Aa
Desperate for Help
I sit here crying as I read these wondering why I can't find out what is wrong with me too.
The pain or the depression which causes which?
Tired of the tests and especially tired of no results. Just find it! Whatever it is!
Its not Lupus and its not R. Arthritis so what is it?
I am living on Prednisone treatments and Lortabs, along with the anti-depressants and medication for sleeping.
Home life - Not worth a **** as usual life is being a b.....! lol
I no longer can do any of the things I love to do. I don't even want to go anywhere anymore. I would rather stay home that go somewhere for two hours and have to deal with the exhaustion and pain upon returning home. That's depressing!!! Right?
I now have a lump in the right breast so great now we get to check that out. Yep, its in our family. My mom 2x survivor.
I do have a new doctor who just retested with some more tests to see if I had the RA or Lupus, negative. I do have the arthritis in my spine. I do have severe sciatica pain on both sides. But that doesn't explain the arm pain, the severe swelling in my legs, ankles and feet along with pain so severe I had become unable to walk and have to keep taking rounds of steroids. I take 500 to 1000 mg. of Lortab three to four times a day. I stay sick to my stomach.
So what else? ..... lolol
Mom and Dad in Louisiana, Daddy in Hospital, Brother got admitted too for bi-polar disorder, yikes, Mom has chronic bladder disease, daddy lost one of the poodles, my husband just got laid off, so of course no money for bills, utilities getting shut off in the next day or so, no food money, no gas money, oh my goddd....Of course that affects the insurance now, so do I go get the lump checked now, or do I wait till he gets another job and is on another insurance company so they don't exclude treatment for a 'prior illness' if I get diagnosed with it now and its actually something. ... I think I better stop before I cause somebody else to be depressed as bad as me.... lolol
Bottom line is what are some ideas? Could I have MS, could it be CFS? What is it? I think just the feed back from some of you may be enough to help get my head wrapped around some of this. I don't know what else could be wrong with me, I don't like being sick and I don't like not knowing. I am a fairly intelligent woman with enough sense to know what to discuss with my doctor. MS doesn't seem to fit either, so without having to spend the next ten years looking, I thought some of you could see what I can't and give me some ideas.
The pain or the depression which causes which?
Tired of the tests and especially tired of no results. Just find it! Whatever it is!
Its not Lupus and its not R. Arthritis so what is it?
I am living on Prednisone treatments and Lortabs, along with the anti-depressants and medication for sleeping.
Home life - Not worth a **** as usual life is being a b.....! lol
I no longer can do any of the things I love to do. I don't even want to go anywhere anymore. I would rather stay home that go somewhere for two hours and have to deal with the exhaustion and pain upon returning home. That's depressing!!! Right?
I now have a lump in the right breast so great now we get to check that out. Yep, its in our family. My mom 2x survivor.
I do have a new doctor who just retested with some more tests to see if I had the RA or Lupus, negative. I do have the arthritis in my spine. I do have severe sciatica pain on both sides. But that doesn't explain the arm pain, the severe swelling in my legs, ankles and feet along with pain so severe I had become unable to walk and have to keep taking rounds of steroids. I take 500 to 1000 mg. of Lortab three to four times a day. I stay sick to my stomach.
So what else? ..... lolol
Mom and Dad in Louisiana, Daddy in Hospital, Brother got admitted too for bi-polar disorder, yikes, Mom has chronic bladder disease, daddy lost one of the poodles, my husband just got laid off, so of course no money for bills, utilities getting shut off in the next day or so, no food money, no gas money, oh my goddd....Of course that affects the insurance now, so do I go get the lump checked now, or do I wait till he gets another job and is on another insurance company so they don't exclude treatment for a 'prior illness' if I get diagnosed with it now and its actually something. ... I think I better stop before I cause somebody else to be depressed as bad as me.... lolol
Bottom line is what are some ideas? Could I have MS, could it be CFS? What is it? I think just the feed back from some of you may be enough to help get my head wrapped around some of this. I don't know what else could be wrong with me, I don't like being sick and I don't like not knowing. I am a fairly intelligent woman with enough sense to know what to discuss with my doctor. MS doesn't seem to fit either, so without having to spend the next ten years looking, I thought some of you could see what I can't and give me some ideas.
