Diagnostic blood test for ME/CFS coming !

[PlateletGal]

Here's the link:

http://www.youtube.com/watch?v=nfLoiqf6I4o

[SIMMY20]

very interesting gal, ten years ago i went to lanzarote at wich time i was bitten head to toe by mosquitoes{slept out side in the buff sloshed } later my fibro came along!! i have never been tested for lyme disease, or  tick disease,s  i did tell my dr this and asked to be tested but he just sort of talked around it ,and since it was so long ago when it happened i never thought about it much ,but i am going to go back and ask about being tested ....lol.. he,s not going to know whats going on when i bombard him with all these questions!!! you are a weath of information gal!! tcxxx

[PlateletGal]

I agree. I think we are genetically prone to these illnesses. I do know that Amy Proal has discussed why more WOMEN and not men are getting autoimmune conditions and these autoimmune syndromes (and I'm including fibro & CFS). It is very complex but it has to do with hormones.

I think what happens in a person with CFS or an autoimmune condition, is similiar to what happens to some people who have lyme disease. A person can be bitten by a tick and be infected by the bacteria... borrelia burgdorferi. However, they may not have any symptoms until years later... especially at a time when their health deteriorates.

[SIMMY20]

each to there own and all that! i personally think there is something hereidtary about these conditions, in my situation generation after generation in my family the women have had these awfull symptoms , some undiagnosed but all the same symptoms . in twenty years there has only been one male!!

[VaBreeze]

I'm sure my mother had Fibromyalgia (undiagnosed).  My father must have had something akin to Parkinson's as I recall him having tremors.  It was so long ago, but my Aunt (mother's sister) mentioned having some type of muscular wasting problem.  So it does seem to be genetics at play.

[SIMMY20]

hi everyone, i have fibromyalgia,, my niece has lupus and my brother has cfs, i do think that there must be a genetic link somewhere in there , {either that or we a unlucky lot} but with fibro it does make you feel, chronicly fatiguied,i also know about the whttemore institute and belive they are doing a great job!    kenderyl  with/for a positve diagnosis for lupus you have to have  a antinuclear  body show possitve in your blood ,but in saying that lupus is a family member of fibromyalgia..we just can,t win can we? tc all                                                                

[PlateletGal]

You know I wondered about that myself. I do know that FIBROMYALGIA patients often have shingles, but CFS ? I think the reporter got it confused. I know that happens often.

What I can tell you about the Whittemore Peterson Institute, is that the institute was started because the Whittemore's daughter, Elizabeth, has CFS. This center and Dr. Nicolson's center... have no hidden agenda. That is why I will donate money (and have to one of them) to both of these centers. They are set out to CURE illnesses and not treat the symptoms.

[Kenderyl]

OK, so - what are the chances that this new test is infallible? (Which even if experts said it was, I'd likely not believe it.)  I've been tested for Lupus and Diabetes, neither test has come out positive and yet I have nearly all the symptoms of Lupus and a LOT of the symptoms of hypoglycemia. :S

[RobinHood70]

I think that article raises more questions than it answers for me.

First off, I remember seeing a similar article dated last December, I think, and it was a lab in the UK that thought they would have testing and possibly a cure within a year.  Haven't seen anything further on that.

Also, I've never heard of shingles OR cancer being associated with CFS, though I have heard of rashes being common in some, including myself, but not one-sided like shingles.  Have I missed something?