Can this Be True?

[papaw2008]

I was Dx'd w/MS in 2000 and tried several medications and have been on Cymbalta and the Copaxone shots now for almost a year. I am very allergic to most meds and was so happy that I was actually able to take these.But in truth I do not feel that much better. I am in pain all the time. There is never a pain free day. And I barely get a good four hours of sleep in. Did I mention pain?

In fact after typing this I know that my arms and hands will cause me great pain. (The pain is everywhere not just  in my arms and hands. But I use my arms and hands the most and they do hurt the most.)

I have been tested for arthritis and several several other things when Dx'd with MS and all came back negative, and finally told it was all apart of the MS so here lies the problem and confusion...!

I have tried a variety of sleeping aids, but what happens is I hurt so much that I still do not sleep and than feel even more tired and awful. And if I do manage to sleep I hurt so much from muscle stiffness that I can barely manage to walk for hours.

I have the brain fog and speech problems limb weakness and etc etc. and have had several tests to conclude that I indeed have MS.

But I have told my Neuro  about the pain and sleepness nights and the effect that I have taking the sleeping aids several times and she always wants to increase the cymbalta making me ask myself if she even believes me?

The last visit she sugessted I get checked for "Fibormyalgia".Is it possible that I could be so lucky to have both of these. And is there some test the Neuro should be doing to see if it is not just the MS? I have read up on the symptoms and they are really all the same as MS. So if I all-ready have MS why would she Dx me with Fibro too? The pain seems to be about the same in both diseases.

I can handle having MS and  Fibro, "Whats one more thing", but what I cant handle is the pain and that is what I asked her about and want anweres to honestly.....?

I am tired of feeling like this and even more tired of the never ending questions without answers. Thank you to those who take the time to read these and for your input.
Theresa

[papaw2008]

Thank you so much for your reply.It seems there are many of us "pain suferres!" And yes it SUCKS!

Iam not sure that I am ready for that Dx.( FMS) It was bad enough to have been Dx'd with the MS, but if it can somehow help with the pain I am all for it.Bring it on!

The Cymbalta has really helped with the nerve neuropothy I was having in my legs along with the shot I take everyday for the MS. I am sorry it did not help you at all. But I have been there to.

You would not believe how many meds I am allergic to, not just stomach upsett, but ichy hives and closed  breathing passage etc...!  Makes life interesting sometimes.....NOT!!  But we learn and go on dont we?

Again thank you for your reply and I wish you well and cetainly a pain free existence !

Theresa

[MoesQueen]

I'm sorry you're in pain,
Let me mention my pain "IT SUCK'S"!!!!!

I hope the Dr. will be able to help you very soon.
Pain is not fun and because you know it, you wouldn't wish this on anyone.

I was dx. with FMS a few years back, and was glad to get a name to the pain.

Cymbalta did nothing but made me itch outrageously. It was as if fire ants placed in my spinal cord and told "see how much more damage you can do". I'm glad that it's working out for you.

FMS has me hurting, stiff, sore, cunfused, crazy, twitching, itching, moving and burning minute by minute. Sometimes I have to yell out for some sanity.

Eventually everything will work out for you, don't give up.
And stay on the Dr. about getting something for the pain and possible a sleep-aid.

MoesQueen