I am on my third round of prednisone for the pain, inflammation and swelling. They are trying to get the sciatica under control. This is also to help with the leg and ankle pain so I can walk, they swell so badly I can't stand for long it feels like the skin will split. The left side is the worst. It starts there and as it continues and gets to the bad stages then it goes to the right lower extremeties.
It helps, but once again I am coming off of them and my arm is already hurting again. It will only be a few days before the whole left side is hurting. This goes along with random, unexplained pains throughout the body, i.e. chest, left and right side, liver area, gall bladder area, kidney area. These are all areas that I experience pain on a regular basis, but it is more tolerable than the leg, arm and lower back pain. I am at least down to one Lortab 3x day. Not two every 4 to 6 hours.
They changed the Trazadone because of the weight gain and put me on15mg Restoril at bedtime. It usually works, sometimes I have to take more. I take 10mg Lasix and 15mg Mobic each day.
I was on Lexapro and I loved it! I was happy for the first time in a long time. Then they changed it to Cymbalta to treat the depression and the pain. I did not feel any different, I think the Lexapro with it might work better. But those are both very very expensive so perhaps I can get them from the companies. My husband is supposed to be on Lexapro too. He has boderline hi-bloodpressure. They had him on valium 1x day along with Elavil and Requip at bedtime. He has the worst case of sleepwalking and sleep spasms I have ever seen. His nerves are shot and now he is keeping me up because he is up and moving so much at night. We laugh because we get up in the mornings and all the food is gone. He gets up on average every 2 to 3 hours, eats, drinks, will even speak, goes back to bed and never remembers a thing. My kitchen is a wreck every morning!!! I have been thinking about checking out the sleep disorder clinic for him. That or separate beds. lol There goes my sex life again. Like I have one with all the meds. lol
As far as the tests go, I will have to get the list together. They started with gall bladder tests. All clear, including an endoscope. I only had H-Pylori and they treated me for that. My gall bladder was fine but they still can't figure out the pain that is exactly like a stone. I still get them just not as often with all the other medications it has calmed that down a lot.
They tested my kidneys because I kept getting bladder and kidney infections and said they were fine. The arthritis in my spine was diagnosed about five years ago when they did an MRI. That has definitely gotten a lot worse. The lower back pain is the kind that will make you pass out. They have tested me for Lupus and R. Arthritis. I don't know what was included in the first tests, this last round included the SED Rate and one other test. I have to get my file and backtrack to see. I am and always have been badly anemic and that continues. We were almost positive it was Lupus, but the tests were negative. One of my friends even thought I had MS because of the nerve pain being so bad. The tingling in my feet and hands along with some mild numbness in my toes and fingers was what made that come up. Severe, severe exhaustion is one very debilitating symptom. I am so glad to get home sometimes I feel like crying. Just so I can rest. Not sleep, just rest... I can only do activities that are going to require me to be out and about for just a couple hours.
I guess I am still terribly afraid when approaching doctors because they just quit when they dont find anything, they figure nothing is wrong. My husband has just started getting his unemployment. My mom sent me $100 and told me to go right away to get the lump checked out. She is scared since she had it twice already. I think my doctor will work with me and help me to get whatever we need to work for my situation. So I guess I just keep pushing forward. It helps to come here. I hate writing and talking about all of this. It just seems so complicated and neverending.
What are the most prominenet symptoms of the Fibromyalgia?
