Hi everyone...can someone please help...cant get answers from my docs
Im 28 yr old hetero male 5'10" 175 lbs history of symp...timeline and symptoms scared about HIV tested antibody neg 14 times out to 3 years post any exposure
02/06 - unprot 1 nt stand w girl 2 wks later fever, chills, headache, etc 4 days
12/06 - strep like illness - weak pos rapid treated w antib - didnt finish them completely/symp gone in week
10/06 - unprot sex w coworker & protect w new girl
01/07 - Vegas make out w stripper for 2-3 min
01/07 - makeout w girl at bar - protected sex 2 min
02/07 - 18 days later - illness high fever (up to 104 5 days), chills headache sore muscles/joints swollen/painful nodes in neck white stuff on tonsils back of throat, vomit, diarreah - no flu/strep, neg monospot - given levaquin cbc from ER shows high neutro, high monos low lymphs symp gone 2 days after levaq- postviral tingling, numb legs, burn feelings, etc in extrem...gone 2 weeks - no diag of illness - 3 mts later ID doc - pos EBV igg neg igm, pos mycoplasma igg neg igm - doc says possible mycop illness, neg cmv, lyme, west nile
08/07 - similar illness as last fever, etc no ER or antibiotics - sympt gone 5 days
04/08 - diagn w molluscum stomach, genital area - treated/gone
12/08 - diagn w sleep apnea
01/09 - get tonsils, adenoids, uvula out & trim soft palate - sleep better & no sick since
06/10 - tingling, burning,etc in extremeties - doc says neuropathy - no diabetes, b12 good, cbc normal
08/10 - neg HIV 1/O/2 labcorp, negative rapid test from clinic
08/10 - EMG done - says peripheral nerves are fine and actually better then average person no neuropathy
09/10 - MRI spine and brain - waiting for results
Current - last 6 months - always tired even after sleep, ankle joints hurt, sometimes sore muscles, tingling, burning, numb - worse at night, bad headaches come and go, sometime feel nauseous, etc - always tired, sore and stiff muscles when i sleep and wake up...i feel like I'm 65 years old!!!
Do you feel terrible the day after you exercise? Post Exertional Malaise (PEM) is the cardinal sign of Chronic Fatigue.
They have recently reported a retovirus related to the disease. A retrovirus is a virus that lurks in the body with no symptoms until a vulnerable time when it makes itself known. The XMRV retrovirus is related to mice, though, not sex. I don't think anyone has said it spreads human to human.
I'm in this situation myself. So far CFS is diagnosed by excluding everything else, but it looks like the science is finally coming. PEM is "a major spike in fatigue, pain and flu-like symptoms following exertion that lasts for a least 24 hours". I recently got tired of waiting for a diagnosis and Drs telling me to "wait and see what evolves" I have not been tested for XMRV but I was tested for PEM in California. My journal link is below, I think it describes what the testing and PEM is like. What struck my interest is your statement "always tired even after sleep, ankle joints hurt, sometimes sore muscles, tingling, burning, numb - worse at night, bad headaches come and go, sometime feel nauseous, etc - always tired, sore and stiff muscles when i sleep and wake up...i feel like I'm 65 years old!!! ". Admittedly I'm a lot closer to 65, but I do relate
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