been checked over by three cardiologists, private and NHS. Turns out that they cannot find any heart problems but I was initally disagnoised with pericarditis and now that's even been disputed and a new diagnosis of costocondritis has been given.

All of these conditions are meant to go within 10 weeks but I've had them for three years along with heart skips. The heart skips have been improved since going on an anti-candida programme but are also still briefly reoccuring.

On top of this and all the CFS symptoms I have developed tinnitus and servere tendonitis and leg muscle pain which makes think this could be FM rather than CFS????

Anyway, can't offer many solutions but just to let you know that you're not along in chest problems. It's one of the more disturbing and depressing symptoms of post viral syndromes.

[thester6474]

No I have not, at my last appointment with my PCP, we kind of had a busy appointment..We talked, we laughed, he checked my reflexes again, he checked my ability to feel (do not know any other way to put it..) and we talked about going elsewhere for treatment and diagnosis..He says that he is tired of these physicians here and it seems as though they are not going to be able to help me..He is pushing for either Duke U or Emory...I have since made an appointment, which I am not going to cancel..I just do not have the fight in me anymore, I just feel like it is not meant for me to know anymore..Why see another Neuro??I am sick of seeing other doctors, I believe that I am going to call it quits in my search for a diagnosis..

[beachchaser]

Thank you it helps a lot to talk to someone with some of the same symptoms. Have you had any test to check if your heart is ok. It is scarry when this happens and nothing helps.

Thanks,Beachchaser

[thester6474]

Yes that burning can be extreme, I actually have an appointment with my GP today, and I have typed up a list of questions and comments I have for him...Cause as soon as I get back there with one of my doctors I completely forget all of it...I have actually been researching it, and it does seem to be a common symptom, they also have medicine that can help it...It cannot be fixed, lol, because most physicians do not even believe it is a true disorder..Most feel like this is all in our heads...I also have myoclonus, hypermobility syndrome, kyphosis, scoliosis, neuropathy, spinal stenosis, early mild disc degenerative disease, mild disc dessication, osteopenia, & a B-12/iron deficiency.  Some days all I can do is lie down, because my chest is burning..

[thester6474]

Yes that burning can be extreme, I actually have an appointment with my GP today, and I have typed up a list of questions and comments I have for him...Cause as soon as I get back there with one of my doctors I completely forget all of it...I have actually been researching it, and it does seem to be a common symptom, they also have medicine that can help it...It cannot be fixed, lol, because most physicians do not even believe it is a true disorder..Most feel like this is all in our heads...I also have myoclonus, hypermobility syndrome, kyphosis, scoliosis, neuropathy, spinal stenosis, early mild disc degenerative disease, mild disc dessication, osteopenia, & a B-12/iron deficiency.  Some days all I can do is lie down, because my chest is burning..

[beachchaser]

Hello, I have been going to a Rheumatologist for about 15 years because at first my ANA was pointing toward me having lupus and now they think that I have Fibro also. I work fulltime and have been miserable now for about 6 months with a terrible burning in my throat,chest and under my breastbone.I have been to the ER thinking I was having a heart attack,but was assured that all test were normal,but also said that without further testing could not rule out heart disease.Well needless to say I have not had other testing but am still experiencing this terrible pain. I am taking Prilosec OTC daily and the pain will subside occasionally but always comes back. I was just wondering if anyone else has this symptom with their Fibro.The more I read I feel like this is a common symptom but is there nothing that can fix this?

[FemmeFugazi]

I have CFS/Fibro, and I've had a lot of trouble with pains in my chest. So much so that I've developed a sort of panic disorder centered around my fears of having a heart attack.

But, my doctor's have assured me my heart is fine.

One of the problems I've experienced is a condition called "chostocondritis" - and I'm not sure I'm spelling it right. But it is an inflammation of the muscle and cartilage attached to the breast bone. The pain can be as severe as the pain suffered by an athlete after pulling a hamstring muscle- and if you've seen those big 200 pound footballers writing around in agony on a 50-yard line from a pulled hamstring you know how much that can hurt to bring down a big man like that.

This pain can also extend down the arm on the effected side as well as into the upper back. And if the effected cartilage is on the left side then you have a pain that can easily mimic a heart attack.

chostocondritis, or Tietze's Syndrome, can also be caused, or made worse by a flare up of Irritable Bowell Syndrome. How, I'm not sure, but it may because IBS causes spasms in the colon and maybe this effects other muscles, nerves, or tendons in the body and somehow manages to exacerbate chostocondritis. And IBS is a common co-morbid of CFS.

[clap901]

i have it alot  and it is not heartburn i take nexium  but the burn has gotten so bad at times the pain start resembling heart attackafter two days of severe i called an ambulance and went to hospital after a 100 test and a month later they found three problems with my heart valves  but one is called Mitral Valve Prolapse
new drs are fionding out all tast fms ers have this big cause of chest pain and fatique
read about it and a great book to read is  parting the fog  easy one day read
darlyn