It helps, but once again I am coming off of them and my arm is already hurting again. It will only be a few days before the whole left side is hurting. This goes along with random, unexplained pains throughout the body, i.e. chest, left and right side, liver area, gall bladder area, kidney area. These are all areas that I experience pain on a regular basis, but it is more tolerable than the leg, arm and lower back pain. I am at least down to one Lortab 3x day. Not two every 4 to 6 hours.
They changed the Trazadone because of the weight gain and put me on15mg Restoril at bedtime. It usually works, sometimes I have to take more. I take 10mg Lasix and 15mg Mobic each day.
I was on Lexapro and I loved it! I was happy for the first time in a long time. Then they changed it to Cymbalta to treat the depression and the pain. I did not feel any different, I think the Lexapro with it might work better. But those are both very very expensive so perhaps I can get them from the companies. My husband is supposed to be on Lexapro too. He has boderline hi-bloodpressure. They had him on valium 1x day along with Elavil and Requip at bedtime. He has the worst case of sleepwalking and sleep spasms I have ever seen. His nerves are shot and now he is keeping me up because he is up and moving so much at night. We laugh because we get up in the mornings and all the food is gone. He gets up on average every 2 to 3 hours, eats, drinks, will even speak, goes back to bed and never remembers a thing. My kitchen is a wreck every morning!!! I have been thinking about checking out the sleep disorder clinic for him. That or separate beds. lol There goes my sex life again. Like I have one with all the meds. lol
As far as the tests go, I will have to get the list together. They started with gall bladder tests. All clear, including an endoscope. I only had H-Pylori and they treated me for that. My gall bladder was fine but they still can't figure out the pain that is exactly like a stone. I still get them just not as often with all the other medications it has calmed that down a lot.
They tested my kidneys because I kept getting bladder and kidney infections and said they were fine. The arthritis in my spine was diagnosed about five years ago when they did an MRI. That has definitely gotten a lot worse. The lower back pain is the kind that will make you pass out. They have tested me for Lupus and R. Arthritis. I don't know what was included in the first tests, this last round included the SED Rate and one other test. I have to get my file and backtrack to see. I am and always have been badly anemic and that continues. We were almost positive it was Lupus, but the tests were negative. One of my friends even thought I had MS because of the nerve pain being so bad. The tingling in my feet and hands along with some mild numbness in my toes and fingers was what made that come up. Severe, severe exhaustion is one very debilitating symptom. I am so glad to get home sometimes I feel like crying. Just so I can rest. Not sleep, just rest... I can only do activities that are going to require me to be out and about for just a couple hours.
I guess I am still terribly afraid when approaching doctors because they just quit when they dont find anything, they figure nothing is wrong. My husband has just started getting his unemployment. My mom sent me $100 and told me to go right away to get the lump checked out. She is scared since she had it twice already. I think my doctor will work with me and help me to get whatever we need to work for my situation. So I guess I just keep pushing forward. It helps to come here. I hate writing and talking about all of this. It just seems so complicated and neverending.
What are the most prominenet symptoms of the Fibromyalgia?
What are you taking prednisone for ? Also.... can you list the labs you've had done and ALL of your symptoms.
1st call your elec company explain your problem ours has a hardship program $28/mo if your husband is laid off he should be able to draw unemployment go to your welfare department for state insurance food stamps also go online and look for local help with food. you need to have the lump looked at asap. it sounds alot like you have fibro it took 1 full year for me to be dx when first started only in one leg for a dx must be in upper and lower extrimities on both sides of the body with positive pain in 12 of 18 pressure points i have 16. you need a diferent doc or have him look into fibromyalgia there are a lot better meds out there cembalta for depression is great with no side effects for me kadin long acting morph with fentora bucosal tabs for break thru both of these meds are vey expencive but under your cercumstances you most definatly will get them for free thru the companies that make them go on line now and have them both send you applications the fentora is fentanyl that disolves between your cheek and back upper teeth talk to your current dr today about this and these meds once on them your life will be much better hang in there and keep faith
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