Excellent information was posted by PlateletGal and VaBreeze. I just wanted to add that your chances of lyme are even greater since you live in a highly endemic state.
Thanks for all the info everyone. It is scary to have all of these symptoms. Hopefully I will be able to get the Lyme test mentioned above and have my neuro order an MRI. I hope everything will come out normal so that I can better accept my diagnosis of FMS and post viral syndrome.
If your western blot lyme test result is negative, then consider getting this lyme test done (through the right lab). The only problem is your insurance may not cover this test:
Lyme Borrelia Test (CPT: 86617)—Borrelia burgdorferi (Lyme Disease) by Western Blot analysis. Justification: Many CFS, FMS and RA patients have this systemic infection (diagnosed as Lyme Disease) along with other co-infection(s). Recommended Lab: IGeneX Laboratories of Palo Alto, CA (http://www.igenex.com/).
http://www.immed.org/illness/clinical_testing.html
I honestly think you should consider having an MRI of the brain done and especially if you have cognitive problems, along with your pain.
Certainly your symptoms could all be due to fibromyalgia, but I'm getting frustrated because I'm hearing more people say that they haven't had other possible conditions ruled out first.... this is certainly a must !
You do need that MRI to rule out MS or the possibility of it being something else causing your symptoms. A routine blood test will not reflect Lyme Disease. There are a few ways they test for this that are more accurate...but one you can request is a Western Blot. One other thing about Lyme Disease is that frequently taking the antibiotics do not help, unless it is caught in the very early stages. You do not want it to be Lyme...it is not easily treated as many in that forum can tell you.
Of course, it could be related to being post viral, as it is thought that with FMS/CFS our immune system is not able to ward off these virual components. Most do become sick after having a serious infection of some type, or after a traumatic event such as surgery/injuries.
It seems to be the popular thing now days for a physician to automatically label someone with FMS or CFS without adequate testing being done. I hope you can gain some answers soon.
I have not had an MRI, but am going to ask for one when I go back to the neuro in 2 weeks. From her assessment in the office she said that I didn't have MS because I specifically asked her as I am worried about that. My lyme testing was negative but it was just the regular blood test at the lab where I had all my other bloodwork done. I'm outside all the time once the weather is nice, so I was hoping it was Lyme and I could take antibiotics. I've been tested for Lyme twice, I think. I saw some discussions related to vitamin D and my vitamin D level was actually one of the highest my doctor has seen, she said usually everyone is low. I've been going for aquatic physical therapy once or twice a week and I can't tell if it is helping or not. What Lyme test should I ask for?
I can tell you that all of your symptoms could be due to fibromyalgia. However, I am working on a "Newly Diagnosed" health page because I'm getting concerned that many physicians are not checking out other possibilities before making their final "fibromyalgia" or "CFS" diagnosis.
Have you had an MRI of the brain done to help rule out MS ? Also, have you had lyme testing and if so, how many times and through which labs ?